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Information that informs rather than alienates families with disabled children developing a model of good practice
- Authors:
- MITCHELL Wendy, SLOPER Patricia
- Journal article citation:
- Health and Social Care in the Community, 10(2), March 2002, pp.74-81.
- Publisher:
- Wiley
The provision of information and the importance of keeping families informed is frequently viewed as a significant factor within both the concept of empowerment and the facilitation of enabling and participatory processes for service users and their families. This article looks at how parents would like to receive this information and also discusses the empowering potential of user-friendly information. The article draws on data collected from a focus group discussions with parents caring for children with a range of disabilities or chronic illness. In particular it examines the criteria by which parents judge the quality of information and their ideas as to what constitutes good practice, especially in terms of how information is presented, its content and the way it is delivered. Using these ideas and criteria, the paper begins to develop a model of good information practice that is both three-dimensional and personally interactive.
Chemical sensitivity in the workplace
- Authors:
- DECKER James T., et al
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 1(4), 2002, pp.45-61.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The debate continues to rage in the medical community and amongst policy makers. This debate centers on a new disease mechanism commonly known as Multiple Chemical Sensitivity (MCS). Researchers have grouped the theories of etiology of MCS into four broad categories: physical, stress, misdiagnosis, and illness belief. A new name for this illness has recently been advanced as well, toxininduced loss of tolerance (TILT). Problems with chemical sensitivity are especially troubling for workers and their employers. Employees seeking relief under the Americans With Disabilities Act of 1990 (ADA) are requesting accommodations based on their reactions to chemicals. Employers are beset with claims for accommodations in the workplace, disability claims, and worker's compensation claims. Courts are trying to make sense of chemical sensitivity with respect to accommodations in the workplace. Court decisions regarding MCS issues are varied and of tentimes highly controversial. Primary social problems and mental health issues associated with chemical sensitivities are economic costs and loss of enjoyment of life by MCS sufferers. Economic costs are spread throughout the system; however, their major manifestations are lost worker production, increased demands on services, and the long-term costs associated with supporting a growing disabled subset of the population comprised of chemically injured workers. Social and mental health costs are seen in escalating cases of depression, divorces, behavioural acting out, isolation, anxiety attacks, and chronic medical problems. Social workers are particularly well suited to advocate for accommodations in the workplace and for social policy change on behalf of those suffering from chemical sensitivity. Their training in systems and ecosystems theory makes them well aware of the importance of the environment on the individual. That training includes knowledge of utilizing strengths based approach to problem solving, and clinical training in mental health, which leads to empowerment for the client. (Copies of this article are available from: Haworth Document Delivery Centre Haworth Press Inc., 10 Alice Street Binghamton, NY 13904-1580)
Transition to adulthood for young disabled people with 'complex health and support needs'
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1999
- Pagination:
- 4p.
- Place of publication:
- York
Although the term 'complex health and support needs' covers a wide range of impairments and conditions, young people with high levels of health and/or support needs experience some common difficulties in their access to services during their transition to adulthood. Outlines the findings of a review of research, consultation with six local authorities and interviews with young people themselves.
On the road to autonomy: promoting self-competence in children and youth with disabilities
- Editors:
- POWERS Laurie E., SINGER George H.S., SOWERS Jo-Ann
- Publisher:
- Paul H. Brookes
- Publication year:
- 1996
- Pagination:
- 428p.,diags.,bibliogs.
- Place of publication:
- Baltimore, MD
Includes chapters on: self-competence and disability; mastering the developmental challenges; coping strategies in children and young people; a developmental perspective on stress appraisal; self-determination for young people with serious cognitive disabilities; self-esteem and learning difficulties; the interrelationship of education and self-esteem; how chronically children cope with negative social interaction; the role of health professionals in supporting a child's self-competence; teaching self-determination; promoting self-esteem among young children with disabilities; and helping young children with behaviour problems develop self-determination through behavioural skill building.