Search results for ‘Subject term:"physical disabilities"’ Sort:
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You're on the waiting list: families waiting for respite care services: fourth interim report
- Authors:
- ROBINSON Carol, STALKER Kirsten
- Publisher:
- Norah Fry Research Centre
- Publication year:
- 1991
- Pagination:
- 37p.
- Place of publication:
- Bristol
Many families experience serious problems finding suitable services which can cater for both their child's complex health needs and their own need for significant levels of support. This paper highlights which services families were using and the difficulties of obtaining a coherent and consistent package of support. Regulatory concerns relating to the piece-meal provision of services and use of children's hospices are raised along with recommendations for improving policy and practice.
Patterns and provision in respite care and the Children Act
- Authors:
- ROBINSON Carole, STALKER Kirsten
- Journal article citation:
- British Journal of Social Work, 23(1), February 1993, pp.45-63.
- Publisher:
- Oxford University Press
Presents the findings of a three-year study into respite care services to disabled children and discusses these in the light of the Children Act 1989.
New directions: suggestions for improving take-up in short term breaks
- Authors:
- ROBINSON Carol, STALKER Kirsten
- Publisher:
- HMSO
- Publication year:
- 1992
- Pagination:
- 27p.,bibliog.
- Place of publication:
- London
Looks at the reasons why some families with disabled children do not use services offering breaks (respite care) and makes suggestions for developing attractive and accessible alternative services.
Children's experiences of disability: pointers to a social model of childhood disability
- Authors:
- CONNORS Clare, STALKER Kirsten
- Journal article citation:
- Disability and Society, 22(1), January 2007, pp.19-33.
- Publisher:
- Taylor and Francis
The social model of disability has paid little attention to disabled children, with few attempts to explore how far it provides an adequate explanatory framework for their experiences. This paper reports findings from a two-year study exploring the lived experiences of 26 disabled children aged 7-15. They experienced disability in four ways - in terms of impairment, difference, other people's behaviour towards them, and material barriers. Most young people presented themselves as similar to non-disabled children: it is suggested they may have lacked a positive language with which to discuss difference. It is further argued that Thomas's (1999) social relational model of disability can help inform understandings of children's experiences, with 'barriers to being' having particular significance.
Children's perceptions of their disabled siblings: she's different but it's normal for us
- Authors:
- STALKER Kirsten, CONNORS Clare
- Journal article citation:
- Children and Society, 18(3), June 2004, pp.218-230.
- Publisher:
- Wiley
This paper reports on a two-year study exploring children's understandings of disability. It focuses on findings from interviews conducted with 24 children, aged 6 to 19, who had disabled siblings, exploring their perceptions of impairment, disability and difference. Most were very aware of their sibling's impairment but the majority did not see that as making their siblings different. Where difference was perceived, this was sometimes attributed to their siblings' experience of disability - unequal treatment and the hostile attitudes of others. Most children saw their disabled sibling as holding various identities and their shared biographies, as members of the same family, may have taken precedence over any perceived differences.
Communicating with disabled children
- Authors:
- STALKER Kirsten, CONNORS Clare
- Journal article citation:
- Adoption and Fostering, 27(1), Spring 2003, pp.26-35.
- Publisher:
- Sage
The authors discuss the methods used in a study seeking disabled children's accounts of their everyday lives. In the study 26 disabled children were interviewed, visual aids and activities were also used. The design and effectiveness of these methods are discussed. The authors conclude that communicating with most disabled children is little different from communicating with any child.
Care and treatment?: supporting children with complex needs in healthcare settings
- Authors:
- STALKER Kirsten, et al
- Publisher:
- Pavilion,|Joseph Rowntree Foundation
- Publication year:
- 2003
- Pagination:
- 91p.
- Place of publication:
- Brighton
Significant numbers of children and young people with complex physical, medical and cognitive health needs may be spending unnecessarily long periods of time in hospital and other healthcare settings because inadequacy of community-based resources is preventing their discharge. This report details the findings of research conducted in England and Scotland to identify how many children with complex support needs are spending longer than one month in healthcare settings in Scotland and England, how and why they are in hospital, why they have not been discharged home or to appropriate alternative community-based facilities, and how well the hospital or healthcare setting is meeting their emotional, social and educational needs. It finds that many of these children could and should be discharged but are not, for a variety of reasons: primarily the lack of appropriate resources in the community and poor discharge planning processes, coupled with the inability of their families to manage their care and supervision without intensive support. Hospitals and healthcare settings in many cases are not meeting their needs and these children are being denied the protection offered by UK legislation governing children’s rights and welfare. The researchers conclude that much more should be done by health authorities and health boards, by NHS trusts, hospitals and community services, and by social services and education departments to ensure these children receive the same standards of care, treatment and protection accorded to other children, and that inappropriate admissions and such lengthy stays should be avoided at all costs.
The views and experiences of disabled children and their siblings: a positive outlook
- Authors:
- CONNORS Clare, STALKER Kirsten
- Publisher:
- Jessica Kingsley
- Publication year:
- 2003
- Pagination:
- 187p.,bibliog.
- Place of publication:
- London
This book considers the following topics: disabled children's understanding of disability; thew ways in which children negotiate the experience of disability in their daily lives; children's perceptions of their relationships with professionals and their knowledge and views of service provisions; siblings' perception of the effects on them of having a disabled brother or sister
Growing up with disability
- Editors:
- ROBINSON Carol, STALKER Kirsten
- Publisher:
- Jessica Kingsley
- Publication year:
- 1998
- Pagination:
- 215p.,bibliogs.
- Place of publication:
- London
Adopts a child centred approach to growing up with a disability. Contains papers on: theoretical perspectives on research with disabled children; an historical perspective; early intervention; the pre-school years; children's experiences of school; parents and family; leisure and friendship; quality of life of children and young people with serious medical conditions; disabled children and child protection; group advocacy in a residential setting; disabled children in permanent substitute families; young people's aspirations; and the dynamic of transition to adulthood.
Developments in short-term care: breaks and opportunities
- Editor:
- STALKER Kirsten
- Publisher:
- Jessica Kingsley
- Publication year:
- 1996
- Pagination:
- 170p.,bibliogs.
- Place of publication:
- London
Brings together research findings into short term care services for a range of user groups. Looks at: user views; costings; quality of service provision; and specific groups such as disabled children and people with dementia.