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Explaining the potential contribution of telecare to the support, protection and quality of life of people with differing needs
- Author:
- KERR Brian
- Journal article citation:
- Journal of Assistive Technologies, 4(3), September 2010, pp.35-39.
- Publisher:
- Emerald
The national Telecare Development Programme for Scotland was launched in 2006. Training and raising awareness are key issues for this programme. This article describes four practice and training guides published in 2010 by the Telecare Development Programme designed to promote the effective and ethical use of telecare for people with differing needs. The four guides are: Telecare and Learning Disability; Telecare and Dementia; Telecare and Physical Disability; and Telecare and Sensory Impairment. This article summarises the background to this initiative and the content of the guides. Several issues, such as the focus on specialist areas of need, the generic content and the apparent demand for this kind of publication, are discussed. The article concludes with some ideas for further publications, and reflection on the potential for converting these texts into an e-learning resource.
Shared Care Scotland Online Short Break Information Service (OSBIS)
- Publisher:
- Shared Care Scotland
An online directory provided by Shared Care Scotland, which aims to provide access to information on all forms of short break and respite care services including: home based and residential breaks, family placements, befriending projects, supported holiday breaks and more specialised facilities, guest houses and hotels.
'They don't quite fit the way we organise our services': results from a UK field study of marginalised groups and dementia care
- Authors:
- BEATTIE Angela, et al
- Journal article citation:
- Disability and Society, 20(1), January 2005, pp.67-80.
- Publisher:
- Taylor and Francis
The accessibility of dementia services to two groups of marginalised service users (people under 65 years of age and people from minority ethnic groups) was examined as part of a UK field study. In 61 interviews with a purposeful sample of professionals and paid carers in dementia care, the main issue in service access related to the small numbers of potential service users and their geographical dispersal. Other issues reflected those faced by people with dementia in general. At present, it seems as though decisions on care are based mainly on financial considerations and perceptions of the risk and dangerousness posed by people with dementia. These findings are linked to broader debates within the social model of disability about the need to address issues relating to people with learning impairments.
A new approach to the qualitative evaluation of functional disability in dementia
- Authors:
- KURZ X., et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 18(11), November 2003, pp.1050-1055.
- Publisher:
- Wiley
Dementia patients suffer from the progressive deterioration of cognitive and functional abilities. Instrumental disabilities usually appear in the earlier stages of the disease while basic disabilities appear in the more advanced stages. In order to differentiate between mild, moderate and severe patients both instrumental and basic functional disabilities should be taken into account simultaneously. The objective of this study was to find a new method for classifying dementia patients based on their disabilities by using a basic and an instrumental Activities of Daily Living (ADL) scale. Functional disability was assessed in a Belgian cohort of dementia patients using the Katz and Lawton Instrumental Activities of Daily Living (IADL) scales. A k-means derived clustering method allocated patients to disability clusters according to their Katz and Lawton scores. In order to validate the classification, we compared socio-demographic, clinical and costs parameters between the groups. The clustering method allocated patients between three clusters: dependent, non-dependent with instrumental functional disability (ND-IFD) and non-dependent. Dependence, as defined by these clusters, significantly correlates with age, residential setting, MMSE, patient's quality of life and costs. This new classification of patients suffering from dementia will provide better understanding of functional disabilities and will complement the evaluation of disease severity based on cognitive function.
Does assessment make a difference for people with dementia? The effectiveness of the Aged Care Assessment Teams in Australia
- Authors:
- HOWE Anna L., KUNG Francis
- Journal article citation:
- International Journal of Geriatric Psychiatry, 18(3), March 2003, pp.205-210.
- Publisher:
- Wiley
The needs of individuals with dementia and other psychiatric problems of old age have received increased attention in Australia over the last decade. This paper reports on the role of Aged Care Assessment Teams (ACATs) in managing these clients, and the extent to which they are differentiated from other clients in the assessment process and outcomes recommended. Data on some 26,500 clients seen by ACATs in Victoria in the second half of 1999 are analysed to show firstly, the relationship between a diagnosis of dementia and reporting of disability in orientation, secondly, characteristics of clients with and without a diagnosis of dementia and lastly, outcomes for groups of clients defined on the basis of a diagnosis of dementia and disability in orientation.
Development of an instrument for early detection of dementia in people with Down syndrome
- Authors:
- JOHANSSON Per Erik, TERENIUS Olle
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.325-345.
