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Meeting the needs of children with disabilities: families and professionals facing the challenge together
- Author:
- WARNER Helen K.
- Publisher:
- Routledge
- Publication year:
- 2006
- Pagination:
- 166p.
- Place of publication:
- Abingdon
Children with disabilities have needs that reflect the needs of every child of their age or stage of development, but in addition they will have other needs that are unique and special to them. This text provides the reader with an insight into the needs of children with both physical and learning disabilities, particularly within an acute care setting.
Direct threat issues in the employment of persons with disabilities: implications for the social work profession
- Authors:
- O'BRIEN Gerald V., MAUE Michelle E.
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 1(1), 2002, pp.39-52.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
In the decade since initial implementation of the Americans with Disabilities Act (ADA) in the United States, many questions have arisen pertaining to the rights of employers and employees in light of the employment of and services that must be provided to persons with disabilities. One of the most controversial aspects of the legislation is the issue of direct threat. This relates to the concern that workers or clients with disabilities may be a threat to others due to their condition. Integral to this fear isthe employer's ability to protect persons within the work environment from such a threat, while remaining in compliance with the ADA. This paper considers the issue of direct threat and its pertinence to the social work profession, and provides recommendations for employers and supervisors in the field.
Employment change and the role of the medical home for married and single-mother families with children with special health care needs
- Authors:
- DERIGNE Leaanne, PORTERFIELD Shirley
- Journal article citation:
- Social Science and Medicine, 70(4), February 2010, pp.631-641.
- Publisher:
- Elsevier
The authors hypothesised that whether or not a child with special health care needs usual source of care meets the criteria for a “medical home” influences parents’ employment decisions. This study included 38,569 children with special health care needs from birth to age 17 surveyed in the 2005-2006 US National Survey of Children with Special Health Care Needs. The employment model is estimated using multinomial logistic regression with the choice of a parent to maintain current employment, reduce hours, or stop working as the dependent variable. Independent variables were those characterising the needs of the child, the resources of the family, and the socio-demographic characteristics of the family. Components of the medical home variable included: having a usual source of care; family centred care; care coordination services; and receipt of needed referrals. Half of the children met criteria in all four facets. The relative risk of a parent choosing to cut their hours rather than maintain them decreased by 51% if the child had a medical home. The relative risk of choosing to stop work rather than not change decreased by about 64%. Care coordination services in particular reduced the odds of changing employment status. The authors conclude that the medical home is a moderating factor in parental decisions concerning change in employment status.
Neither seen nor heard: children and homecare policy in Canada
- Authors:
- PETER Elizabeth, et al
- Journal article citation:
- Social Science and Medicine, 64(8), April 2007, pp.1624-1635.
- Publisher:
- Elsevier
Changes in public policy have led to increasing numbers of children with disabilities and complex medical needs being cared for in the homes of Canadians. Little work, however, has explored the ethical implications of these policies. This paper focuses on some of the shortcomings of current policy and describes a developing method for policy analysis with an explicit focus on ethics that could be adopted in other nations. Three forms of analyses—descriptive, conceptual and normative—conducted on Canadian homecare policy documents describe various dimensions of Canadian homecare policy. The descriptive analysis demonstrated that the jurisdiction of homecare services is dispersed across numerous programs and ministries with no single structure for policy implementation and accountability. The needs of children and youth are rarely mentioned in home healthcare policies, but instead are addressed under broader social policies that are focused upon children and family. The conceptual analysis revealed four over-arching themes that represent the predominant elements of a value-structure that underlie homecare policy. They include: (1) home and community care as ideal; (2) the importance of independence and self-care of citizens; (3) family as primary care provider; and (4) citizenship as entitlement to rights and justice. Overall, these themes tend to reflect a neoliberal ideology that shifts the responsibility of care from the state to the individual and his/her family. A normative framework based on critical healthcare ethics is used in the paper to make recommendations to redress the current imbalance between state and family support. For example, including homecare services within the Canada Health Act (CHA) or the development of separate legislation consistent with the principles of the CHA would make it possible to ensure that the principles of universality, accessibility, portability and public administration, as opposed to principles that reinforce competitive individualism, direct the provision of homecare services in Canada.
People with MS in long-term care: good practice guidelines for service providers
- Authors:
- RIDLEY Joanna, SMYTH Ann
- Publisher:
- Multiple Sclerosis Society,|Leonard Cheshire
- Publication year:
- 1998
- Pagination:
- 20p.
