Search results for ‘Subject term:"physical disabilities"’ Sort:
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A mixed blessing
- Author:
- HUBERT Jane
- Journal article citation:
- Community Care, 28.2.91, 1991, pp.18-19.
- Publisher:
- Reed Business Information
Reports on a small scale research project into the problems facing parents of severely disabled adult children living at home.
People not budgets: valuing disabled children
- Authors:
- HEATH Florence, SMITH Richard
- Publisher:
- Centre for Policy Studies
- Publication year:
- 2004
- Pagination:
- 54p.
- Place of publication:
- London
Nearly half of families with disabled children receive no support from the NHS or social services. The authors found that 48% of families with disabled children received no help from outside the family and a further 30% received less than two hours support per week. Four out of five families (80%) said health and social services were "not properly coordinated". "The level of support given to these families by social services is often extremely poor," the report said. "The system is bureaucratic, has little sense of responsibility and is fuelled by ideological theories that have little relevance to everyday life." The report recommended giving the families of disabled children more control over their own lives. It called for the £140m currently spent on commissioning social services for the disabled to be given directly to the families as a non-means-tested payment in addition to current benefits. The thinktank estimated this extra money would be worth £115 a week.
How do carers of disabled children cope?: the Ugandan perspective
- Authors:
- HARTLEY S., et al
- Journal article citation:
- Child: Care, Health and Development, 31(2), March 2005, pp.167-180.
- Publisher:
- Wiley
Community-based rehabilitation (CBR) was recommended by the World Health Organization in 1989 as the strategy for improving the quality of life of disabled people and their families, which should be built on local knowledge and practices. In Uganda, there is no documentation on how services relate to local knowledge. There is a need for increased knowledge and understanding of how family members cope with their disabled children to provide the basis for future service development. A qualitative phenomenological design was used to develop an in-depth understanding of how Ugandan families cope with their disabled children in their own communities. Data were collected from 52 families with children with disabilities from five impairment groups, through interviews and observations in three districts of Uganda, one urban, two rural. There are many children with disabilities who are included, loved and cared for by their families. A lot of time and money is spent on seeking a cure. The extended family systems are breaking down and the main burden of caring for a disabled family member generally falls on one, sometimes two, female carers. Male members act as gatekeepers, controlling the key decisions concerning the child and the associated resources. CBR should move the focus of their services away from the disabled individual towards the whole family. It is important to provide accurate information about causes and prevention of impairments, the realities of a cure, support and respite for the female carers, and opportunities for the involvement of fathers. This methodology is a practical mechanism for collecting data that have the potential to positively influence and guide the development of CBR practice in the locality. At a conceptual level the data support the philosophy of inclusion, social integration, the importance of trust and respect, and utilizing a holistic approach. These are eminently transferable to other settings.
Competing discourses: 'respite care' in the lives of disabled children and their families
- Author:
- CONYON Paul
- Publisher:
- University of East Anglia. School of Social Work and Psychosocial Studies
- Publication year:
- 2004
- Pagination:
- 56p.
- Place of publication:
- Norwich
This report examines respite care in the lives of disabled children and their families. It includes literature review, discussion of research methods and findings and views on the assessment framework.
Adding value: carers as drivers of social change
- Authors:
- PEARLMAN Vicky, HOLZHAUSEN Emily
- Publisher:
- Carers UK
- Publication year:
- 2002
- Pagination:
- 16p.
- Place of publication:
- London
Unsung heroes, hearts of gold and other cliches get in the way of the real message about carers. Carers look after family, friends or partners in help because they are ill, frail or have a disability. The care they provide is unpaid seven days a week, 365 days of the year.
It could be you: a report on the chances of becoming a carer
- Author:
- GEORGE Mike
- Publisher:
- Carers UK
- Publication year:
- 2001
- Pagination:
- 14p.
- Place of publication:
- London
Carers look after family, friends or partners in help because they are ill, frail or have a disability. The care they provide is unpaid. In any year 301,000 adults in the UK become carers. Three out of five carers have had to give up work to care. Almost all of us have been or will be a carer during our lifetime.
The situation of older people with intellectual disability in Nepal: a pilot study
- Authors:
- SHRESTHA Shraddha, WEBER Germain
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.242-254.
- Publisher:
- Taylor and Francis
In Nepal, the longevity of people with intellectual disability (ID) has increased during recent decades due to improvements in nutrition, sanitary conditions and health services. The findings were that the family is the prime resource for support for older people with ID, that the family's attitude plays a central role for the use of existing service provision, and that most parents of people with ID have made no plans for the future situation of their adult children (except that parents of adult sons with ID have often arranged or are planning a marriage for their son in order to assure his social security in adulthood and old age). Special services for older people with ID, as such, are not available in Nepal.
Keeping it in the family: caregiving in Australian-Greek families
- Authors:
- MORSE Carol A., MESSERMERI-KIANIDIS Voula
- Journal article citation:
- Social Work in Health Care, 34(3/4), 2001, pp.299-314.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Family-based caregiving refers to the daily provision of help to a co-resident family relative with the usual activities of daily living, custody and protection of a dependent relative at risk of self-injury, and support of a person with physical, developmental and/or mental disability or frailty due to ageing. Many reports from western studies refer to the caregiving burdens, stress and strains. A common view of migrant peoples is that they 'look after their own' to a greater extent than do English-speaking groups. A study was carried out with 300 Australian-Greek families in Melbourne where 150 were providing family-based caregiving, and these were age and gender matched with friends or acquaintances who had no such duties. Most care was provided by women. A wide range of disabilities and illnesses were receiving help and care in the caregiving families among care recipients aged from childhood to advanced old age. Distinct evidence of caregiving burden was found to a significant degree. Gender differences were apparent in the type of disorders managed, in the perceived severity of caregiving duties provided and in the total range of activities engaged in. The ethno-specific community organisations and extended family networks played little part in providing assistance to caregivers which challenges the myths of a close-knit migrant community looking after its own.
Informal carers and the primary care teams
- Author:
- SIMON Chantal
- Journal article citation:
- British Journal of General Practice, November 2001, pp.920-923.
- Publisher:
- Royal College of General Practitioners
The number of carers in the community is rising, and the importance of general practice in providing support for them has been highlighted. Caring for a disabled friend or relative has been shown to be harmful to the health of the caregiver and changes in social and family structure have led carers to become isolated and more reliant on the formal support services. The shift from hospital to community-based care and the blurring of social roles of responsibility puts additional pressure on the cares and community services. Argues that, general practice is in the best position to help and there are many things that can be done by primary care teams, such as providing information about available support, benefits and local services, which would be appreciated by informal carers.
The essential guide to recruiting short break carers for disabled children
- Author:
- SIMMONS Pat
- Publisher:
- Shared Care Network
- Publication year:
- 2003
- Pagination:
- 69p.
- Place of publication:
- Bristol
The book is a guide to recruiting short break carers. It covers general recruitment methods and also looks at targeting short break carers for children with particular needs.