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Including all children: finding out about the experiences of children with communication and/or cognitive impairments
- Author:
- MORRIS Jenny
- Journal article citation:
- Children and Society, 17(5), November 2003, pp.337-348.
- Publisher:
- Wiley
Practitioners and researchers have made progress, in recent years, in seeking the views of children and young people. Less progress has been made in seeking the views of young people with significant communication and/or cognitive impairments. Drawing on the experience of three research projects and one Best Value review, this article details the lessons learnt, and action required, in order to find out about the experiences of this important group of children and young people.
Good practice guidelines
- Author:
- BARNARDO's
- Publisher:
- Barnardo's
- Publication year:
- 1999
- Pagination:
- 8p.
- Place of publication:
- Barkingside
These good practice guidelines are intended for services which seek to support young disabled people in their transition to adulthood. The guidelines concern what service providers should try to do. They are based on what young disabled people themselves have said about what helps and does not help in the experience of growing up and becoming more independent.
Users' best value: a guide to user involvement good practice in best value reviews
- Authors:
- EVANS Clare, CARMICHAEL Angie
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2002
- Pagination:
- 67p.
- Place of publication:
- York
This report is based on users' experience in Wiltshire, where disabled people demonstrated the effectiveness of designing and executing the best value process of the 'Four Cs' - challenge, compare, complete and consult, to evaluate the service from their perspective. They reviewed the direct payments service, which linked into their particular understanding of the independent living and quality of life issues. They investigated users experience of direct payments support and care managers' knowledge of direct payments. They then undertook comparisons with services elsewhere including costing exercises.
More scope for fair housing: a good practice guide to housing and support for disabled people
- Authors:
- ESMOND Diane, et al
- Publisher:
- SCOPE
- Publication year:
- 1998
- Pagination:
- 112p.
- Place of publication:
- London
Based on the research findings, this report provides guidance on basic principles, which define good practice in provision of housing and support. Schemes identified as representing good practice shared certain characteristics. In terms of tenure, disabled people wanted to see their rights of occupation maximised even though some residents were not fully aware of what sort of agreement they held. In terms of design, disabled people did not want their housing to stand out as being different. Examples included resisting a sign on the outside of the house proclaiming it to be for disabled people, and wanting ramps to be designed to blend into the property rather than unsightly concrete additions. In terms of the type of housing management and support and care provided, the evidence was that residents saw these as separate areas of their lives, and did not wish one to be dependent on the other. In terms of care and support and independent living, disabled people wanted support to be provided for them as individuals not on a group basis. This gave them control over their lives such as when to get up, when to eat and when to go out. This was hampered when support was shared. It is essential that agencies involved recognise and understand what independent living means to disabled people and ensure equality of opportunity for disabled people. In terms of shared or self-contained housing, the research found no consensus over whether shared (with a room of one's own but sharing some facilities) or self-contained housing, is the ideal. People had different preferences. Some who started with shared accommodation later asked to move to self-contained housing, others preferred to continue sharing. In terms of size, whilst it is not possible to be totally prescriptive about how large a scheme should be, it is easy to see that it would be impractical to satisfy the good practice principles in large residential homes or developments. Where the number of residents housed in one place begins to restrict the choice of individual care and support, privacy and autonomy, and where the aim of the scheme is to provide housing which is integrated into the local community and not identified as special housing, then by definition this is bad practice. The good practice schemes identified in the research and the underpinning principles of good practice reflect and endorse the general movement away from special needs and residential homes to more self-contained independent accommodation. In terms of responding to the needs of people from ethnic minorities, where a scheme is being planned or set up to respond to the housing needs of disabled people from ethnic groups, organisations representing the interests of black disabled people should be consulted. The needs of black disabled people must be met at an individual level, and not subjected to stereotypical assumptions. Account must be taken of language and cultural requirements. In terms of creating sustainable environments to ensure effective and efficient use of resources now and in the future, disabled people and representative groups of disabled people should be consulted on their needs. Information should be collected and records kept on the numbers of disabled people and their needs and the whereabouts of adapted or adaptable housing.