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Families of children with disabilities: positive adaptation across the life cycle
- Authors:
- BENNETT Tess, De LUCA Deborah A., ALLEN Robin W.
- Journal article citation:
- Social Work in Education, 18(1), January 1996, pp.31-41.
- Publisher:
- National Association of Social Workers
Research on families of children with disabilities in the United States has shifted from a focus on family distress to a focus on positive adaptation. Current research involving the family life cycle has spawned an interest in family stress and adaptation at different stages in the cycle. The study discussed in this article investigated the informal resources that parents use across the family life cycle and focused on positive adaptation. Implications for social work practice are discussed.
Stress in parenting a disabled child
- Author:
- MUTCH Elizabeth
- Publisher:
- University of East Anglia
- Publication year:
- 1997
- Pagination:
- 34p.,bibliog.
- Place of publication:
- Norwich
Research report looking at the stresses on parents who have a disabled child living at home. Emphasises throughout the need for social workers to work in a way which is sensitive to individual cases, recognising the particular strengths and needs within each family. Contains sections on: sources of stress; coping mechanisms/resources; and formal and informal support networks.
All in the family: siblings and disability
- Authors:
- ATKINSON Nicola, CRAWFORTH Mavis
- Publisher:
- NCH Action for Children
- Publication year:
- 1995
- Pagination:
- 12p.
- Place of publication:
- London
Survey focusing on the needs of brothers and sisters of children with disabilities. Looks at the additional tasks and responsibilities placed on siblings, the impact on family outings and on schooling, and at emotional stress.
Time away from “smelling the roses”: where do mothers raising children with disabilities find the time to work?
- Author:
- BRANDON Peter
- Journal article citation:
- Social Science and Medicine, 65(4), August 2007, pp.667-679.
- Publisher:
- Elsevier
Using the Australian Time Use survey (TUS), this study examined time allocation among working parents raising children with disabilities. Findings showed that raising children with disabilities reduced the time working mothers had for leisure activities, but increased the time for socializing activities. Consistent with the literature, the latter effect probably reflects the special need of working mothers raising children with disabilities for strong social networks offering regular support. While a mother's time for personal care was reduced by a child with a disability, a father's time for personal care was unaffected. Thus, mothers were relatively more disadvantaged than fathers in terms of total time for themselves. This study offers new knowledge on the impact of childhood disability on working parents’ time for personal care and leisure, activities that can improve their psychological and physical well-being.
An investigation of carers' burden: before and after a total hip replacement
- Author:
- CHOW W.H.
- Journal article citation:
- British Journal of Occupational Therapy, 64(10), October 2001, pp.503-508.
- Publisher:
- Sage
Osteoarthritis in the hip joint is a chronic degenerative condition, causing pain and disability. This study investigates whether carers experienced stress from looking after individuals with osteoarthritis who were waiting for total hip replacement. The survey was conducted with 23 carers using postal questionnaires before and 3 months after the care receivers had undergone a total hip replacement. Concludes that carers do experience stress from looking after people with osteoarthritis waiting for a total hip replacement and that the carers' stress level was not reduced significantly 3 months after the hip operation. The results of this study have implications for health care professionals who come into contact with this group of carers.
Caring for a severely disabled child: findings
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1994
- Pagination:
- 4p.
- Place of publication:
- York
Research on families caring for disabled child often describes only the stresses of care and their adverse effect on family welfare. Whilst acknowledging the numerous stresses parents face, research by Bryony Beresford at the Social Policy Research Unit, University of York, sought to understand what keeps parents going. The ways parents deal with stress, the importance of the parent-child relationship and the role of services were explored.
Young disability
- Author:
- CHARLES Jane
- Journal article citation:
- Practice: Social Work in Action, 5(3), 1991, pp.214-225.
- Publisher:
- Taylor and Francis
Draws together problems experienced by parents of very young disabled children and practice-based ideas for support by social workers.
Authoritative parenting and parental stress in parents of pre-school and older children with developmental disabilities
- Authors:
- WOOLFSON L., GRANT E.
- Journal article citation:
- Child: Care, Health and Development, 32(2), March 2006, pp.177-184.
- Publisher:
- Wiley
Rearing a child with a developmental disability is associated with increased parental stress. Theories of stress and adjustment and bi-directional theories of child development suggest that parenting could influence these negative outcomes. Relationships between parenting approaches and stress in parents of children with developmental disabilities (DD) (N = 53) were examined across two age groups, 3–5 years and 9–11 years and compared with a contrast group of typically developing children (TD) (N = 60). Measures used were the Parenting Stress Index-Short Form and Rickel and Biasatti's modification of Block's Child Rearing Practices Report, classified into Baumrind's parenting styles using Reitman and Gross's method. Parents in the older DD group used Authoritative parenting less than parents in the younger DD group, while the opposite developmental pattern was seen in the TD group. Multivariate analysis of variance showed a significant group × parenting style interaction for Parental Distress, Parent–Child Dysfunctional Interaction and Difficult Child. Stress measures were higher for the DD group and seemed to be associated with Authoritative parenting approaches, an effect that was not observed in the TD group. Findings suggest that the well-established effect of group on stress may be moderated by parenting style. Authoritative parenting may be highly stressful for parents of children with DD to implement, resulting in a decrease in its use across the two age groups.
No time for us: relationships between parents who have a disabled child; a survey of over 2,000 parents in the UK
- Author:
- SHAPIRO Acton
- Publisher:
- Contact a Family
- Publication year:
- 2004
- Pagination:
- 43p.
- Place of publication:
- London
Contact a Family recently carried out some research into the effect on marriage and relationships of having a child with special needs. Over 2,000 families responded to the survey. More than half felt that having a disabled child caused some or major problems in their relationship, although nearly a quarter thought it had brought them closer together. Not surprisingly respite was cited as being the most important thing that helps relationships.
He's not drowning, he's waving: learning laughter and tears; living with learning disability
- Author:
- SPENCER Marlene
- Publisher:
- Solomanwhite
- Publication year:
- 2003
- Pagination:
- 147p.
- Place of publication:
- Wootton
This book describes the 27 years of a mother's experience of supporting her disabled son, whilst balancing the needs of other family members.