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Variations in providers capacity to offer accessible health care for people with disabilities
- Authors:
- BACHMAN Sara S., et al
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 6(3), 2007, pp.47-63.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Results from a comprehensive Massachusetts-based survey of providers about access to health care for people with primarily physical disabilities are presented, and suggest that a minority of providers report difficulties. Dentists and mental health/substance abuse providers are significantly less likely than others to report that they provide accessible services, are less likely to report having received training related to mobility impairment, the installation of mirrors and accessible doors at their premises, and the provision of help with personal care needs. Conversely, they are more likely to report that their premises pose barriers for disabled people. A social work framework for understanding the individual in a social environment may be the most effective for creating innovative strategies for addressing the complex and multi-dimensional needs of people with disabilities who experience limited access to health care services.(Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580).
Development and evaluation of The KIT: Keeping It Together™ for Youth (the 'Youth KIT') to assist youth with disabilities in managing information
- Authors:
- FREEMAN M., et al
- Journal article citation:
- Child: Care, Health and Development, 41(2), 2015, pp.222-229.
- Publisher:
- Wiley
Background: This article presents findings from the development and evaluation of The KIT: Keeping It Together™ for Youth (the ‘Youth KIT’). The Youth KIT is a resource intended to assist youth with disabilities during their teenage years and during the transition to adulthood to give information to others about themselves, get from others about themselves, and organize their own information to the best of their ability. Methods: Thirty-six youth between the ages of 12 and 25 with physical and developmental disabilities were active participants in the development of the Youth KIT and partnered with a multidisciplinary team to conduct the qualitative evaluation. Focus groups and individual interviews were used in three phases of evaluation. Results: The results of qualitative content analysis found the Youth KIT to be useful for a variety of youth in different contexts. The themes that emerged about the utility and impact of the Youth KIT were: (1) self-discovery for youth; and (2) the importance of the ‘fit’ between youth and mentors to support youth as they started to use the Youth KIT. Conclusion: Clinical implications for healthcare providers working with youth during the transition to adulthood include recognition that discussions about adult goals should be a continuous dialogue throughout adolescence rather than a ‘special’ conversation occurring at the time of discharge from paediatric services. (Publisher abstract)
Navigating healthcare: gateways to cancer screening
- Authors:
- DEVANEY Julie, et al
- Journal article citation:
- Disability and Society, 24(6), October 2009, pp.715-726.
- Publisher:
- Taylor and Francis
The first phase in the Gateways to Cancer Screening project - a user-driven participatory research project that examines barriers and facilitators to preventive cancer screening for women with physical mobility disabilities is reported. Through a systematic review of the literature it was found, despite the fact that women with disabilities have the same biological risk of developing cancer as non-disabled women, women with mobility impairments face systemic, architectural, procedural and attitudinal barriers to preventive cancer screening. The goals of the project are to identify barriers and facilitators to screening, identify the gaps in the existing literature related to issues of diversity and ultimately set the stage for disabled women to effect change through the telling of their own stories.
Disabled children and health: campaign briefing from the Every Disabled Child Matters campaign
- Author:
- FRANKLIN Louise
- Publisher:
- Every Disabled Child Matters
- Publication year:
- 2009
- Pagination:
- 28p.
- Place of publication:
- London
The past two years have seen a new focus in the government's approach to children's health - the NHS Operating Frameworks for 2008-2009 and 2009-2010 state that children should be one of the four national priorities for the NHS. Disabled children use NHS services significantly more than other children, yet they and their families consistently report poor experiences of both universal and specialist health services. This briefing paper sets out the case for further action to ensure the health needs of disabled children are appropriately met. It includes a number of recommendations for action at local and national level.
Disabled prisoners: a short thematic review on the care and support of prisoners with a disability
- Author:
- HM INSPECTORATE OF PRISONS
- Publisher:
- HM Inspectorate of Prisons
- Publication year:
- 2009
- Pagination:
- 66p.
