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Participation of disabled children and young people in decision making within social services departments: A survey of current and recent activities in England
- Authors:
- FRANKLIN Anita, SLOPER Patricia
- Journal article citation:
- British Journal of Social Work, 36(5), June 2006, pp.723-741.
- Publisher:
- Oxford University Press
A survey of all social services departments in England was undertaken in order to identify and investigate current work concerning the participation of disabled children within decision making regarding their own care and in service development. Developing a culture of, and good practice in, children’s participation is integral to government policy. Results demonstrate that disabled children are being involved in a range of decision-making areas; however, participation is not yet embedded or sustained across all social services departments, and the involvement of disabled children at a higher strategic level is still rare. The participation of disabled children needs further development including more evidence on which factors can support and promote disabled children’s effective participation.
Involving children and young people with a chronic illness or physical disability in local decisions about health services development: phase one: report on national survey of health authorities and NHS trusts
- Authors:
- LIGHTFOOT Jane, SLOPER Patricia
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2001
- Pagination:
- 57p.
- Place of publication:
- York
This report describes the first phase of a research project funded by the Department of Health's Health in Partnership Initiative. The overall aim of the Initiative is to contribute to the knowledge base for lay involvement in health care decision making. This study is investigates the involvement of children and young people, in particular those who have a chronic illness or physical disability, since this is a growing group and includes heavy and long-term users of a wide range of health services. The focus of the research is on children's involvement in decision making about service development, as opposed to decisions about their own treatment, care and/or support.
Participation of disabled children in individual decisions about their lives and in public decisions about service development
- Authors:
- CAVET Judith, SLOPER Patricia
- Journal article citation:
- Children and Society, 18(4), September 2004, pp.278-290.
- Publisher:
- Wiley
A literature review was carried out to establish what evidence exists about disabled children's participation in decision-making, both regarding their own lives and about the shape of service delivery. There is evidence that disabled children hold and can express views, given the right environment. However, participation of disabled children needs further development. Measures proposed include addressing organisational systems so that they promote participation, extending advocacy services, the adoption of inclusive approaches and staff training, plus education and information for disabled children and their parents. There remain significant gaps in the research evidence available.
Having a say in health: involving young people with a chronic illness or physical disability in local health services development
- Authors:
- LIGHTFOOT Jane, SLOPER Patricia
- Journal article citation:
- Children and Society, 17(4), September 2003, pp.277-290.
- Publisher:
- Wiley
Increasing attention is being paid to involving users in local NHS service development, and to involving young people as users in their own right. However, we know little about the views and experiences of young participants, especially those with a chronic illness or physical disability, which could inform more effective approaches to their involvement. The paper reports on research investigating the views of young patients and staff who have taken part in NHS service development projects, and suggests a range of issues for consideration when involving young patients in future.