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You're on the waiting list: families waiting for respite care services: fourth interim report
- Authors:
- ROBINSON Carol, STALKER Kirsten
- Publisher:
- Norah Fry Research Centre
- Publication year:
- 1991
- Pagination:
- 37p.
- Place of publication:
- Bristol
Many families experience serious problems finding suitable services which can cater for both their child's complex health needs and their own need for significant levels of support. This paper highlights which services families were using and the difficulties of obtaining a coherent and consistent package of support. Regulatory concerns relating to the piece-meal provision of services and use of children's hospices are raised along with recommendations for improving policy and practice.
Quality counts: a review of quality assurance in family based short term care
- Authors:
- NEWITT Bernie, JONES Vicky, ROBINSON Carol
- Publisher:
- Shared Care Network,|Norah Fry Research Centre
- Publication year:
- 1997
- Pagination:
- 41p.
- Place of publication:
- Bristol
Short breaks (respite care) provide invaluable support for disabled children and their families. They offer opportunities for children to become more independent, widen their horizons and have new experiences. It gives them the chance to form real friendships outside their family. At the same time their families get a break from caring and a chance to recharge their batteries.
A survey of family based respite care services
- Authors:
- ORLIK Christopher, ROBINSON Carol, RUSSELL Oliver
- Publishers:
- National Association for Family Based Respite Care, University of Bristol. Norah Fry Research Centre
- Publication year:
- 1991
- Pagination:
- 41p.,tables,bibliog.
- Place of publication:
- Bristol
Report bringing together information on 265 schemes which offer short term respite care to people with learning difficulties or physical disabilities.
Stronger links: a guide to good practice for children's family-based short-term care services
- Editors:
- JONES Vicky, LENEHAN Christine, ROBINSON Carol
- Publisher:
- Policy Press
- Publication year:
- 2000
- Pagination:
- 198p.,list of orgs.,bibliog.
- Place of publication:
- Bristol
- Edition:
- 2nd ed.
The second edition of this guide on good practice for family-based short-term care services for children has been updated and offers a legislative framework for each area in practice in addition to practical guidelines for implementing the legislation. Case studies and material used by existing schemes are included. This guide includes guidelines on all aspects of running a service, including publicity, recruitment, assessment, reviews, quality assurance and management issues.
Stronger links: a guide to good practice for children's family based short-term care services
- Editors:
- JONES Vicky, LENEHAN Christine, ROBINSON Carol
- Publisher:
- Shared Care UK
- Publication year:
- 1997
- Pagination:
- 141p.,list of orgs.,bibliog.
- Place of publication:
- Bristol
Guide to good practice for short term care services for disabled children and their families. The guidance is based on the Children Act 1989 and includes sections on: recruiting carers; access to services; assessing the carers; assessing children and families; preparation; consulting children, parents and carers; matching and linking carers to children and families; reviewing and monitoring placements; reviewing the approval of carers; training and support for carers; quality assurance; and managing good practice. The 2nd edition, dated 2000, is also available.
Balancing the Act: the impact of the Children Act 1989 on family link services for children with disabilities
- Authors:
- MACADAM Margaret, ROBINSON Carol
- Publisher:
- National Children's Bureau
- Publication year:
- 1995
- Pagination:
- 76p.,bibliog.
- Place of publication:
- London
The main aim of the study was to assess the extent to which the Family Placement Regulations have been implemented by family link services, to evaluate the impact regulations have had, and in particular to see whether they improved practice in placing children with disabilities. The study was carried out in two stages. Initially, a postal survey was conducted with all family link services for children in England and Wales. The second stage involved a detailed study of six family link services to see how they were operating under the Children Act. Recommendations are made.
Short breaks for families caring for a disabled child with complex health needs
- Authors:
- ROBINSON Carol, et al
- Journal article citation:
- Child and Family Social Work, 6(1), February 2001, pp.67-75.
- Publisher:
- Wiley
Analyses data from two research studies concerned with disabled children who have complex health needs in relation to families' experiences of assessing short breaks (respite) services. This article highlights which services families were using and the difficulties of obtaining a coherent and consistent package of support. Regulatory concerns relating to the piece-meal provision of services and use of children's hospices are raised along with recommendations for improving policy and practice.
Food for thought: effective support for families caring for a child who is tube fed
- Authors:
- TOWNSLEY Ruth, ROBINSON Carol
- Publisher:
- Norah Fry Research Centre
- Publication year:
- 2000
- Pagination:
- 163p.
- Place of publication:
- Bristol
Describes the practical, social and emotional impact of home enteral tube feeding on disabled children, their families and carers. Discusses the daily experiences of families and children coping with tube feeding; the involvement of non-parent carers and their training, guidance and insurance needs; and the support offered to families by health, education and social care professionals.
Growing up with disability
- Editors:
- ROBINSON Carol, STALKER Kirsten
- Publisher:
- Jessica Kingsley
- Publication year:
- 1998
- Pagination:
- 215p.,bibliogs.
- Place of publication:
- London
Adopts a child centred approach to growing up with a disability. Contains papers on: theoretical perspectives on research with disabled children; an historical perspective; early intervention; the pre-school years; children's experiences of school; parents and family; leisure and friendship; quality of life of children and young people with serious medical conditions; disabled children and child protection; group advocacy in a residential setting; disabled children in permanent substitute families; young people's aspirations; and the dynamic of transition to adulthood.