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The price of caring
- Authors:
- BECKER Saul, ALDRIDGE Jo
- Journal article citation:
- Community Care, 20.1.94, 1994, pp.18-19.
- Publisher:
- Reed Business Information
Through talking to long-term sick and disabled people the authors found out how much the parents depended on their children for their physical and, in many respects, psychological well-being. The research also showed a complex matrix of relationships within the family and between the family and professionals. What was clear is that child carers were neglected both from within the family and from outside. Suggests how professionals must address this issue.
Adding value: carers as drivers of social change
- Authors:
- PEARLMAN Vicky, HOLZHAUSEN Emily
- Publisher:
- Carers UK
- Publication year:
- 2002
- Pagination:
- 16p.
- Place of publication:
- London
Unsung heroes, hearts of gold and other cliches get in the way of the real message about carers. Carers look after family, friends or partners in help because they are ill, frail or have a disability. The care they provide is unpaid seven days a week, 365 days of the year.
It could be you: a report on the chances of becoming a carer
- Author:
- GEORGE Mike
- Publisher:
- Carers UK
- Publication year:
- 2001
- Pagination:
- 14p.
- Place of publication:
- London
Carers look after family, friends or partners in help because they are ill, frail or have a disability. The care they provide is unpaid. In any year 301,000 adults in the UK become carers. Three out of five carers have had to give up work to care. Almost all of us have been or will be a carer during our lifetime.
Information that informs rather than alienates families with disabled children developing a model of good practice
- Authors:
- MITCHELL Wendy, SLOPER Patricia
- Journal article citation:
- Health and Social Care in the Community, 10(2), March 2002, pp.74-81.
- Publisher:
- Wiley
The provision of information and the importance of keeping families informed is frequently viewed as a significant factor within both the concept of empowerment and the facilitation of enabling and participatory processes for service users and their families. This article looks at how parents would like to receive this information and also discusses the empowering potential of user-friendly information. The article draws on data collected from a focus group discussions with parents caring for children with a range of disabilities or chronic illness. In particular it examines the criteria by which parents judge the quality of information and their ideas as to what constitutes good practice, especially in terms of how information is presented, its content and the way it is delivered. Using these ideas and criteria, the paper begins to develop a model of good information practice that is both three-dimensional and personally interactive.
Ethnicity, disability and chronic illness
- Editor:
- AHMAD Waqar I. U.
- Publisher:
- Open University Press
- Publication year:
- 2000
- Pagination:
- 154p.,bibliog.
- Place of publication:
- Buckingham
Brings together work on ethnicity, disability, chronic illness and caring. Examines the conceptualisation of disability or chronic illness and the implications of particular definitions; looks at everyday living with a disability or chronic ill health; and examines the role of services in providing support to disabled people and carers. Highlights the continued problems experienced by minority ethnic disabled and chronically ill people and their families.
Telecare and physical disability: using telecare effectively in the support of people with severe physical disabilities and long-term chronic conditions
- Editors:
- KERR Brian, et al, (eds.)
- Publisher:
- University of Stirling. Dementia Services Development Centre; Joint Improvement Team
- Publication year:
- 2010
- Pagination:
- 40p.
- Place of publication:
- Stirling
This booklet provides practical guidance on how telecare can contribute to improved outcomes and enhance the support, protection, and quality of life of people with complex physical disabilities and disabling long-term conditions. It also considers the importance of telecare in providing support and reassurance to carers. Sections in the booklet include: definitions of telecare and related concepts; the importance of good needs and risk assessment if telecare is to help meet those needs and manage risk; ethical dilemmas and how they can be resolved; how telecare can form part of a package of care and support, and issue particular to carers. Illustrative case studies are include throughout. Suggested content and a timetable for a one-day training programme are included to help trainers design both awareness raising and skill-development programmes. Examples of equipment which might contribute to the safety and quality of life of the telecare user are featured. A reference list and additional resources are included at the end of the book. This is one of four publications funded by the Scottish Government’s National Telecare Development Programme. The books are primarily aimed at assessors, care and support staff and their managers, telecare service managers and development staff.
Better care, higher standards: a charter for long-term care; a summary for users and carers
- Authors:
- GREAT BRITAIN. Department of Health, GREAT BRITAIN. Department of the Environment, Transport and the Regions
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 1999
- Pagination:
- 10p.
- Place of publication:
- London
Charter for anyone in England who is eighteen or over and has difficulties associated with old age, long term illness or disability; and carers who support people in these circumstances. The Charter tells anyone who needs care or support over the long term where they can expect local housing, health and social services to set standards for the services they provide and what to do if these expectations are not met.
Better care, higher standards: a charter for long-term care; April 2002-March 2003
- Author:
- SOUTH TYNESIDE. Social Services Department
- Publisher:
- South Tyneside. Social Services Department
- Publication year:
- 2002
- Pagination:
- 71p.
- Place of publication:
- South Shields
Aims to provide standards for long term care in South Tyneside, covering issues such as provision of information, assessment and care planning, housing, independence, health care, benefits and complaints procedures.
Better care, higher standards: a charter for long-term care
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2000
- Pagination:
- 20p.
- Place of publication:
- London
Aims to provide standards for long term care in South Tyneside, covering issues such as provision of information, assessment and care planning, housing, independence, health care, benefits and complaints procedures.
Short breaks for families caring for a disabled child with complex health needs
- Authors:
- ROBINSON Carol, et al
- Journal article citation:
- Child and Family Social Work, 6(1), February 2001, pp.67-75.
- Publisher:
- Wiley
Analyses data from two research studies concerned with disabled children who have complex health needs in relation to families' experiences of assessing short breaks (respite) services. This article highlights which services families were using and the difficulties of obtaining a coherent and consistent package of support. Regulatory concerns relating to the piece-meal provision of services and use of children's hospices are raised along with recommendations for improving policy and practice.