Search results for ‘Subject term:"physical disabilities"’ Sort:
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Missing pieces: a chronicle of living with a disability
- Author:
- ZOLA Irving Kenneth
- Publisher:
- Temple University Press
- Publication year:
- 2003
- Pagination:
- 246p.
- Place of publication:
- Philadelphia, PA
The author started out in the role of a social scientist on a seven-day excursion to acquaint himself with an extraordinary experiment in living, Het Dorp, one of the few places in the world designed to promote "the optimum happiness" of those with severe physical disabilities. Neither a medial center nor a nursing home, Het Dorp is a village in the western-most part of the Netherlands. What began as a sociological attempt to describe this unusual setting became, through the author's growing awareness, what can only be called a socio-autobiography. Resuming his prior dependence on a wheelchair, the author experienced his own transformation from someone who is "normal" and "valid" to someone who is "invalid." The routine of Het Dorp became his: he lived in an architecturally modified home, visited the workshops, and shared meals, social events, conversation, and perceptions with the remarkably diverse residents. The author confronts some rarely discussed issues, the self-image of a person with a chronic disability, how one fills one's time, how one deals with authority and dependence, and love and sex.
He's not drowning, he's waving: learning laughter and tears; living with learning disability
- Author:
- SPENCER Marlene
- Publisher:
- Solomanwhite
- Publication year:
- 2003
- Pagination:
- 147p.
- Place of publication:
- Wootton
This book describes the 27 years of a mother's experience of supporting her disabled son, whilst balancing the needs of other family members.
Inclusion against the odds: the continuing education and life of Kirsty Arrondelle
- Author:
- RUSTEMIER Sharon
- Publisher:
- Centre for Studies on Inclusive Education
- Publication year:
- 2003
- Pagination:
- 28p.
- Place of publication:
- Bristol
Describes the remarkable life of a young woman with Down’s Syndrome, whose family defied society’s pressures to segregate her. The report demonstrates the positive effects of mainstream inclusive education for all people, and challenges present-day views of what it means to be a successful citizen in contemporary society. The report documents the social and educational inclusion in her schools, college and now adult years, and links this with the pioneering struggle by her parents to secure mainstream provisions for their daughter.
The story of Belle, Minnie, Louise and the Sovjets: throwing light on the dark side of an institution
- Authors:
- ROETS Griet, Van HOVE Geert
- Journal article citation:
- Disability and Society, 18(5), August 2003, pp.599-624.
- Publisher:
- Taylor and Francis
This post-modernist story is composed as a narrative analysis of the lived experiences of Belle and Louise - two women with 'learning difficulties' and the authors' ethnographic field notes while doing narrative inquiry. The narratives mirror a shared construction of meaning and broaden our understanding--throwing light on the dark side of an institution. The narrative analysis points out a clear illustration of power dynamics and discourses in their lives, and shows how the women boast of resilience and offer (hidden) resistance. This paper particularly illuminates the individual, personal and even private celebration of activism and self-empowerment of Belle and Louise. Their vivid stories take us on an enthralling journey, getting to know their world through their eyes.
Listening to siblings: the experiences of children and young people who have a brother or sister with a severe disability
- Author:
- RATCLIFFE Janet
- Publisher:
- Handsel Trust
- Publication year:
- 2003
- Pagination:
- 37p.,bibliog.
- Place of publication:
- Birmingham
Series of interviews with eight children and young people who have a brother or sister with a severe disability. Most families recognise that siblings are often mature for their age and do enjoy the opportunity of being involved with their disabled brother or sister. The report explores the concept of 'children in need' and whether this concept should be applied to siblings of disabled children.
In the frame: photovoice and mothers with learning difficulties
- Authors:
- BOOTH Tim, BOOTH Wendy
- Journal article citation:
- Disability and Society, 18(4), June 2003, pp.431-442.