- Publisher:
- Taylor and Francis
The successful detection of early signs of dementia in people with Down syndrome could form a basis for useful early support and for drug treatment. This report describes the development and preliminary application of an interview and test instrument for the assessment of dementia among people with intellectual disability, as well as a framework for diagnosis. Reported are the assumptions for the items used, descriptions of the process and items used, and the associations of test items with predicting the presence of dementia. The authors conclude that a protocol combining testing and interview has promise and potential for detecting early signs of dementia in this population and could prove feasible for use in practice.
Comparison of instruments for the diagnosis of dementia in individuals with intellectual disability
- Authors:
- HOEKMAN Joop, MAASKANT Marian A.
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.296-309.
- Publisher:
- Taylor and Francis
This article describes the agreement among the results (dementia/no dementia) of three instruments used for the potential diagnosis of dementia in persons with intellectual disability. The instruments are: the Dementia Questionnaire for Mentally Retarded Persons (DMR), the Checklist with Symptoms of Dementia (CLD) and the Delayed Match-to-Sample Test (DMTS). The results were compared with the expert opinion of a physician/educational specialist/psychologist. The participants were 329 adults affiliated with centres for people with intellectual disability in The Netherlands. It was found that the agreement among the three instruments was low. The agreement between the expert opinion and the results of the tests was also found to be low. It was concluded that the instruments do not mutually agree upon which of the adults can be regarded as dementing or not dementing and they also provide inconsistent agreement with the expert opinion when dementia is present. It was further concluded that it is not advisable to use a single instrument when attempting to diagnose dementia in people with intellectual disability.
Keeping it in the family: caregiving in Australian-Greek families
- Authors:
- MORSE Carol A., MESSERMERI-KIANIDIS Voula
- Journal article citation:
- Social Work in Health Care, 34(3/4), 2001, pp.299-314.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Family-based caregiving refers to the daily provision of help to a co-resident family relative with the usual activities of daily living, custody and protection of a dependent relative at risk of self-injury, and support of a person with physical, developmental and/or mental disability or frailty due to ageing. Many reports from western studies refer to the caregiving burdens, stress and strains. A common view of migrant peoples is that they 'look after their own' to a greater extent than do English-speaking groups. A study was carried out with 300 Australian-Greek families in Melbourne where 150 were providing family-based caregiving, and these were age and gender matched with friends or acquaintances who had no such duties. Most care was provided by women. A wide range of disabilities and illnesses were receiving help and care in the caregiving families among care recipients aged from childhood to advanced old age. Distinct evidence of caregiving burden was found to a significant degree. Gender differences were apparent in the type of disorders managed, in the perceived severity of caregiving duties provided and in the total range of activities engaged in. The ethno-specific community organisations and extended family networks played little part in providing assistance to caregivers which challenges the myths of a close-knit migrant community looking after its own.
Behavioural and social rehabilitation and training
- Authors:
- BROWN Roy I., HUGHSON E. Anne
- Publisher:
- Wiley
- Publication year:
- 1987
- Pagination:
- 192p., bibliog.
- Place of publication:
- Chichester
Understanding and addressing underrepresentation in a postal survey of social care users
- Authors:
- SMITH Nick, MALLEY Juliette
- Publisher:
- Quality and Outcomes of Person-centred Care Policy Research Unit
- Publication year:
- 2012
- Pagination:
- 91
- Place of publication:
- Canterbury
This report draws together the findings of a review of postal surveys, examining the potential causes of underrepresentation and looking at methods of improving representation, such as such as the Adult Social Care Survey (ASCS). Evidence from postal surveys is increasingly being used in England to monitor and improve the performance of social care services. This review has highlighted that it is not only the characteristics of users but the behaviour of the organisation delivering the survey that can affect response rates. It outlines a range of approaches when participation is not possible and highlights four key methods that can be used to enable participation in postal surveys: recognising that the study information section of a postal survey can be a barrier to participation if it does not appear to be relevant to the respondent; adapting the questionnaire to reflect the 'individualised' needs of the participant, such as versions in other languages and Easy Read versions for adults with learning disabilities; employing alternative methods of data collection, such as face-to-face or telephone interview, alongside the postal survey; and encouraging or even providing support to complete the survey. (Edited publisher abstract)