Search results for ‘Subject term:"physical disabilities"’ Sort:
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The power to change: commissioning health and social services with disabled people
- Author:
- MORRIS Jenny
- Publisher:
- King's Fund
- Publication year:
- 1995
- Pagination:
- 46p.,bibliog.
- Place of publication:
- London
Sets out guidelines for those commissioning health and social services for people with physical and/or sensory impairments between the ages of 16 and 65.
Multidisciplinary quality assessment: the case of a child development team, part I
- Author:
- HOWARD Lynne M.
- Journal article citation:
- British Journal of Occupational Therapy, 57(9), September 1994, pp.345-348.
- Publisher:
- Sage
Places the concept of measuring quality in a multidisciplinary team within the context of child health services, with particular reference to provision for children with disabilities. Current preoccupations with measuring quality have been examined, noting that the difficulty of measuring service quality is compounded by quality itself being a concept open to a variety of interpretations. The managerial model of measuring quality of health care in a similar way to industrial quality has been rejected in favour of a qualitative approach, where consumers consider their needs to have been met and staff opinion concurs with this.
Unequal opportunities: growing up disabled
- Authors:
- HIRST Michael, BALDWIN Sally
- Publisher:
- HMSO/University of York. Social Policy Research Unit
- Publication year:
- 1994
- Pagination:
- 148p.,tables,bibliog.
- Place of publication:
- London
Research report drawing on a nationally representative survey to compare disabled young people's circumstances, life-styles and aspirations with those of non-disabled young people. Reports on the views of the young people surveyed, assesses their social integration, personal autonomy and self-esteem, and looks at the continuity of provision for their health and social care needs.
Focus day: services for people with a physical disability; held on 6 July 1992 at the Holiday Inn, Portsmouth
- Author:
- PORTSMOUTH AND SOUTH EAST HAMPSHIRE COMMUNITY HEALTH COUNCIL
- Publisher:
- University of Portsmouth. School of Social and Historical Studies. Social Servic
- Publication year:
- 1993
- Pagination:
- 96p.
- Place of publication:
- Portsmouth
A day of workshops which involved users, carers and service providers. Designed as a practical exercise to obtain the views of users about services.
The needs and quality of life of young persons with disabilities in the Camberwell area of South East London
- Author:
- DOYLE Yvonne
- Publisher:
- The Author
- Publication year:
- 1992
- Pagination:
- 120p.,tables.
- Place of publication:
- London
Research study on the young physically disabled in the Camberwell Health Authority area. Concludes by discussing the implications of the survey results for local services.
Care of a severely handicapped person over 8 years: implications for the future pattern of community care
- Authors:
- ELLIS P.F., FRANK A.O.
- Journal article citation:
- British Journal of General Practice, 40(338), September 1990, pp.283-385.
- Publisher:
- Royal College of General Practitioners
Describes co-operation between home care workers, care attendants and community nurses and case management by a key worker.
Last on the list: community services for people with physical disabilities
- Author:
- BEARDSHAW Virginia
- Publisher:
- Kings Fund Institute
- Publication year:
- 1988
- Pagination:
- 54p., tables, bibliog.
