Search results for ‘Subject term:"physical disabilities"’ Sort:
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Working with parents of young children with disabilities
- Authors:
- WEBSTER Elizabeth J., WARD Louise M
- Publisher:
- Singular Publishing
- Publication year:
- 1993
- Pagination:
- 131p.,bibliog.
- Place of publication:
- San Diego, CA
Practical text focusing on the families of children with disabilities, and their initial and continuing reactions and strategies for coping.
Use of mental health and support services among families of children with disabilities: discrepant views of parents and paediatricians
- Authors:
- UREY Jon R., VIAR Vicki
- Journal article citation:
- Mental Handicap Research, 3(1), 1990, pp.81-88.
- Publisher:
- BIMH Publications
Reports on research carried out in the USA.
The educational needs of ethnic minority children who have disabilities and special needs; report of a conference... in April 1989
- Author:
- CONTACT A FAMILY
- Publisher:
- Contact a Family
- Publication year:
- 1989
- Pagination:
- 29p.
- Place of publication:
- London
Workshops : language provision for bi-lingual children; assessment of children with special needs; parental involvement in the statementing of children; and statutory support for parents with special needs children.
Parents kept In-Touch
- Author:
- WORTHINGTON A.
- Journal article citation:
- Community Care, 12.2.87, 1987, p.11.
- Publisher:
- Reed Business Information
A self help group for parents of handicapped children.
Coping with a life-threatening illness : an experiment in parents' groups
- Author:
- BYWATER E. May
- Journal article citation:
- British Journal of Social Work, 14(1), 1984, pp.117-127.
- Publisher:
- Oxford University Press
Four separate series of parents' groups were held between 1977 and 1981 in order to help certain parents of children who suffer from cystic fibrosis. The group experiences were found helpful by those parents who did not have overt problems, but families who had obvious problems, for example marital, financial or psychiatric were apparently not helped by the experience, nor were the parents of newly diagnosed children.
Tracing the causes of stress in families with handicapped children
- Authors:
- BRADSHAW Jonathan, LAWTON Dorothy
- Journal article citation:
- British Journal of Social Work, 8(2), 1978, pp.181-192.
- Publisher:
- Oxford University Press
Variations in the level of stress in mothers with very severely disabled children do not appear to be associated with the characteristics of the disabled child or the social and economic circumstances of the family.
"They get this training but they don't really know how you feel": transcripts of interviews with the parents of handicapped children
- Author:
- FOX A. Mervyn
- Publisher:
- National Fund for Research into Crippling Diseases
- Publication year:
- 1974
- Pagination:
- 66p.
- Place of publication:
- Horsham
Is parental coping associated with the level of function in children with physical disabilities?
- Authors:
- CAVALLO S., et al
- Journal article citation:
- Child: Care, Health and Development, 35(1), January 2009, pp.33-40.
- Publisher:
- Wiley
The objectives of this study are: (1) to describe parental coping in a cohort of children with physical disabilities (PDs); (2) to determine whether the child's level of function is associated with parental coping; and (3) to explore whether socio-demographic factors such as child's age, maternal education and family structure are associated with parental coping. Parents of 150 children with PDs were interviewed after being referred to community rehabilitation services in a Canadian hospital. They answered the following: the Coping Health Inventory for Parents, the Functional Independence Measure for children (WeeFIM) and a study questionnaire that addressed socio-demographic characteristics. Multiple linear regression models were used to determine the association between level of function and other factors and parental coping. Parental coping scores, measured by the Coping Health Inventory for Parents, indicated that the parents in the study found seeking out social support from community resources useful. Parents of children with moderate to severe dysfunction in mobility (WeeFIM) found coping behaviours related to communicating with the healthcare professionals regarding their child's condition useful. Greater perceived usefulness of maintaining social support through community resources was associated with lower maternal education, working parents and two-parent families. These findings underscore the importance of helping parents of children with PDs maintain social support. It is important to help parents understand their child's medical situation, especially those whose children have more severe mobility dysfunction.
Using the Internet? The experiences of parents of disabled children
- Authors:
- BLACKBURN C., READ J.
- Journal article citation:
- Child: Care, Health and Development, 31(5), September 2005, pp.507-515.
- Publisher:
- Wiley
This paper looks at parents of disabled children's experience of using the Internet. The study draws on a subset of data from the 'Carers Online' project, which took place between 2001 and 2003 in the UK. A cross-sectional survey of 3014 adult carers, of which 788 were carers of disabled children aged 0-17, was used. Data were collected using a postal questionnaire. A high proportion (75%) had previously used the Internet. Of these, 63% were frequent users and 91% were using it at home. Popular uses were emailing, obtaining information about caring, ordering equipment and shopping online. Despite positive benefits, users experienced problems relating to technical issues and equipment and system design. Lack of time owing to caring and other circumstances was an issue for over half of all users. Those who did not use the Internet were more likely to be living in rented accommodation, be unemployed and not have a PC at home. Reasons for not using the Internet included lack of access to equipment, cost and lack of skill. The authors conclude that for some parents the Internet is a viable and flexible medium for accessing useful information and services. However, caution about the extent to which it becomes the primary means for delivering information is needed. The 'digital divide' between users and non-users makes it crucial that issues of cost, lack of equipment and skill be addressed. Information needs to be made available in other forms to ensure that those who cannot or do not wish to use the Internet are not socially excluded.
The Children's National Service Framework
- Author:
- BOWEN Keith
- Journal article citation:
- Llais, 75, Winter 2005, pp.3-5.
- Publisher:
- Learning Disability Wales
Reflects on the consultation process to involve parents in the development of the Children's National Service Framework in Wales.