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Receipt of professional care coordination among families raising children with special health care needs: a multilevel analysis of state policy needs
- Authors:
- PARISH Susan L., et al
- Journal article citation:
- Children and Youth Services Review, 31(1), January 2009, pp.63-70.
- Publisher:
- Elsevier
Data from the 2002 National Survey of Children with Special Health Care Needs in the US were analyzed to understand the state-level policies and individual characteristics associated with receipt of professional care coordination by families raising children with special health care needs. Families living in states with more generous State Children's Health Insurance Programs (SCHIP) were more likely to receive professional care coordination. Numerous individual characteristics are associated with receipt of support services. States could likely improve access to support services for these families by expanding SCHIP and implementing targeted measures to help uninsured children, children whose parents do not speak English, those living below 300% of the federal poverty level, and families raising children with the most severe impairments.
Is parental coping associated with the level of function in children with physical disabilities?
- Authors:
- CAVALLO S., et al
- Journal article citation:
- Child: Care, Health and Development, 35(1), January 2009, pp.33-40.
- Publisher:
- Wiley
The objectives of this study are: (1) to describe parental coping in a cohort of children with physical disabilities (PDs); (2) to determine whether the child's level of function is associated with parental coping; and (3) to explore whether socio-demographic factors such as child's age, maternal education and family structure are associated with parental coping. Parents of 150 children with PDs were interviewed after being referred to community rehabilitation services in a Canadian hospital. They answered the following: the Coping Health Inventory for Parents, the Functional Independence Measure for children (WeeFIM) and a study questionnaire that addressed socio-demographic characteristics. Multiple linear regression models were used to determine the association between level of function and other factors and parental coping. Parental coping scores, measured by the Coping Health Inventory for Parents, indicated that the parents in the study found seeking out social support from community resources useful. Parents of children with moderate to severe dysfunction in mobility (WeeFIM) found coping behaviours related to communicating with the healthcare professionals regarding their child's condition useful. Greater perceived usefulness of maintaining social support through community resources was associated with lower maternal education, working parents and two-parent families. These findings underscore the importance of helping parents of children with PDs maintain social support. It is important to help parents understand their child's medical situation, especially those whose children have more severe mobility dysfunction.
Hands on dyspraxia: supporting children and young people with sensory and motor learning challenges
- Author:
- CHRISTMAS Jill
- Publisher:
- Speechmark
- Publication year:
- 2009
- Pagination:
- 155p., bibliog.
- Place of publication:
- Milton Keynes
There are two main objectives of this handbook: to provide a simple clear understanding of some of the underlying challenges that children with a dyspraxia profile experience, and to provide easily accessible advice and strategies for support for parents, teachers and allied professionals working with these children. The conditions of dyspraxia and developmental co-ordination disorder are differentiated here as in some children they can be observed as separate conditions; dyspraxia being more sensory-based. The author explains the terminology used in dyspraxia: proprioception, bilateral integration, vestibular, postural, cross lateral and tactile defensiveness. She includes an outline of the impact these issues can have in the classroom and the home. Chapters include; an overview of dyspraxia; sensory integration; eye and hand skills; visual perception; working both sides of the body together; primary or baby reflexes; daily living (self-care) skills; exercises, activity and therapy. Each section of the book is laid out under three main headings: What? definitions and meaning; So What? issues and challenges for the child; Now What?; practical strategies and support.
Pilots aim high for short break success
- Author:
- PARSONS Emma
- Journal article citation:
- Community Care, 26.3.09, 2009, pp.22-23.
- Publisher:
- Reed Business Information
Describes how Derbyshire Council and Gloucestershire Council used government funding to improve their short breaks services for disabled children and their families.
A contextual analysis of caregivers of children with disabilities
- Author:
- WASHINGTON Leon
- Journal article citation:
- Journal of Human Behavior in the Social Environment, 19(5), July 2009, pp.554-571.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Caring for children with disabilities takes an excessive amount of time and energy and places the carers under extreme stress, and often results in the family’s financial resources, personal well-being, self identity, and social networks being negatively affected, which in many cases, places the child at risk for maltreatment. This study explored the issues a caregiver faces when caring for his or her child, specifically the contextual factors that might affect a caregiver’s adaptation process that could possibly lead to maltreatment. In this contextual analysis, seven caregivers of children with moderate-to-severe disabilities completed a questionnaire, were interviewed individually, and assisted the researcher in constructing an ‘ecomap’ of their current living environment. Discussing subjects such as support from family and friends, stress, and spirituality, content from the interviews was analysed and several themes developed from the data, notably relationships between the carers and others within the family and greater community, leading to social isolation. Implications for clinical practice and future research ideas are discussed.
