Search results for ‘Subject term:"physical disabilities"’ Sort:
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On disabling the normal : the implications of physical disability for other people
- Author:
- HILBOURNE John
- Journal article citation:
- British Journal of Social Work, 3(4), 1973, pp.497-507.
- Publisher:
- Oxford University Press
-
Better rewards: the cost and effectiveness of employing salaried support carers to reduce waiting lists for short-term care: research report
- Authors:
- HESLOP Pauline, BYFORD Sarah, WEATHERLY Helen
- Publisher:
- Shared Care Network,|Norah Fry Research Centre
- Publication year:
- 2002
- Pagination:
- 112p., bibliog.
- Place of publication:
- Bristol
The breaks described take place, not in institutions, but in the homes of carefully selected carers/families, in the child's own home or community setting.
Supporting families with two or more disabled children
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1999
- Pagination:
- 4p.
- Place of publication:
- York
Around 7,500 families in the UK have two or more children with severe impairments, representing well over 15,000 children. The partiicular experiences, needs and circumstances of these families have generally been overworked by research and social services. A detailed qualitative study involving 24 families explored their ways of managing from day-to-day and identified the tupes of service support that were most helpful to them. Summarise the research conducted by the researchers of the University of York.
Support for caregiving families: enabling positive adaptation to disability
- Editors:
- SINGER George H.S., IRVIN Larry K.
- Publisher:
- Paul H. Brookes
- Publication year:
- 1989
- Pagination:
- 366p.,tables,biliog.
- Place of publication:
- Baltimore, MD
Overview of family support services for families of children with special needs. Also discusses more informal social support, and coping skills.
Caring for people with a mental disability at home: Australian carers' perceptions of service provision
- Authors:
- VECCHIO Nerina, STEVENS Stella, CYBINSKI Patti
- Journal article citation:
- Community Mental Health Journal, 44(2), April 2008, pp.125-134.
- Publisher:
- Springer
This study investigates carer perceptions of the adequacy of assistance received by comparing two populations: those with a mental disability and those with a physical disability in Australia by using data representing 12.5% of the total population. This very large sample provides robust evidence for the study’s findings. Of those caring for individuals with severe core disabilities, 21.6% of those with a mental disability compared to only 8.3% of carers of those with a physical disability reported inadequate service assistance. Greater involvement of consumers and their families in health care service planning will provide opportunities to deliver more appropriate services and enhance equities within this sector.
Support for family carers of children and young people with developmental disabilities and challenging behaviour
- Authors:
- McGILL P., PAPACHRISTOFOROU E., COOPER V.
- Journal article citation:
- Child: Care, Health and Development, 32(2), March 2006, pp.159-163.
- Publisher:
- Wiley
This study gathered information about perceptions of family carers of children and young people with developmental disabilities and challenging behaviour of the help, support and treatment received from services and professionals. A total of 66 family carers completed postal questionnaires on the nature of, and their satisfaction with, services, professional help and advice received in respect of their family member's challenging behaviour. Most carers were dissatisfied with support and services received. Almost half reported receiving no professional input or none that was helpful. Over two-thirds reported receiving respite care but, in a third of these, the child had been excluded because of challenging behaviour. Families of children with challenging behaviour often do not receive services and supports that they find helpful. Treatments provided are not always evidence based. The 'rationing' of services creates a danger of inequality of access. We need a more proactive approach to identifying and meeting the need for family support.
Use of home care services effectively reduces feelings of burden among family caregivers of disabled elderly in Japan: preliminary results
- Authors:
- KUMAMOTO Keigo, ARAI Yumiko, ZARIT Steven H.
- Journal article citation:
- International Journal of Geriatric Psychiatry, 21(2), February 2006, pp.163-170.
- Publisher:
- Wiley
The aim was to examine whether the use of care services reduces the feelings of burden among family caregivers in Japan. Specifically, the study was aimed at testing the following three hypotheses: (1) The severity of impairment and the dementia among the disabled elderly increases the feelings of burden among family caregivers and the support from family members decreases burden: (2) the amount of services used by older people and their caregivers is affected by the severity of dementia and ADL deficiencies among the disabled elderly and the amount of support from family members: and (3) controlling for severity, the use of care services under the LTC insurance program serves to reduce the feelings of burden among family caregivers. A structural equation model using the data obtained from 82 pairs of community-dwelling disabled elderly and their principal family caregivers. The model included the following variables: age of the disabled elderly; the severity of ADL deficiency and behavioral disturbances; use of formal (public) care services; support from family members; and feelings of burden among family caregivers.The structural equation model revealed that, after controlling for the effects of severity on service use, home care services effectively reduce feelings of burden among family caregivers. The findings suggest that care services provided under the LTC insurance have been successfully reducing burden among family caregivers in the study area.
Elder disability as an explanation for racial differences in informal home care
- Authors:
- LI Lydia W., FRIES Brant E.
- Journal article citation:
- Gerontologist, 45(2), April 2005, pp.2-6-215.
- Publisher:
- Oxford University Press
Adjusting for sociodemographic characteristics and disability levels, this study examines whether differences exist in the structure and function of community-dwelling Black and White frail elders' informal care networks. Data from in-person assessments of Michigan's Home and Community-Based Medicaid Waiver applicants were analyzed. The sample consisted of 936 Black and 3,182 White frail elderly persons. When sociodemographic characteristics were controlled for, racial differences were found in all informal care components except out-of-home chores. Differences in functional components (amount of care, scope of assistance, and personal care) were largely accounted for by disability, whereas racial differences in the structural components (source of care, living arrangement, and sole caregiver) and in-home chores were not. Findings suggest that Black elders are not better off than White elders in the receipt of informal care. Although Black elders receive more informal help, this difference is primarily because of level of disability. This study calls for heightened awareness of disability among low-income Black elders and the potential burden experienced by their caregivers
The strengths and needs of black families in which young people have caring responsibilities
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2002
- Pagination:
- 4p.
- Place of publication:
- York
This study investigated the experiences and needs of black young people caring for disabled or ill family members and their access to services. A joint research team from Manchester Metropolitan University and the Bibini Centre for Young People interviewed young people and adults from 20 families and also sought the views of professionals from relevant social care agencies.
An investigation of carers' burden: before and after a total hip replacement
- Author:
- CHOW W.H.
- Journal article citation:
- British Journal of Occupational Therapy, 64(10), October 2001, pp.503-508.
- Publisher:
- Sage
Osteoarthritis in the hip joint is a chronic degenerative condition, causing pain and disability. This study investigates whether carers experienced stress from looking after individuals with osteoarthritis who were waiting for total hip replacement. The survey was conducted with 23 carers using postal questionnaires before and 3 months after the care receivers had undergone a total hip replacement. Concludes that carers do experience stress from looking after people with osteoarthritis waiting for a total hip replacement and that the carers' stress level was not reduced significantly 3 months after the hip operation. The results of this study have implications for health care professionals who come into contact with this group of carers.