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Disability, the family and society: listening to mothers
- Author:
- READ Janet
- Publisher:
- Open University Press
- Publication year:
- 2000
- Pagination:
- 149p.,bibliog.
- Place of publication:
- Buckingham
Explores caring for a disabled child from the mother's perspective, looking at ways in which mothers find themselves acting as mediators between their children and a world that can be hostile to their interests. Begins with an examination of a study in which mothers from diverse backgrounds detail the ways in which they attempt to represent their children to the world, and the world to their children in both formal and informal interactions. These experiences and perspectives are linked to wider research and theory on motherhood and caring, the life patterns of disabled children and their families, and the discrimination faced by disabled children and adults.
Access and achievement or social exclusion?: are the government's policies working for disabled children and their families?
- Author:
- RUSSELL Philipa
- Journal article citation:
- Children and Society, 17(3), June 2003, pp.215-225.
- Publisher:
- Wiley
The past decade has seen significant developments in policy and practice for disabled children and their families. In particular there is a new focus upon access and inclusion, with increasing awareness of the need to see disabled children and families as active partners within policy development and implementation. There is growing awareness of the implications of disability discrimination legislation across children's services and of the importance of improving arrangements for early identification and intervention to maximise disabled children's participation within mainstream services. The National Service Framework, the advent of Children's Trusts and a new Special Education Needs (SEN) Action Programme, together with the introduction of direct payments, give encouraging messages about multi-agency working and a strategic and joined up approach to childhood disability. However, many disabled children and their families continue to experience discrimination, poverty and social exclusion. The challenge for the Government is to ensure that disabled children are mainstreamed across all policy initiatives and to recognise the talents and ambitions of disabled children and their families in service design and implementation.
The paradox of discriminatory practices as a means of emancipatory strategies
- Author:
- HELMIUS Gisela
- Journal article citation:
- Community Work and Family, 4(3), December 2001, pp.273-284.
- Publisher:
- Taylor and Francis
Draws on a qualitative study in Sweden in which women from three generations were interviewed about their daily lives. The women studied were all born with a mobility impairment. Inspired by feminist-sociological thought, the article highlights the situation of these women with particular regard to work, education and family. The focus is on potentials for individual empowerment and emancipatory strategies. Argues that the impairment might be identified as a driving force that allows the transcending of constraints of traditional work and family gender roles.
Telling our own stories: reflections on family life in a disabling world
- Editors:
- MURRAY Pippa, PENMAN Jill
- Publisher:
- Parents with Attitude
- Publication year:
- 2000
- Pagination:
- 276p.,bibliog.
- Place of publication:
- Sheffield
Personal accounts of disability, from disabled people and their families, introduced from the perspective of human rights, inclusion, and a social model of disability.
Young disabled people: aspirations, choices and constraints
- Author:
- SHAH Sonali
- Publisher:
- Ashgate
- Publication year:
- 2008
- Pagination:
- 124p., bibliog.
- Place of publication:
- Aldershot
Based on research funded by the European Social Fund, this publication examines the career-related decisions and aspirations of young disabled people. A comparison is made between young disabled people in special and mainstream education in relation to the origins of their career-related decisions, and their perceptions of how they will achieve their goals. The book also covers social and personal factors that may act as barriers to young people's choices, such as disabling barriers (physical, social and attitudinal), impairment, friends, family background and relationships, education system, government policy and the expectations of others.
Children's trusts: statutory guidance on inter-agency cooperation to improve well-being of children, young people and their families
- Author:
- GREAT BRITAIN. Department for Children, Schools and Families
- Publisher:
- Great Britain. Department for Children, Schools and Families
- Publication year:
- 2008
- Pagination:
- 48p.p.
- Place of publication:
- London
This guidance on inter-agency co-operation, issued under section 10 of the Children Act 2004, reflects the experience of developing Children's Trust arrangements since the publication of Every Child Matters. The guidance supplements the Statutory Guidance on inter-agency cooperation to improve wellbeing of children: children's trusts (2005).
Brothers and sisters of children with disabilities
- Author:
- BURKE Peter
- Publisher:
- Jessica Kingsley
- Publication year:
- 2004
- Pagination:
- 159p.,bibliog.
- Place of publication:
- London
Examining the overlooked subject of non-disabled siblings in families where there is a disabled child, Brothers and Sisters of Disabled Children details the experiences of these children and explores what it means to them to have a disabled brother or sister. Through family interviews and one-to-one meetings, the author records siblings’ views on issues ranging from the everyday social restrictions on their lives, the discrimination they face at school, through to their concerns about the future. He also considers the difficulties for siblings of finding their own identity in ‘disabled’ families, competition for parental attention and the phenomenon of ‘disability by association’ – the tendency for siblings to emulate a disabled brother’s or sister’s behaviour in an attempt to gain recognition for themselves at home, school and socially.Putting this within the context of the existing framework of professional practice for sibling and family support services, the author stresses the importance and proven success of sibling support groups as models of empowerment and inclusion, and makes clear recommendations for future practice.
User-defined outcomes of community care for Asian disabled people
- Author:
- VERNON Ayesha
- Publisher:
- Policy Press,|Joseph Rowntree Foundation
- Publication year:
- 2002
- Pagination:
- 38p.,bibliog.
- Place of publication:
- Bristol
A study in the North of England collected the views of 28 Asian disabled people on what would make their lives better) and on what would make community care services better. Asian disabled people and their families lacked confidence and trust in service provision. This contributed to low take-up of services. Low take-up of services did not mean low levels of need. People reported feelings of isolation, forced dependency on family members, frustration at not being able to move about freely at home, anxiety and distress. People felt that service providers lacked cultural knowledge, and that they expected Asian disabled people to 'fit in' with existing provision. Several people felt discriminated against on the grounds of disability and race - sometimes by service providers, sometimes by attitudes within their families and communities.
Children's rights: a second chance
- Author:
- LANSDOWN Gerison
- Publisher:
- International Save the Children Alliance
- Publication year:
- 2001
- Pagination:
- 118p.bibliog.
- Place of publication:
- London
Looks at the impact that local, national and international policies and practices have had on children over the last decade. The lives of millions of children across the world have been barely touched by the United Nations Convention of the Rights of the Child. Yet, as the report demonstrates, the four key principles of the Convention - non-discrimination, acting in the best interests of the child, survival and development, and participation, remain the key to progress.