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The experience of disability from the perspective of parents of children with profound impairment: is it time for an alternative model of disability?
- Author:
- BRETT Jane
- Journal article citation:
- Disability and Society, 17(7), December 2002, pp.825-843.
- Publisher:
- Taylor and Francis
This article considers the significance of a model of disability in relation to the child with profound impairment and examines the individual and social models of disability in connection with this. It is argued that although these two models cannot be completely dismissed, the models largely ignore the experience and perspective of the profoundly impaired child, their parent(s) and family. This article endeavours to inform an alternative model of disability, the 'Alliance' or cooperative model between child, parent and carer.
Seeing the invisible children and young people affected by disability
- Authors:
- BANKS Pauline, et al
- Journal article citation:
- Disability and Society, 16(6), October 2001, pp.797-814.
- Publisher:
- Taylor and Francis
Presents a brief review of literature relating to children in families with a disabled member, including the 'young carers' and disability studies literature, and relevant works from the social psychology and sociology of childhood. Key themes identified in the literature are then illustrated by findings from two exploratory research studies that sought to explore the experiences and service needs of children in families with a disabled member, within two Scottish areas. The authors suggest that, although young people affected by disability in the family, including young carers, face significant problems, particularly in socially disadvantaged areas, there are other issues that need to be addressed. Alternative conceptual frameworks are proposed, which challenge the dominance of the young carers research paradigm.
A bereavement model for working with families of handicapped children
- Authors:
- STEWART June, POLLACK Gloria
- Journal article citation:
- Children and Society, 5(3), 1991, pp.241-253.
- Publisher:
- Wiley
Describes a support project for families following the birth of a handicapped child, including the development and application of Le Poidevin's model of adjustment to loss.
Social work with disabled people
- Authors:
- OLIVER Michael, SAPEY Bob
- Publisher:
- Palgrave Macmillan
- Publication year:
- 2006
- Pagination:
- 218p.
- Place of publication:
- Basingstoke
- Edition:
- 3rd ed.
Introduction to social work with disabled people. Includes chapters on: old and new directions in social work with disability; thinking about disability; the causes of impairment and the creation of disability; disability in the family; living with disabilities; the legal and social context of disability; and some professional and organisational aspects of social work with disabled people
Family well-being and disabled children: a psychosocial model of disability related child behaviour problems
- Author:
- WOOLFSON Lisa
- Journal article citation:
- British Journal of Health Psychology, 9(1), February 2004, pp.1-13.
- Publisher:
- Wiley
This theoretical study aims to integrate perspectives from a social model of disability with psychological research on the role of cognitive change in families' coping and adjustment to having a disabled child, and thus produce a new psychosocial model of disability-related child behaviour problems. Negative societal attitudes to disability identified by a social model of disability are interpreted with respect to how they might translate to parent views of their disabled child within the family. Resultant parenting beliefs and their possible implications for family interaction, child behaviour and family health and well-being are explored within this new framework. Concludes that the psychosocial model of disability-related child behaviour problems provides a useful conceptual framework that has both clinical and research implications for professionals working with families with disabled children.
Tell them who i was': the social construction of aphasia
- Author:
- MACKAY Robert
- Journal article citation:
- Disability and Society, 18(6), October 2003, pp.811-826.
- Publisher:
- Taylor and Francis
This article addresses people with aphasia. Talking (communication) is linked to the medical ideology and the social ideology. The medical ideology complements capitalism and promotes the individual. The medical ideology has the power for requiring 'normal' language. One speech therapist says, '...take away hope but it is a rare person who can go back to talking normally as they did before'. The medical ideology takes people with aphasia and constructs the incompetence which marginalises them from the work force and sometimes from their families. The medical ideology encourages dependency, which is disempowering. The social ideology under a different notion of talking encourages people to engage in two-way communication. The author looks at sharing information with a sense of humour, which is empowering. He illustrates that people with aphasia have to operate between the two ideologies.
The influence of health, social support quality and rehabilitation on depression among disabled elders
- Authors:
- HOROWITZ A., et al
- Journal article citation:
- Aging and Mental Health, 7(5), September 2003, pp.342-350.
- Publisher:
- Taylor and Francis
This study examined the influence of health, social support, disability, and vision rehabilitation services on depression among visually impaired older adults seeking vision rehabilitation services. Participants (n 1/4 95) were interviewed at application and approximately two years later. The first hierarchical regression model focused on concurrent relationships at baseline. The second model used baseline health and social support variables, along with indicators of change in vision and use of rehabilitation services, in order to predict change in depression over time. Findings indicate that being unmarried, in poorer health, having lower quality of relationships with family, and lower stability in friendships were significant independent risk factors for initial depression, explaining 50% of the variance. Decline in depression over time was predicted by younger age, better self-rated health, stability of friendships, and use of rehabilitation services that, along with baseline depression, explained 61% of the variance in depressive symptomatology at the two-year follow-up. Findings highlight the importance of qualitative aspects of social support for older disabled adults, as well as the distinction that needs to be made between factors that predict concurrent mental health status and those predicting change in status over time.
Information that informs rather than alienates families with disabled children developing a model of good practice
- Authors:
- MITCHELL Wendy, SLOPER Patricia
- Journal article citation:
- Health and Social Care in the Community, 10(2), March 2002, pp.74-81.
- Publisher:
- Wiley
The provision of information and the importance of keeping families informed is frequently viewed as a significant factor within both the concept of empowerment and the facilitation of enabling and participatory processes for service users and their families. This article looks at how parents would like to receive this information and also discusses the empowering potential of user-friendly information. The article draws on data collected from a focus group discussions with parents caring for children with a range of disabilities or chronic illness. In particular it examines the criteria by which parents judge the quality of information and their ideas as to what constitutes good practice, especially in terms of how information is presented, its content and the way it is delivered. Using these ideas and criteria, the paper begins to develop a model of good information practice that is both three-dimensional and personally interactive.
Home care for children dependent on medical technology: the family perspective
- Authors:
- PETR Christopher G., MURDOCK Beatriz, CHAPIN Rosemary
- Journal article citation:
- Social Work in Health Care, 21(1), 1995, pp.5-22.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Children who are dependent on medical technology present unique challenges to families and professionals who attempt to care for them at home. This longitudinal, exploratory study examines the placement threatening crises experienced over an eighteen month period by four such families in Minnesota. The findings encourage development of a family support model of placement prevention for this population, as opposed to a crisis intervention model.
Social work practice with disabled children
- Author:
- GRIFFITHS Elisabeth
- Publisher:
- University of East Anglia
- Publication year:
- 2002
- Pagination:
- 50p.bibliog.
- Place of publication:
- Norwich
This book aims to explore the experiences of five families who have received social work input because their child or children are disabled. It aims to establish whether they found the input a help or a hindrance, empowering or further disabling for themselves and their children. Contents: literature review; method and methodology; presentation, discussion and analysis of results; conclusions, recommendations and suggestions for future research.