- Place of publication:
- London
Who said dialogue conversations are easy? The communication between communication vulnerable people and health‐care professionals: a qualitative study
- Authors:
- STANS Steffy E.A., et al
- Journal article citation:
- Health Expectations, 21(5), 2018, pp.848-857. Online only
- Publisher:
- Wiley
Objective: To gain insight into how communication vulnerable people and health‐care professionals experience the communication in dialogue conversations, and how they adjust their conversation using augmentative and alternative communication (AAC) or other communication strategies. Methods: Communication vulnerable clients and health‐care professionals in a long‐term care institution were observed during a dialogue conversation (n = 11) and subsequently interviewed (n = 22) about their experiences with the conversation. The clients had various communication difficulties due to different underlying aetiologies, such as acquired brain injury or learning disorder. Results from the observations and interviews were analysed using conventional content analysis.Results: Seven key themes emerged regarding the experiences of clients and professionals: clients blame themselves for miscommunications; the relevance of both parties preparing the conversation; a quiet and familiar environment benefitting communication; giving clients enough time; the importance and complexity of nonverbal communication; the need to tailor communication to the client; prejudices and inexperience regarding AAC. The observations showed that some professionals had difficulties using appropriate communication strategies and all professionals relied mostly on verbal or nonverbal communication strategies. Conclusion: Professionals were aware of the importance of preparation, sufficient time, a suitable environment and considering nonverbal communication in dialogue conversations. However, they struggled with adequate use of communication strategies, such as verbal communication and AAC. There is a lack of knowledge about AAC, and professionals and clients need to be informed about the potential of AAC and how this can help them achieve equal participation in dialogue conversations in addition to other communication strategies. (Publisher abstract)
Development and evaluation of The KIT: Keeping It Together™ for Youth (the 'Youth KIT') to assist youth with disabilities in managing information
- Authors:
- FREEMAN M., et al
- Journal article citation:
- Child: Care, Health and Development, 41(2), 2015, pp.222-229.
- Publisher:
- Wiley
Background: This article presents findings from the development and evaluation of The KIT: Keeping It Together™ for Youth (the ‘Youth KIT’). The Youth KIT is a resource intended to assist youth with disabilities during their teenage years and during the transition to adulthood to give information to others about themselves, get from others about themselves, and organize their own information to the best of their ability. Methods: Thirty-six youth between the ages of 12 and 25 with physical and developmental disabilities were active participants in the development of the Youth KIT and partnered with a multidisciplinary team to conduct the qualitative evaluation. Focus groups and individual interviews were used in three phases of evaluation. Results: The results of qualitative content analysis found the Youth KIT to be useful for a variety of youth in different contexts. The themes that emerged about the utility and impact of the Youth KIT were: (1) self-discovery for youth; and (2) the importance of the ‘fit’ between youth and mentors to support youth as they started to use the Youth KIT. Conclusion: Clinical implications for healthcare providers working with youth during the transition to adulthood include recognition that discussions about adult goals should be a continuous dialogue throughout adolescence rather than a ‘special’ conversation occurring at the time of discharge from paediatric services. (Publisher abstract)
A qualitative study of adult AAC users’ experiences communicating with medical providers
- Authors:
- MORRIS Megan A., DUDGEON Brian J., YORKSTON Kathryn
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 8(6), 2013, pp.472-481.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Purpose: To study the experiences of adults who use augmentative and alternative communication (AAC) systems and methods when interacting with medical providers, specifically primary care providers. Method: Individual face-to-face interviews were conducted with 12 participants, four of whom also participated in an online focus group. Diagnoses of the participants included cerebral palsy, undifferentiated developmental disability, head and neck cancer, amyotrophic lateral sclerosis and primary lateral sclerosis. Transcripts from the interviews and the focus group were analysed to create a list of codes. From these codes themes that captured particular concepts discussed were identified. Results: Participants described multiple frustrations in communicating with medical care providers. Themes that arose included: planning and preparing for the appointment, time barriers, inappropriate assumptions, relationship building and establishing rapport, medical decision making and implementing the plan. All but one participant reported bringing a caregiver with them to their appointments and this person, whether a family member, friend or paid aide, had a substantial role throughout the appointment. Conclusions: The participants’ stories highlight important barriers they experience when communicating with medical providers. These barriers bring attention to the need for education for physicians, caregivers and patients with communication disabilities, along with increased research to improve patient--provider communication. Implications for Rehabilitation: a) Patients with communication disabilities face multiple barriers to communicating with medical care providers.; b) Patients, caregivers, and medical care providers all play a role in effective and ineffective communication during appointments; c) Education for medical care providers, caregivers, and patients with communication disabilities, along with increased research is needed to improve patient-provider communication. (Publisher abstract)