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Behaviour style and interaction between seven children with multiple disabilities and their caregivers
- Authors:
- WILDER J., GRANLUND M.
- Journal article citation:
- Child: Care, Health and Development, 29(6), November 2003, pp.559-567.
- Publisher:
- Wiley
Inductively explored caregivers’ perceptions of interaction within 7 caregiver–child pairs, following studies showing that existing interaction patterns of children with multiple disabilities should be taken into consideration when planning communication interventions. For disabled children it is especially important that the interaction partner is sensitive and well aware of the importance of qualitatively successful interaction. It was found that the behaviour style of 30 children with multiple disabilities was more related to the caregiver-perceived interaction than the communicative skills and functional abilities of the children. How do caregivers perceive the interaction, and the children's behaviour style as related to interaction with the caregivers? Children were selected individually depending on caregivers' responses about their self-regulation and reactivity in the Carolina Record of Individual Behaviour questionnaire. Caregivers were interviewed about interaction strategies, how they perceived the children's and their own roles, their opinion of what an interaction constituted, and aims and aspirations. Categorisations reflect the system of themes permeating how caregivers perceived interaction in the pair: sharing experience, successful interaction, child's and caregiver's roles, interaction methods, obstacles and facilitators, and aims and aspirations. Caregivers perceived their role as sensitive and leading. Caregivers led interaction by using their knowledge about the children's usual way of interacting, their behaviour styles, functional abilities, and current mood and situation as well as the whole context. They monitored the interaction such that, throughout a sequence, the caregivers always tried to optimise the interaction between the parties. The behaviour style was a background factor that the caregivers had knowledge of and scanned in their everyday turn taking. Although there were differences in children's behaviour styles, caregivers discussed the same themes in interviews. Behaviour style became a facilitator for the whole interaction, forced it in certain directions and made it more complete with turn taking of different kinds from both parties. Findings show that it is imperative to see caregivers as experts on their children and make them assertive in relation to professionals. Furthermore, as a successful interaction can boost children's development, it is essential to direct interventions to the everyday interaction in caregiver–child pairs.
Inspection of services for people with a physical or sensory impairment in Torfaen borough council, February 2001
- Author:
- WALES. Social Services Inspectorate for Wales
- Publisher:
- WALES. Social Services Inspectorate for Wales
- Publication year:
- 2002
- Pagination:
- 78p.
- Place of publication:
- Cardiff
My mum, my dad, my daughter and the NHS
- Author:
- ALLAN Isobel
- Journal article citation:
- Health Service Journal, 14.6.01, 2001, pp.26-27.
- Publisher:
- Emap Healthcare
Caring for her mother, father and severely disabled daughter has left the author in no doubt about what she requires from the NHS.
Prevalence, disability and need in adults with severe learning disability
- Authors:
- MCGROTHER Cath, et al
- Journal article citation:
- Tizard Learning Disability Review, 6(3), July 2001, pp.4-13.
- Publisher:
- Emerald
Evidence from a variety of sources suggests that there has been an increase of around 1% per annum in the prevalence of learning disability in adults over the last 35 years, due mainly to increase in survival. Looks at the Leicestershire Learning Disability register (established in 1987) which aimed to provide epidemiological information by means of interviews with professionals, carers and adults with a learning disability, and its implications for service provision. Concludes that resource allocation for this client group needs to be reviewed in the light of substantial and recognised increases in prevalence which are continuing to occur, and the need for long-term support.
The CREDO project
- Author:
- JAY Nadine
- Journal article citation:
- Focus, 32, April 2001, pp.15-21.
- Publisher:
- RNIB
Reports on the CREDO Project. A 2-year project aimed at supporting young people between the ages of 13 and 19 who are perceived as having profound and complex impairments. The National lottery Charities Board have funded Circles Network to run two projects, one in England and the other in Northern Ireland. Both projects focus particularly on the move form childhood, which is often a stressful time for young people and their parents.
Short breaks for families caring for a disabled child with complex health needs
- Authors:
- ROBINSON Carol, et al
- Journal article citation:
- Child and Family Social Work, 6(1), February 2001, pp.67-75.
- Publisher:
- Wiley
Analyses data from two research studies concerned with disabled children who have complex health needs in relation to families' experiences of assessing short breaks (respite) services. This article highlights which services families were using and the difficulties of obtaining a coherent and consistent package of support. Regulatory concerns relating to the piece-meal provision of services and use of children's hospices are raised along with recommendations for improving policy and practice.