Search results for ‘Subject term:"physical disabilities"’ Sort:
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Affluence belies needs
- Author:
- SALE Anabel Unity
- Journal article citation:
- Community Care, 17.10.02, 2002, pp.30-31.
- Publisher:
- Reed Business Information
Looks the range of problems faced by families in need in the affluent area Gerrards Cross, Buckinghamshire and the services delivered.
Brothers and sisters: supporting the siblings of children with disabilities
- Authors:
- BURKE Peter, MONTGOMERY Sue
- Journal article citation:
- Practice: Social Work in Action, 13(1), 2001, pp.27-38.
- Publisher:
- Taylor and Francis
Examines the support needs of siblings of children with disabilities. Siblings often help and share some caring responsibilities at home; they need the opportunity to share their feelings with other in a different environment. The authors find that siblings benefit from attending a support group where opportunities to share their feelings and to take part in various activities are available to them, opportunities which otherwise might not be provided at home or at school. Also notes that the support function of the sibling group is highly valued by the siblings themselves. Recommends that practitioners should recognise that meeting the needs of siblings is an essential part of their responsibilities in providing support and assistance for the whole family.
Supporting families with two or more disabled children
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1999
- Pagination:
- 4p.
- Place of publication:
- York
Around 7,500 families in the UK have two or more children with severe impairments, representing well over 15,000 children. The partiicular experiences, needs and circumstances of these families have generally been overworked by research and social services. A detailed qualitative study involving 24 families explored their ways of managing from day-to-day and identified the tupes of service support that were most helpful to them. Summarise the research conducted by the researchers of the University of York.
Whose needs are we meeting?
- Author:
- WELCH Malcolm
- Journal article citation:
- Professional Social Work, September 1998, p.10.
- Publisher:
- British Association of Social Workers
Many professionals, including social workers, all too easily focus on the needs of the parents of disabled children rather than the children themselves. The author proposes a new strategy which focuses on the child's perspective.
Ordinary children with additional needs: some issues to consider when assessing the needs of children who have disabilities and their families
- Author:
- WELCH B.M
- Publisher:
- B.M. Welch
- Publication year:
- 1998
- Pagination:
- 44p.
- Place of publication:
- Preston
Designed to suggest factors that may affect the daily life and development of a disabled child which need to be considered as part of any assessment of his or her needs.
Habilitation provision for children and young people with vision impairment in the United Kingdom: a lack of clarity leading to inconsistencies
- Author:
- HOGG Kat
- Journal article citation:
- British Journal of Visual Impairment, 35(1), 2017, pp.44-54.
- Publisher:
- Sage
The key to empowering and supporting children and young people (CYP) with vision impairment (VI) to achieve their potential lies in the delivery of habilitation training. Evidence has revealed that provision of habilitation services across the United Kingdom was inconsistent, with CYP with VI not receiving services in some areas. This research explored the accessibility and quality of habilitation provision for CYP with VI via two studies: (1) 12 qualitative case studies of habilitation practice and (2) surveys of habilitation training experiences, with CYP with VI (n = 43) and with parents of CYP with VI (n = 68). Five themes were identified highlighting inconsistencies and variability in the delivery of habilitation training in recent years, a lack of focus on independent living skills training, on social inclusion and emotional well-being, a lack of support for parents and a lack of clarity with regard to the definition of habilitation, and who is responsible for providing training. (Publisher abstract)
Assessment of family needs in children with physical disabilities: development of a family needs inventory
- Authors:
- ALSEM M.W., et al
- Journal article citation:
- Child: Care, Health and Development, 40(4), 2014, pp.498-506.
- Publisher:
- Wiley
Background: Valid tools to assess family needs for children with physical disabilities are needed to help tune paediatric rehabilitation care processes to individual needs of these families. To create such a family needs inventory, needs of families of children with a physical disability (age 0–18 years) were identified. We examined differences in the number and type of needs listed by families when asked for by means of an interview compared with using an inventory. Methods:Forty-nine families of children with a wide variety of physical disabilities (mean age 7.7 years; SD 4.6) participated in semi-structured interviews, focusing on family needs. They also checked an inventory of 99 items (based on a previously conducted literature review), regarding their family needs. In addition, individual interviews with healthcare professionals, and panel meetings with healthcare professionals and parents were held to further identify relevant family needs for the inventory. Results:The individual parent and healthcare professional interviews raised 41 needs that were not included in the original inventory of 99 items. Moreover, the panel meetings raised a further 49 needs. After restructuring and reformulating several items, a 187-item Family Needs Inventory – Paediatric Rehabilitation (FNI-PR) was created. The parent interviews revealed significantly less family needs (mean number of needs = 10.8; SD = 6.0) compared with using the inventory (mean number of needs = 31.7; SD = 19.7) (P < 0.0001). Most expressed family needs were related to both general and specific information concerning the child's development and treatment, aids and information about legislation and to rules relating to compensation of costs. Conclusion:Based on responses of parents and healthcare professionals the FNI-PR has been developed, a comprehensive inventory for family needs that can be used in paediatric rehabilitation. An inventory checked by parents resulted in more family needs than a single open-ended question. The inventory may facilitate the implementation of family-centred care. (Publisher abstract)
Hope for help
- Author:
- TAYLOR Amy
- Journal article citation:
- Community Care, 8.06.06, 2006, pp.43-44.
- Publisher:
- Reed Business Information
The cross-cutting policy review on disabled children announced by the government has been welcomed as an opportunity to highlight gaps in service provision and produce resources to reduce the level of unmet need. This article looks at the support disabled children and their families need and why they are often left without it.
Making a difference: how parent groups can use the children's NSF to influence local services
- Author:
- BLACK Jemma
- Publisher:
- Contact a Family
- Publication year:
- 2005
- Pagination:
- 48p.
The Children's NSF, launched in the Autumn of 2004, is a ten-year Government plan to improve health and social care for children. It includes a specific standard on the needs of disabled children and their families, which calls for joined-up services, proper information and the involvement of children and their families in the shaping of services. This is a guide for parent support groups. It explains the changes currently taking place in children's services, and provides practical information on how to influence change locally.
All about my brother
- Authors:
- NAYLOR Angie, PRESCOTT Phil
- Journal article citation:
- Community Care, 2.9.04, 2004, pp.34-35.
- Publisher:
- Reed Business Information
Discusses a research project investigating the needs of the siblings of disabled children. In partnership with Barnardo's in north west England, the need for support groups for siblings of disabled children was identified and the outcomes of a sibling support group were explored. The research indicates a need for further service provision and the results have implications for practice in addressing specific preventive interventions.