- Place of publication:
- London
The National Offender Management Service is subject to the requirements of the Disability Discrimination Act. This thematic report draws together information from prisoner surveys and inspection reports between 2006 and 2008, together with responses from 82 prison disability liaison officers (DLOs), to examine how well prisons are currently able to discharge these duties. Areas covered include: environment and relationships; safety; health services; activities; and resettlement. The report makes a number of recommendations.
Disability and abuse in relation to substance abuse: a descriptive analysis
- Author:
- WOLF-BRANIGIN Michael
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 6(3), 2007, pp.65-74.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The substance abuse admission and treatment patterns of one US state were reviewed over a five year period to identify specific patterns among those with disabilities. Using a series of group comparisons, chi-squares and logistic regressions, the data reveal that people who had a disability and abused substances were more likely to be victimised by physical abuse and domestic violence than those without a disability. People with disabilities were also a third to a half more likely to receive long term residential, short term residential and intensive outpatient care. The implications for service providers and for social work education are discussed. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580).
Neither seen nor heard: children and homecare policy in Canada
- Authors:
- PETER Elizabeth, et al
- Journal article citation:
- Social Science and Medicine, 64(8), April 2007, pp.1624-1635.
- Publisher:
- Elsevier
Changes in public policy have led to increasing numbers of children with disabilities and complex medical needs being cared for in the homes of Canadians. Little work, however, has explored the ethical implications of these policies. This paper focuses on some of the shortcomings of current policy and describes a developing method for policy analysis with an explicit focus on ethics that could be adopted in other nations. Three forms of analyses—descriptive, conceptual and normative—conducted on Canadian homecare policy documents describe various dimensions of Canadian homecare policy. The descriptive analysis demonstrated that the jurisdiction of homecare services is dispersed across numerous programs and ministries with no single structure for policy implementation and accountability. The needs of children and youth are rarely mentioned in home healthcare policies, but instead are addressed under broader social policies that are focused upon children and family. The conceptual analysis revealed four over-arching themes that represent the predominant elements of a value-structure that underlie homecare policy. They include: (1) home and community care as ideal; (2) the importance of independence and self-care of citizens; (3) family as primary care provider; and (4) citizenship as entitlement to rights and justice. Overall, these themes tend to reflect a neoliberal ideology that shifts the responsibility of care from the state to the individual and his/her family. A normative framework based on critical healthcare ethics is used in the paper to make recommendations to redress the current imbalance between state and family support. For example, including homecare services within the Canada Health Act (CHA) or the development of separate legislation consistent with the principles of the CHA would make it possible to ensure that the principles of universality, accessibility, portability and public administration, as opposed to principles that reinforce competitive individualism, direct the provision of homecare services in Canada.
Inclusive integration: how whole person care can work for adults with disabilities
- Author:
- BROADBRIDGE Angela
- Publisher:
- Institute for Public Policy Research
- Publication year:
- 2014
- Pagination:
- 36
- Place of publication:
- Manchester
This report focusses on meeting the needs of working-age disabled adults as health and social care services are increasing integrated. It provides an empirical evidence base to demonstrate how whole person care (which is about making the connections between physical health, mental health and social care services) can be used to effectively meet these needs. The report also draws on the findings of a focus group with 12 disabled adults and carers on desired outcomes from the integration of health and social care services. Interviews with social care and voluntary sector professionals, commissioners and local authority policy to see if they are willing to include working-age disabled adults' needs in plans for future integration. The report looks at how working-age disabled adults have different needs and outcomes from older people and identifies the health inequalities they face in day-to-day life. Ten dimensions of health inequality are identified including housing, employment, financial security and quality of life. The report makes seven recommendations to inform the service response, including: taking a long term view of managing long-term conditions, viewing whole person care as a 10-year journey with matched by stable funding; debates on funding gap in social care should give consideration to the needs of working-age disabled adults; shifting resources from case management to community coordinated care to support prevention and providing a single point of contact for health and social care needs; service integration should take place across a much wider range of services to meet the needs of disabled people. (Edited publisher abstract)