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Quality indicators: disabled children's and parents' prioritisations and experiences of quality criteria when using different types of support services
- Authors:
- MITCHELL Wendy, SLOPER Patricia
- Journal article citation:
- British Journal of Social Work, 33(8), December 2003, pp.1063-1080.
- Publisher:
- Oxford University Press
Current health and social care policy seeks to develop and refine standards of service quality. However, policies have so far largely focused upon statistically based service output indicators. Recognizing the importance and yet limitations of this, especially in services for disabled children and their families, this paper draws upon qualitative and quantitative data to explore indicators that are meaningful and relevant to disabled children and their families. Results demonstrate the need to look beyond a generic family-based perception of service quality, as children and parents value different aspects of service quality and prioritize different indicators when using different types of services. Although some indicators are regarded as 'core' quality indicators, irrespective of service type, others are only prioritized for specific types of services.
Multi-agency care coordination and key worker services for disabled children
- Authors:
- SLOPER Patricia, et al
- Journal article citation:
- Journal of Integrated Care, 11(1), February 2003, pp.9-15.
- Publisher:
- Emerald
The authors describe the rationale for key workers services for disabled children, factors to consider in developing such services, the role of key workers, how a key worker service is operating in Leeds and the impact it has had for families who received it.
Information that informs rather than alienates families with disabled children developing a model of good practice
- Authors:
- MITCHELL Wendy, SLOPER Patricia
- Journal article citation:
- Health and Social Care in the Community, 10(2), March 2002, pp.74-81.
- Publisher:
- Wiley
The provision of information and the importance of keeping families informed is frequently viewed as a significant factor within both the concept of empowerment and the facilitation of enabling and participatory processes for service users and their families. This article looks at how parents would like to receive this information and also discusses the empowering potential of user-friendly information. The article draws on data collected from a focus group discussions with parents caring for children with a range of disabilities or chronic illness. In particular it examines the criteria by which parents judge the quality of information and their ideas as to what constitutes good practice, especially in terms of how information is presented, its content and the way it is delivered. Using these ideas and criteria, the paper begins to develop a model of good information practice that is both three-dimensional and personally interactive.
Unlocking key working: an analysis and evaluation of key worker services for families with disabled children
- Authors:
- MUKHERJEE Suzanne, BERESFORD Bryony, SLOPER Patricia
- Publisher:
- Policy Press
- Publication year:
- 1999
- Pagination:
- 85p.,bibliog.
- Place of publication:
- Bristol
Report based on a project in which multi agency key worker services for parents with a disabled child were planned, developed and implemented in two local areas. Managers and practitioners worked in partnership with the research team to observe, monitor and evaluate this process.
User-friendly information for families with disabled children: a guide to good practice
- Authors:
- MITCHELL Wendy, SLOPER Patricia
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2000
- Pagination:
- 54p.,bibliog.
- Place of publication:
- York
Report of a project which worked with parents of disabled children and practitioners to draw up criteria for good information provision. These criteria were then used by parents to judge current examples of information, in order to define a model of good practice. Begins with a discussion of research on families' information needs and current policy. The standards for information developed by project participants are then explained with reference to issues of presentation, content, delivery and organisation. Individual information sources, verbal, written and audio-visual, were then appraised and examples of good practice highlighted.
Real change not rhetoric: putting research into practice in multi-agency services
- Authors:
- SLOPER Patricia, et al
- Publisher:
- Policy Press
- Publication year:
- 1999
- Pagination:
- 51p.,bibliog.
- Place of publication:
- Bristol
Describes a new approach to getting research findings into practice. Looks at how researchers, working in collaboration with services, developed a multi agency key worker service for families with disabled children. This required change at both organisational and individual practice levels, within an inter agency approach.