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Better rewards: the cost and effectiveness of employing salaried support carers to reduce waiting lists for short-term care: research report
- Authors:
- HESLOP Pauline, BYFORD Sarah, WEATHERLY Helen
- Publisher:
- Shared Care Network,|Norah Fry Research Centre
- Publication year:
- 2002
- Pagination:
- 112p., bibliog.
- Place of publication:
- Bristol
The breaks described take place, not in institutions, but in the homes of carefully selected carers/families, in the child's own home or community setting.
A break free of caring?
- Author:
- -
- Journal article citation:
- Community Care, 1.8.02, 2002, pp.46-47.
- Publisher:
- Reed Business Information
Discusses the case of a disabled man whose mother needs respite, but can't get it.
Research amongst disabled people and carers
- Author:
- WINGED FELLOWSHIP TRUST
- Publisher:
- Winged Fellowship Trust
- Publication year:
- 1993
- Pagination:
- 16p.
- Place of publication:
- London
Looks at the effects of care in the community on disabled people and their carers, focusing on funding for respite breaks, and the effects of funding refusal or delay.
Children and young persons, England: the breaks for carers of disabled children regulations 2011: statutory instrument 2011 no. 707
- Author:
- GREAT BRITAIN. Acts, Bills
- Publisher:
- Stationery Office
- Publication year:
- 2011
- Pagination:
- 4p.
- Place of publication:
- London
These regulations cover the duty of local authorities to make provisions for short break care for carers of disabled children and the types of services which must be provided.
Support for family carers of children and young people with developmental disabilities and challenging behaviour
- Authors:
- McGILL P., PAPACHRISTOFOROU E., COOPER V.
- Journal article citation:
- Child: Care, Health and Development, 32(2), March 2006, pp.159-163.
- Publisher:
- Wiley
This study gathered information about perceptions of family carers of children and young people with developmental disabilities and challenging behaviour of the help, support and treatment received from services and professionals. A total of 66 family carers completed postal questionnaires on the nature of, and their satisfaction with, services, professional help and advice received in respect of their family member's challenging behaviour. Most carers were dissatisfied with support and services received. Almost half reported receiving no professional input or none that was helpful. Over two-thirds reported receiving respite care but, in a third of these, the child had been excluded because of challenging behaviour. Families of children with challenging behaviour often do not receive services and supports that they find helpful. Treatments provided are not always evidence based. The 'rationing' of services creates a danger of inequality of access. We need a more proactive approach to identifying and meeting the need for family support.
The selfish pig's guide to caring
- Author:
- MARRIOTT Hugh
- Publisher:
- Polperro Heritage Press
- Publication year:
- 2003
- Pagination:
- 351p.
- Place of publication:
- Clifton-upon-Teme
This book is for those who have come reluctantly to caring for someone with a long-term disability and who secretly feel bad about our unwillingness.In an entertaining manner the author, himself a carer of his partner who has Huntingdon's disease, tackles the difficult matters such as (in the titles of some of his chapters) "What if you didn't care?", "Pushing them down the stairs", "Are you the one who needs looking after?", "Officialdom and chaos theory" and "Tips which the experts don't tell you". The suggestions for managing your life with your "piglet" ("person I give love and endless therapy to reduce frustrations and despair") Making a decision not to want what you can't have and "going at piglet pace" are just two of many sound guidelines. It addresses issues that carers can hardly bear to admit to themselves.
Carer break or carer-blind? Policies for informal carers in the UK
- Author:
- PICKARD Linda
- Journal article citation:
- Social Policy and Administration, 35(4), September 2001, pp.441-458.
- Publisher:
- Wiley
This article examines three policy statements on informal carers published in the UK in 1999: the National Strategy for Carers, the report of the Royal Commission on Long Term Care and the note of dissent by two members of the Royal Commission. These three documents contain two rather different approaches to policy for carers. On the one hand, the National Strategy and note of dissent emphasise respite care or short-term breaks for carers, and are concerned with sustaining the well-being of carers as well as ensuring the continuation of caring itself. The Royal Commission, on the other hand, emphasises support for the older or disabled person who is being cared for, as a means of supporting the carer, and advocates 'carer-blind' services. It is argued that this policy contains within it the potential to substitute for or replace the carer and that this represents a radical new departure for social policy for carers in the UK. The advantages and disadvantages of the two policy approaches are explored. It is argued that policies for carers should include both services specifically for carers, like breaks from caring, and services provided for the cared-for person, like domestic and personal care services. Wider issues about the proper boundary between family and state care are explored.
A family affair
- Author:
- OLLERHEAD Diana
- Journal article citation:
- Community Care, 11.1.01, 2001, p.27.
- Publisher:
- Reed Business Information
This article explains how a referral for respite care gave social workers a chance to assess and help the whole family.
A place for support: new policies for informal carers in long-term programmes
- Author:
- SCHUNK Michaela
- Journal article citation:
- Benefits, 28, April 2000, pp.22-25.
- Publisher:
- Policy Press
Reviews policy trends for informal carers which have been implemented in various countries between 1996 - 1998. The article focuses on respite care and direct payments for carers of older ill and disabled adults.
Someone to turn to
- Authors:
- ROBINSON Carol, et al
- Journal article citation:
- Community Care, 2.5.91, 1991, pp.24-25.
- Publisher:
- Reed Business Information
Describes the pattern of respite care schemes in the U.K. and highlights the resource implications for users and respite carers.