- Publisher:
- Taylor and Francis
This paper presents the results of a photovoice project involving mothers with learning difficulties. Photovoice is a technique that challenges the established politics of representation by putting people in charge of how they document their own lives. The authors describe how the project was carried out and the problems they encountered. Analysis of the content of the mothers' photo albums in the context of their own personal stories throws light on both their individual lives and their collective experience. The results challenge discriminatory views of the women as different mothers.
Men, sport, spinal cord injury and narrative time
- Authors:
- SPARKES Andrew C., SMITH Brett
- Journal article citation:
- Qualitative Research, 3(3), December 2003, pp.295-320.
- Publisher:
- Sage
Based on life history data, this article explores how time is experienced by three men who have become disabled through playing sport. Comparisons are made between their experiences of time at the following periods in their lives: (a) pre-spinal cord injury (SCI) when they inhabited able bodied, sporting, disciplined and dominating bodies; (b) immediately following SCI during rehabilitation; and (c) as they live at the moment post-SCI. The ways in which three different narratives operate to shape the post-SCI experiences of time for these men are highlighted, and the implications of this process for their identity (re)construction as disabled men is discussed.
Patterns of disability and norms of participation through the life course: empirical support for a social model of disability
- Author:
- SIMINSKI Peter
- Journal article citation:
- Disability and Society, 18(6), October 2003, pp.707-718.
- Publisher:
- Taylor and Francis
An attempt has been made in this article to empirically demonstrate the social derivation of disability using quantitative data, framed around the medical model. It would seem that people who are not convinced of the social derivation of disability, are likely to be influenced by findings made in such data. The term 'social derivation' is used to encompass both social construction and creation. The approach taken was to focus on one aspect of the social derivation of disability--investigating how the patterns of 'disabling conditions' vary over the course of life, specifically the schooling, working and retirement age. The observed patterns are not consistent with a medical model of disability that ignores social factors. Instead, the patterns are linked to social forces, both attitudinal and material. Socially-determined norms of participation, which vary between the life phases, seem to be a key determinant of the observed patterns of disability.
No African renaissance without disabled women: a communal approach to human development in Cape Town South Africa
- Author:
- LORENZO Theresa
- Journal article citation:
- Disability and Society, 18(6), October 2003, pp.759-778.
- Publisher:
- Taylor and Francis
Disabled women who live in wooden shacks in the peri-urban areas of Khayelitsha in Cape Town, South Africa, participated in storytelling workshops over a two-and-a-half-year period. They shared experiences of what helped or hindered their social and economic development since becoming disabled. The workshops were part of a participatory action research (PAR) study of the Division of Occupational Therapy, University of Cape Town, together with Disabled People South Africa (DPSA) and the Zanempilo Health Trust [formerly South African Christian Leadership Assembly (SACLA) Primary Health Care Project]. The findings revealed the struggles and sadness, as well as the strengths and spirit that the women experienced within their every day context at an individual, family and community level. The women spoke strongly about meeting physical, emotional, and spiritual needs (human development) as the means to social and economic development. The discussion reflects on the many paradoxes of disability encapsulated in the essence of interdependence of Ubuntu. Three themes discussed are building emotional resourcefulness: nurturing children and families in disability issues; and renewing spirituality and Ubuntu in disability and development programmes. In conclusion, managing the paradoxes of disability, the creation of a new individual and collective identity, and the capacity to change are proposed as the way forward.
Cracked: recovering after traumatic brain injury
- Author:
- CALDERWOOD Lynsey
- Publisher:
- Jessica Kingsley
- Publication year:
- 2003
- Pagination:
- 223p.
- Place of publication:
- London
At the age of 14, the author suffered a traumatic brain injury that left her physically unmarked but destroyed her memory. Thrust back into an apparently nonsensical world of which she had no recollection, she spiralled into depression and eating disorders as she became socially ostracized. This is the story of her quest to discover her identity and, eventually, and to come to terms with her disability, facing devastating setbacks, a sense of loss, grief and rage.