Family quality of life: a framework for policy and social service provisions to support families of children with disabilities
- Authors:
- WANG Mian, BROWN Roy
- Journal article citation:
- Journal of Family Social Work, 12(2), April 2009, pp.144-167.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This article provides an overview of conceptualisation, measurement and application of family quality of life (FQoL). The authors delineate how this concept has been increasingly recognised by policy makers, researchers and practitioners in the context of family supports for families of children with intellectual and developmental disabilities. Policy, research and practice implications for the field of social work are discussed. The authors recommend that social workers and allied professionals should consider using a FQoL survey or scale to gain information about a family’s overall satisfaction with their family life across domains and should look for strengths and weaknesses in family domains among family members. In addition they should be aware that some families record satisfaction when they still need support. They should also consider likely future domain needs for the family and should look for ways to support the family, not just the child with a disability. They should recognise that there are large differences in satisfaction across FQoL domains. Finally, social workers should advocate in alliance with families for policy change toward the enhancement of FQoL for families of children with disabilities.
Disabled children's access to childcare (DCATCH) pilot activity: information for local authorities
- Author:
- GREAT BRITAIN. Department for Children, Schools and Families
- Publisher:
- Great Britain. Department for Children, Schools and Families
- Publication year:
- 2009
- Pagination:
- 35p.
- Place of publication:
- London
This report provides early information about DCATCH pilot activity. DCATCH is investigating ways of achieving better access to childcare for disabled children and young people in 10 pilot areas of England. It was made possible by funding of £35 million from the Aiming High for Disabled Children (AHDC) program. Work began in September 2008 and is likely to run to 2011. Different activities are in place in the different pilot areas, but all aim to identify and address gaps in local provision in partnership with families and to explore ways to increase the quality and range of childcare available. Improvement of data collection is important and DCATCH is piloting the Benchmarking and Planning tool to establish baseline measure for quantitative and qualitative data relating to childcare arrangements for the families of disabled children and to track service improvements over time. Other DCATCH activities include consulting with families to identify gaps in childcare services and to establish local priority actions, improving information provided to families and supporting families to make choices. DCATCH is also investigating affordability and cost of childcare, workforce development of childcare providers, and increasing capacity, inclusion and improving quality of childcare.
Disabled children and health: campaign briefing from the Every Disabled Child Matters campaign
- Author:
- FRANKLIN Louise
- Publisher:
- Every Disabled Child Matters
- Publication year:
- 2009
- Pagination:
- 28p.
- Place of publication:
- London
The past two years have seen a new focus in the government's approach to children's health - the NHS Operating Frameworks for 2008-2009 and 2009-2010 state that children should be one of the four national priorities for the NHS. Disabled children use NHS services significantly more than other children, yet they and their families consistently report poor experiences of both universal and specialist health services. This briefing paper sets out the case for further action to ensure the health needs of disabled children are appropriately met. It includes a number of recommendations for action at local and national level.
Short breaks tracking: interim report April 2009
- Author:
- EVERY DISABLED CHILD MATTERS
- Publisher:
- Every Disabled Child Matters
- Publication year:
- 2009
- Pagination:
- 20p.
- Place of publication:
- London
An interim report on a research project evaluating the impact of the Aiming High for Disabled Children short breaks programme on the lives of disabled children and their families. It covers: aims of the project; state of short breaks services in 2008; short breaks tracking 2008-9; information and transparency; assessment; participation and feedback. Findings indicate that evidence of good practice is emerging but there is still a long way to go before a consistent, sustainable service is available for all disabled children.
How is taking care of caregivers of children with disabilities related to academic achievement?
- Authors:
- BARNARD-BRAK Lucy, THOMSON David
- Journal article citation:
- Child and Youth Care Forum, 38(2), April 2009, pp.91-102.
- Publisher:
- Springer
Respite care services have been linked to variety of positive outcomes for caregivers and families alike. The purpose of the current study was to examine the association of receiving respite care with academic achievement for children with disabilities across time. The study employed a nationally representative sample of children to examine this relationship using structural models. Results indicate a positive association between receiving respite care services and academic achievement across time for children with disabilities. In an era of high-stakes achievement testing, these results link respite care services to those academic achievement outcomes while complementing previous research.