Search results for ‘Subject term:"physical disabilities"’ Sort:
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Community care for severely disabled people on low incomes
- Author:
- PHILLIPS V.L.
- Journal article citation:
- British Medical Journal, 28.10.95, 1995, pp.1121-1123.
- Publisher:
- British Medical Association
Reports on a study which examined the volume and distribution of formal and informal care received by severely disabled adults living at home in the community on low incomes.
The carer's tale
- Author:
- OSWIN Maureen
- Journal article citation:
- Community Care, 16.7.92, 1992, pp.16-17.
- Publisher:
- Reed Business Information
Describes the personal experience of a carer who found that there were few services that could meet her needs in looking after her disabled sister.
Self-help in relation to informal and formal care
- Authors:
- PENNING M.J., CHAPPELL N.L.
- Journal article citation:
- Ageing and Society, 10(1), March 1990, pp.41-59.
- Publisher:
- Cambridge University Press
Reports on a survey showing that poor health in the form of functional disability and the availability of support from a spouse are the strongest correlates of informal care.
"The people shall shout with a great shout"
- Author:
- -
- Journal article citation:
- Community Living, 3(1), July 1989, pp.viii-ix.
- Publisher:
- Hexagon Publishing
Canadian support networks, known as Joshua Committees, lobby for services on behalf of handicapped individuals.
The selfish pig's guide to caring
- Author:
- MARRIOTT Hugh
- Publisher:
- Polperro Heritage Press
- Publication year:
- 2003
- Pagination:
- 351p.
- Place of publication:
- Clifton-upon-Teme
This book is for those who have come reluctantly to caring for someone with a long-term disability and who secretly feel bad about our unwillingness.In an entertaining manner the author, himself a carer of his partner who has Huntingdon's disease, tackles the difficult matters such as (in the titles of some of his chapters) "What if you didn't care?", "Pushing them down the stairs", "Are you the one who needs looking after?", "Officialdom and chaos theory" and "Tips which the experts don't tell you". The suggestions for managing your life with your "piglet" ("person I give love and endless therapy to reduce frustrations and despair") Making a decision not to want what you can't have and "going at piglet pace" are just two of many sound guidelines. It addresses issues that carers can hardly bear to admit to themselves.
Continuation of caregiving among partners who give total care to spouses with multiple sclerosis
- Authors:
- BOEIJE Hennie R., DUIJNSTEE Mia S.H., GRYPDONCK Maria H.F.
- Journal article citation:
- Health and Social Care in the Community, 11(3), May 2003, pp.242-252.
- Publisher:
- Wiley
Addresses the total care phase in which spouses give direct and ongoing personal care to their partners with multiple sclerosis (MS). The dyadic nature of caregiving is stressed by examining the roles which both spouses play in establishing a commitment that results in the continuation of caregiving. For this purpose, 17 couples facing MS were selected in the Netherlands and Belgium. Ten females and 7 males were disabled, all living with partners who provided a full range of care. Both partners were interviewed separately about their motivation to give care, dependency on help, the continuation of caregiving and their relationship. The analysis consisted of fragmenting and connecting the data and involved close reading and constant comparison. The findings support previous studies: continuation of caregiving is the result of an interchange between the partners. The commitment established can be expressed in terms of inevitability, shared misfortune, reciprocity and the desire to prevent admission to a nursing home. Three aspects appear to contribute to the creation of commitment and the ensuing continuation of caregiving: marital loyalty, the arbitrariness of the disease, and its serious nature. For community care it is important to consider the negotiations between partners and the impact of caregiving on their relationship.
Informal carers: the role of general practitioners and district nurses
- Authors:
- SIMON Chantal, KENDRICK Tony
- Journal article citation:
- British Journal of General Practice, 51(469), August 2001, pp.655-657.
- Publisher:
- Royal College of General Practitioners
Six million informal carers provide support for aged and disabled people in the United Kingdom. Government policies suggest that primary care teams are the main support for carers. This postal survey of 300 general practitioners (GPs) and 272 district nurses (DNs) aimed to determine current practice and views on their role in supporting informal carers. Found that in practice, GPs and DNs lack time, resources, and training to provide support, and see themselves in a reactive role only.
A mixed blessing
- Author:
- HUBERT Jane
- Journal article citation:
- Community Care, 28.2.91, 1991, pp.18-19.
- Publisher:
- Reed Business Information
Reports on a small scale research project into the problems facing parents of severely disabled adult children living at home.
Sitting tight - taking the strain for carers
- Author:
- BARRY N.
- Journal article citation:
- Social Work Today, 31.3.88, 1988, pp.16-17.
- Publisher:
- British Association of Social Workers
Edinburgh's Sitting Service benefits carers, dependents and volunteers alike.
The health of caregivers for children with disabilities: caregiver perspectives
- Authors:
- MURPHY N. A., et al
- Journal article citation:
- Child: Care, Health and Development, 33(2), March 2007, pp.180-187.
- Publisher:
- Wiley
There are an estimated 5.9 million children with severe disabilities in the USA, and most of them are cared for at home by their parents and families. Indirect evidence suggests that poor caregiver health may contribute to recurrent hospitalizations and out-of-home placements for children with chronic conditions and disabilities. Greater knowledge of caregiver health-related needs would allow for the improvement of existing services and the development of new strategies to sustain caregivers in their vital roles. This study explores caregiver perspectives of the health implications of long-term informal caregiving for children with disabilities. Forty parents/caregivers of children with disabilities residing in urban, suburban and rural regions of Utah completed questionnaires and participated in focus groups that explored their feelings regarding their current physical and emotional health and the factors that they viewed as either impairing or promoting their health. The sessions were audiotaped and transcribed. Summary statistics were generated for the questionnaire responses. Focus group content was analysed according to emerging themes and patterns in clusters of information. The caregiving experience was captured by five themes: (i) stress of caregiving; (ii) negative impact on caregiver health; (iii) sharing the burden; (iv) worry about the future; and (v) caregiver coping strategies. Forty-one per cent of the caregivers reported that their health had worsened over the past year, and attributed these changes to a lack of time, a lack of control and decreased psychosocial energy. Caregivers of children with disabilities describe negative physical, emotional and functional health consequences of long-term, informal caregiving. They have important insights regarding those aspects of caregiving that have positive and negative influences on their health. Interventions that address these issues may have the potential to positively impact caregiver health.