Search results for ‘Subject term:"physical disabilities"’ Sort:
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Stranded in the middle: transition services lacking for young disabled people
- Author:
- SALE Anabel Unity
- Journal article citation:
- Community Care, 3.08.06, 2006, pp.30-31.
- Publisher:
- Reed Business Information
Disabled young people and their families have long criticised services that are intended to ease their transition to adult care. However, there are signs that the issue is at last gaining political currency. There are 770,000 disabled children in the UK. More than 90 per cent of disabled children live at home and are supported by their families. One in 13 families get services from their local social services. 25 per cent of families with disabled children say services are poor or lack co-ordination.
The strengths and needs of black families in which young people have caring responsibilities
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2002
- Pagination:
- 4p.
- Place of publication:
- York
This study investigated the experiences and needs of black young people caring for disabled or ill family members and their access to services. A joint research team from Manchester Metropolitan University and the Bibini Centre for Young People interviewed young people and adults from 20 families and also sought the views of professionals from relevant social care agencies.
Children, young people and their families living with a hidden disability
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1998
- Pagination:
- 4p.
- Place of publication:
- York
A qualitative study has been carried out which documents the experience of families with a son or daughter affected by a hidden disability. The author interviewed children, young people and their parents about living wih chronic faecal incontinence resulting from congenital bowel impairment.
A severe blow
- Author:
- HUBERT Jane
- Journal article citation:
- Community Care, 14.11.96, 1996, pp.32-33.
- Publisher:
- Reed Business Information
Every hour in this country 15 people are taken to hospital with a head injury, and every two hours one dies. Asks what happens to the survivors and their families when they go home, and what support they can count on.
The effectiveness of short breaks in families where there are children with disabilities: a systematic review of the evidence
- Author:
- SNEDDON Helga
- Publisher:
- Northern Ireland. Health and Social Care Board
- Publication year:
- 2017
- Pagination:
- 103
- Place of publication:
- Belfast
Summarises evidence on the outcomes and impacts of short breaks for children and young people with disabilities and their families. The review included short break and respite care for young people aged up to 21 years with disabilities, either physical or severe emotional/ behavioural problems. Studies were excluded if the focus was on children with life-limiting conditions or palliative care. Searches were conducted on a range of databases in 2017 and results were screened for relevance. A total of 475 relevant articles were identified as relevant. The review identified very few robust evaluations of respite and short breaks provision, where the impact is compared to families who have not received the same support. However, it found some promising evidence of the effectiveness of short breaks and respite provision for families with children with disabilities. The review found evidence that short breaks and respite are very highly valued by families as a useful support in helping them cope; that they positively impact on the wellbeing of carers; that family relationships and stress levels improve; and some studies noted an increase in children's independence, social skills, social awareness, interests and confidence. Although there is some promising evidence, the review found insufficient robust evidence to fully assess the effectiveness of in-home respite provision. The review makes recommendations to inform short break care practice in Northern Ireland. (Edited publisher abstract)
Family needs of parents of children and youth with cerebral palsy
- Authors:
- PALISANO R. J., et al
- Journal article citation:
- Child: Care, Health and Development, 36(1), January 2010, pp.85-92.
- Publisher:
- Wiley
Understanding the needs of families of children and youth with cerebral palsy (CP) is important for family-centred services. This study aimed to identify differences in the number and types of family needs expressed by parents based on the age and gross motor function level of their children with CP, identify the most frequent family needs, and identify needs that differ on gross motor function level. 501 parents of children and youth with CP completed a modified version of a Family Needs Survey and a demographic questionnaire. Children's gross motor function level was classified using the Gross Motor Function Classification System. Family needs, including information, community services and finances, differed in number according to gross motor function level. Parents of children/youth using wheeled mobility expressed the most family needs, while those with children/youth who walk without restrictions expressed the fewest. Parents of children and youth using wheeled mobility were more likely to express the need for help in paying for home modifications, equipment, services and locating sitters, respite care providers and community activities. The gross motor function level of children/youth with CP has implications for families’ needs and coordination of services. Family needs for future planning suggest that health professionals should assist families to prepare for key periods in the lives of their children with CP.
The adolescent with developmental co-ordination disorder (DCD)
- Author:
- KIRBY Amanda
- Publisher:
- Jessica Kingsley
- Publication year:
- 2004
- Pagination:
- 143p.,bibliog.
- Place of publication:
- London
Adolescence is hard for most of us, but for an individual with Developmental Co-ordination Disorder (DCD) it can be twice as hard. Amanda Kirby, Medical Director of the Dyscovery Centre and the mother of a DCD child herself, addresses the main difficulties encountered by adolescents with DCD, including building relationships and coping with secondary school. With a common sense approach she provides a series of practical ideas on how individuals can tackle these difficulties making The Adolescent with Developmental Co-ordination Disorder an essential resource for adolescents with DCD, as well as parents, teachers and health professionals.
Everybody here?: play and leisure for disabled children and young people; a Contact a Family survey of families' experiences in the UK
- Author:
- SHELLEY Pauline
- Publisher:
- Contact a Family
- Publication year:
- 2002
- Pagination:
- 41p.
- Place of publication:
- London
This report from Contact a Family draws on the experiences of over 1000 families with disabled children in trying to access everyday leisure opportunities across the UK, including swimming pools, cinemas, after school clubs, holiday playschemes and major attractions. Not surprisingly the answer to the question ‘Is everybody here?’ is a very clear no. It provides an overview of current legislation and government policy, identifies the barriers to participation, and ends with clear sets of recommendations to providers and policy-makers. There is also a useful appendix listing attractions positively recommended by parents.
Children and young people with a hidden disability: an examination of the social work role
- Author:
- CAVET Judith
- Journal article citation:
- British Journal of Social Work, 30(5), October 2000, pp.619-634.
- Publisher:
- Oxford University Press
There has been little research attention paid to the nature and extent of social work intervention with children and young people with invisible impairments. The study described here found that children and young people with a hidden and stigmatizing impairment received a social work service which was at a minimal level. Recommendations are made about social services input, but it is recognized that the level of social services intervention available to these families may, in part, be a reflection of a low priority assigned to disabled children generally. It is argued that, although such an assignment is a common picture in recent research about social services provision to disabled children, a change in priorities is needed which recognizes the importance of coherent support to disabled children as a means of improving their environment and thereby reducing families' stress levels and the likelihood of abuse or rejection.
Young carers' transitions to adulthood
- Authors:
- DEARDEN Chris, BECKER Saul
- Journal article citation:
- Childright, 167, June 2000, pp.8-10.
- Publisher:
- Children's Legal Centre
Reports on recent research by the Young Carers Research Group which examines the experiences of young people between the ages of 16-25 who were caring for parents with long-term illness or disability. The focus of this research was on the ways in which caring influenced transitions into adulthood. Areas investigated were family structure and the nature of parental illness/disability; education, training and employment; income and benefits; receipt of and experiences of services; housing, leaving home and family separations; and becoming an adult.