Search results for ‘Subject term:"physical disabilities"’ Sort:
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Still caring
- Authors:
- WRIGHT Fay, ALISON Virginia
- Journal article citation:
- Community Care, 22.8.91, 1991, pp.18-19.
- Publisher:
- Reed Business Information
Reports on research carried out by Age Concern and the Spastics Society into older people caring for an adult disabled child.
The impact of switching on family caregivers of children with cerebral palsy
- Authors:
- NICOLSON Amy, MOIR LOIS, MILSTEED Jeannine
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 8(2), 2013, pp.169-175.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Purpose: This study aimed to enhance our knowledge and understanding of switching, as assistive technology, and how it impacts on family caregivers of children with cerebral palsy with GMFCS levels four or five. Methods: A qualitative method using a constructivist approach was adopted. Purposive sampling was used to recruit five caregivers to participants in this study. Framework analysis was applied to the data collection of semistructured interviews conducted with each caregiver. Findings: The three main themes identified were an investment in the future, resulting in joy and hope. The learning process of switching is resource intensive, time consuming and effortful for caregivers. If caregivers do not perceive this as an investment, then they may not experience the joy switching can bring to their child, and in turn the joy, hope, and caregiver satisfaction it can offer for the future. Conclusion: This research indicates that caregivers often have the greatest impact on whether switching will be adopted in the home. The greatest impact on caregivers is related to their perception on the competence of therapists and coordination of services provided. (Publisher abstract)
How to help a clumsy child: strategies for young children with developmental motor concerns
- Author:
- KURTZ Lisa A.
- Publisher:
- Jessica Kingsley
- Publication year:
- 2003
- Pagination:
- 176p., bibliog.
- Place of publication:
- London
When a child has a developmental delay affecting motor coordination and development the ramifications are far reaching, from the daily tasks of dressing and brushing your teeth, to learning to write and participating in sports. This book is a practical resource manual and 'how to help' book for parents of, or professionals working with, young children with motor coordination developmental delays. It covers a range of topics, including recognizing normal and abnormal motor development, when and how to seek help, an overview of approaches used to help the clumsy child, and specific teaching strategies appropriate for both parents and professional caregivers. Rather than focusing upon one specific frame of reference, the author offers a diverse range of ways to manage motor coordination and development problems, and also discusses the controversial nature of therapy for these children. Multiple tables and lists serve as quick reference guides and the three appendices include extensive further reading and an invaluable contacts list, making this an essential resource for anyone caring for or working with children with developmental motor concerns.
Better rewards: the cost and effectiveness of employing salaried support carers to reduce waiting lists for short-term care: research report
- Authors:
- HESLOP Pauline, BYFORD Sarah, WEATHERLY Helen
- Publisher:
- Shared Care Network,|Norah Fry Research Centre
- Publication year:
- 2002
- Pagination:
- 112p., bibliog.
- Place of publication:
- Bristol
The breaks described take place, not in institutions, but in the homes of carefully selected carers/families, in the child's own home or community setting.
Behaviour style and interaction between seven children with multiple disabilities and their caregivers
- Authors:
- WILDER J., GRANLUND M.
- Journal article citation:
- Child: Care, Health and Development, 29(6), November 2003, pp.559-567.
- Publisher:
- Wiley
Inductively explored caregivers’ perceptions of interaction within 7 caregiver–child pairs, following studies showing that existing interaction patterns of children with multiple disabilities should be taken into consideration when planning communication interventions. For disabled children it is especially important that the interaction partner is sensitive and well aware of the importance of qualitatively successful interaction. It was found that the behaviour style of 30 children with multiple disabilities was more related to the caregiver-perceived interaction than the communicative skills and functional abilities of the children. How do caregivers perceive the interaction, and the children's behaviour style as related to interaction with the caregivers? Children were selected individually depending on caregivers' responses about their self-regulation and reactivity in the Carolina Record of Individual Behaviour questionnaire. Caregivers were interviewed about interaction strategies, how they perceived the children's and their own roles, their opinion of what an interaction constituted, and aims and aspirations. Categorisations reflect the system of themes permeating how caregivers perceived interaction in the pair: sharing experience, successful interaction, child's and caregiver's roles, interaction methods, obstacles and facilitators, and aims and aspirations. Caregivers perceived their role as sensitive and leading. Caregivers led interaction by using their knowledge about the children's usual way of interacting, their behaviour styles, functional abilities, and current mood and situation as well as the whole context. They monitored the interaction such that, throughout a sequence, the caregivers always tried to optimise the interaction between the parties. The behaviour style was a background factor that the caregivers had knowledge of and scanned in their everyday turn taking. Although there were differences in children's behaviour styles, caregivers discussed the same themes in interviews. Behaviour style became a facilitator for the whole interaction, forced it in certain directions and made it more complete with turn taking of different kinds from both parties. Findings show that it is imperative to see caregivers as experts on their children and make them assertive in relation to professionals. Furthermore, as a successful interaction can boost children's development, it is essential to direct interventions to the everyday interaction in caregiver–child pairs.
When I'm away from home
- Author:
- CAMIS Jean
- Publisher:
- Jessica Kingsley
- Publication year:
- 2000
- Pagination:
- 80p.
- Place of publication:
- London
Workbook designed to record specific information about the individual care requirements of a disabled child. Provides for comprehensive description of medical and physical needs, their routine, and for their own notes on personality, preferences and habits. Useful for the carer, the child, and to relieve the anxieties of everybody involved in entrusting the child to someone other than their primary carer.
Supporting families with two or more disabled children
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1999
- Pagination:
- 4p.
- Place of publication:
- York
Around 7,500 families in the UK have two or more children with severe impairments, representing well over 15,000 children. The partiicular experiences, needs and circumstances of these families have generally been overworked by research and social services. A detailed qualitative study involving 24 families explored their ways of managing from day-to-day and identified the tupes of service support that were most helpful to them. Summarise the research conducted by the researchers of the University of York.
Combining work and care: working parents of disabled children
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1998
- Pagination:
- 4p.
- Place of publication:
- York
The pressures and challenges associated with the care of disabled children are well documented but little is known about how these parents combine paid work with caring. Summarises a study which analysed detailed accounts of parents from 40 families who are combining employment with care of disabled children.
Support for caregiving families: enabling positive adaptation to disability
- Editors:
- SINGER George H.S., IRVIN Larry K.
- Publisher:
- Paul H. Brookes
- Publication year:
- 1989
- Pagination:
- 366p.,tables,biliog.
- Place of publication:
- Baltimore, MD
Overview of family support services for families of children with special needs. Also discusses more informal social support, and coping skills.
Children and young persons, England: the breaks for carers of disabled children regulations 2011: statutory instrument 2011 no. 707
- Author:
- GREAT BRITAIN. Acts, Bills
- Publisher:
- Stationery Office
- Publication year:
- 2011
- Pagination:
- 4p.
- Place of publication:
- London
These regulations cover the duty of local authorities to make provisions for short break care for carers of disabled children and the types of services which must be provided.