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Service integration and co-ordination: a framework of approaches for the delivery of co-ordinated care to children with disabilities and their families
- Authors:
- KING G., MEYER K.
- Journal article citation:
- Child: Care, Health and Development, 32(4), July 2006, pp.477-492.
- Publisher:
- Wiley
This article clarifies the nature of 'service integration' and 'service co-ordination' and discusses how these aspects relate to the fundamental goal of providing co-ordinated care for children with disabilities and their families. Based on a review of the service delivery literatures in the fields of health, social services and rehabilitation, a framework is presented that outlines the scope of the co-ordination-related functions and activities encompassed in three common types of approaches to the delivery of co-ordinated care. These are a system/sector-based service integration approach, an agency-based service integration approach and a client/family-based service co-ordination approach. The functions outlined in the framework include aggregate-level planning of services (designed to map out the scope and plan for service provision in a community or geographical area), administrative functions (designed to ensure wise and equitable access to resources) and client-specific service delivery functions (designed to link clients/families to needed services). The framework is a tool that can be used to support policy making and decision making with respect to the design of efforts to provide co-ordinated care. It provides information about commonly used approaches and the essential elements of these approaches, which can be used in making choices about the scope and nature of an approach towards service integration/co-ordination.
Participation of disabled children and young people in decision-making within social services departments in England
- Author:
- SOCIAL POLICY RESEARCH UNIT
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2004
- Pagination:
- 4p.
- Place of publication:
- York
Reports the findings of a national survey of social services departments in England which looked at their participation work with disabled children and young people. Information was received from 71 local authorities. The findings cover: the nature of disabled children's participation; the characteristics of children and young people participating; funding and partnership working; feedback; and outcomes. Results suggest that disabled children and young people are being involved in a wide range of decision making, but involvement is still patch and requires further development. The survey forms part of a larger study funded by the Department of Education and Skills Quality Protects Research Initiative.
Views of elderly people on living wills: interview study
- Authors:
- SCHIFF Rebekah, RAJKUMAR Chakravarthi, BULPITT Christopher
- Journal article citation:
- British Medical Journal, 17.6.00, 2000, pp.1640-1641.
- Publisher:
- British Medical Association
Living wills or advance statements record people's healthcare wishes in case they are unable to contribute to a decision concerning their health care in the future, either because of mental incapacity or because physical disability prevents communication. Elderly people are often in this position owing to illnesses such as dementia and strokes that cause dysphasia. This study aimed to determine the knowledge of elderly inpatients in the United Kingdom on living wills and their healthcare choices should they write such a will.
Direct payments: the impact on choice and control for disabled people
- Authors:
- WITCHER Sally, et al
- Publisher:
- Scotland. Scottish Executive. Central Research Unit
- Publication year:
- 2000
- Pagination:
- 6p.
- Place of publication:
- Edinburgh
This research examines the implementation of direct payment across Scotland and their impact on the choice and control which disabled people can exercise in their lives. Presents the findings.
People of color with disabilities: intersectionality as a framework for analyzing intimate partner violence in social, historical, and political contexts
- Authors:
- CRAMER Elizabeth P., PLUMMER Sara-Beth
- Journal article citation:
- Journal of Aggression Maltreatment and Trauma, 18(2), March 2009, pp.162-181.
- Publisher:
- Taylor and Francis
The conceptual framework of intersectionality is used to deconstruct the help-seeking and help-receiving behaviours of abused women of colour with disabilities. Two case vignettes illustrate the interplay between race, gender, accent, immigration status, sexual orientation, disability and socioeconomic status in help-seeking decisions. The authors note the limitations of some models of system response to people of colour with disabilities, and describe interventions that take greater account of the complex mix of social, economic, political and cultural factors that influence their decision whether to approach formal sources of help.
Participation of disabled children and young people in decision making within social services departments: A survey of current and recent activities in England
- Authors:
- FRANKLIN Anita, SLOPER Patricia
- Journal article citation:
- British Journal of Social Work, 36(5), June 2006, pp.723-741.
- Publisher:
- Oxford University Press
A survey of all social services departments in England was undertaken in order to identify and investigate current work concerning the participation of disabled children within decision making regarding their own care and in service development. Developing a culture of, and good practice in, children’s participation is integral to government policy. Results demonstrate that disabled children are being involved in a range of decision-making areas; however, participation is not yet embedded or sustained across all social services departments, and the involvement of disabled children at a higher strategic level is still rare. The participation of disabled children needs further development including more evidence on which factors can support and promote disabled children’s effective participation.
Insights from the family conference: observations in rehabilitation
- Author:
- FRONEK Patricia
- Journal article citation:
- Australian Social Work, 58(4), December 2005, pp.395-406.
- Publisher:
- Taylor and Francis
Family conferences are regularly conducted in a number of settings. However, the published literature offers limited insight into the conference environment as created by the interdisciplinary team. The level of client participation in this process remains unclear. A participatory observation study was conducted with an accidental sample in a spinal injuries rehabilitation setting. Language and behaviours exhibited by family conference members provided data for analysis. The findings indicate that individuals with a disability were participatory members in the family conference and were able to express their point of view even if it differed from the view of the professional team. However, the finding that family members were less engaged in the process suggests that they have different needs to the person with a disability and these needs might have to be met in a different way. It is important that professionals develop an awareness of their own language and behaviours and the potential impact of these factors on the individual and the family in family conference processes.
Involving children and young people with a chronic illness or physical disability in local decisions about health services development: phase one: report on national survey of health authorities and NHS trusts
- Authors:
- LIGHTFOOT Jane, SLOPER Patricia
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2001
- Pagination:
- 57p.
- Place of publication:
- York
This report describes the first phase of a research project funded by the Department of Health's Health in Partnership Initiative. The overall aim of the Initiative is to contribute to the knowledge base for lay involvement in health care decision making. This study is investigates the involvement of children and young people, in particular those who have a chronic illness or physical disability, since this is a growing group and includes heavy and long-term users of a wide range of health services. The focus of the research is on children's involvement in decision making about service development, as opposed to decisions about their own treatment, care and/or support.
Different paths: connecting services: a guide to better practice in meeting the housing needs of black and minority ethnic disabled people and D/deaf people
- Authors:
- BUTT Jabeer, DHALIWAL Sukhwant
- Publisher:
- Habinteg Housing Association
- Publication year:
- 2005
- Pagination:
- 54p.
- Place of publication:
- London
Presents a study into the housing experiences of black and minority ethnic disabled and D/deaf (disabled deaf) people. Through focus groups involving BME disabled and D/deaf service users and their carers and statutory, public and voluntary sector service providers it explores: how disabled and D/deaf people from BME communities access appropriate housing; the disadvantages and barriers participants identified as preventing them from securing suitable accommodation and services; the key issue of whether their needs are best met by responding to them as a distinct group – as opposed to perceiving them simply as members of ‘BME’ or ‘disabled’ communities; and opportunities for conferring greater choice and control to BME disabled and D/deaf people
Direct payments for young disabled people
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2003
- Pagination:
- 4p.
- Place of publication:
- York
The Carers and Disabled Children Act 2000 extended access to direct payments to 16- and 17-year-old disabled young people. A project carried out at the Norah Fry Research Centre, sought to collate the work going on in this area; to highlight the main issues facing young disabled people who would like to access direct payments; and to produce a resource with and for young disabled people to promote take-up. The extension of direct payments to 16- and 17-year-olds aims to provide opportunities for young disabled people to increase their independence and choice. Some young disabled people saw direct payments as a potentially significant means to achieving greater autonomy and control but they were also concerned about the obstacles they would confront in trying to access them.