- Place of publication:
- London
This guide highlights the key principles that should underlie the provision of high quality care provision in residential and nursing care homes. The Guide is aimed at managers and owners of Homes and at current and potential service users, their families and friends. It will also be of interest to purchasing and registration authority staff. People with MS often have complex care needs and it is important that staff are appropriately trained to be able to meet these needs. But the key to providing the highest quality of care is recognising and responding to the needs of people as individuals. So, while this Guide focuses on care provision as it might relate to people with MS, it also emphasises that care services within a Home need to meet the full range of physical, clinical, social, spiritual and emotional needs of each individual.
Health and long term care use trajectory for older disabled women
- Author:
- MEHDIZADEH Shala A.
- Journal article citation:
- Gerontologist, 42(3), June 2002, pp.304-313.
- Publisher:
- Oxford University Press
Examines health and long-term care use trajectories of a sample of chronically disabled older women in the USA eligible for both Medicare and Medicaid by exploring their use data in order to understand and anticipate the increasing demand on the health and long-term care delivery systems as aging female baby boomers reach age 65 and older. A long-term care career was established for patients beginning with receiving long-term care in the community, followed by a transition stage in which care was received in the community and in a nursing home, and finally by a stage at which they entered and remained in a nursing home. As patients proceeded along their long-term care career and their health and disability status worsened, there appeared a clear shift in the kind of care needed from hospital and home care to nursing home care. There was also a shift in the major payer, from Medicare to Medicaid. As the baby boomers age, a much larger number of women will be disabled and need health and long-term care services.
Service support for children with a chronic illness or physical disability attending mainstreams schools
- Authors:
- LIGHTFOOT Jane, MUKHERJEE Suzanne, SLOPER Patricia
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 1998
- Pagination:
- 183p.,bibliog.
- Place of publication:
- York
Aims to identify needs for NHS support for schools as expressed by children with special health needs, their parents and teachers, and to make recommendations for good practice. Commences with a review of relevant literature. Examines results of focus group discussions, which raised issues relating to school absence, exclusion from school life, support from peers and teachers, and medical care. Finally reports on conclusions arising from workshops with managers and professionals from education and health care.
Developing MS healthcare standards: evidence-based recommendations for service providers
- Authors:
- FREEMAN Jenny, et al
- Publisher:
- Multiple Sclerosis Society,|MS Professional Network
- Publication year:
- 2002
- Pagination:
- 37p.
- Place of publication:
- London
The physical and psychosocial problems experienced by people with MS are wide ranging, variable and often complex. This presents problems when defining needs and making recommendations for the provision of high quality services. There are a number of recurring themes throughout this document, reflecting those that are present for people with MS throughout the different stages of the condition. These recommendations provide a clear framework, which should inform the work of all those concerned with MS services including Primary Care Trusts (PCTs), as they lead on consulting with the community and working with social services and other agencies to decide the most effective way of delivering services to people with MS. For practical purposes we considered four phases of the condition: diagnostic; minimal impairment; moderate disability; and severe disability.
Welsh health survey 1998: results of the second Welsh health survey
- Author:
- WALES. National Assembly. Statistical Directorate
- Publisher:
- Wales. National Assembly. Statistical Directorate
- Publication year:
- 1999
- Pagination:
- 96p.
- Place of publication:
- Cardiff
The aim of the Welsh Health Survey was to collect information on a cross-section of the population with a range of illnesses or disabilities and on similar groups of healthy people, without using any medical records. Its results provide a picture of the health and well-being of adults in Wales and their use of and satisfaction with health services. The dataset contains details of responses to the survey (which was conducted by means of a self-completion postal questionnaire, completed by almost 30,000 adults), with a separate record for each respondent. It includes details about respondents' general health, specific illnesses for which they had been treated, use of the health service and satisfaction with the service provided, self-perceived physical and mental well-being (using SF-36 health status questions), and details about respondents and their lifestyle.
Rehabilitation of the older person: a handbook for the interdisciplinary team
- Editors:
- SQUIRES Amanda, HASTINGS Margaret
- Publisher:
- Nelson Thornes
- Publication year:
- 2002
- Pagination:
- 412p.,bibliog.
- Place of publication:
- Cheltenham
- Edition:
- 3rd.
Issues concerning rehabilitation of the elderly and considered from a multi-faceted team management approach. A shift in emphasis from people to person and from multidisciplinary to interdisciplinary reflects changes in the rehabilitation of older people. The book is divided into three sections dealing with the opportunity for, and theory and practice of, rehabilitation.