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Elder disability as an explanation for racial differences in informal home care
- Authors:
- LI Lydia W., FRIES Brant E.
- Journal article citation:
- Gerontologist, 45(2), April 2005, pp.2-6-215.
- Publisher:
- Oxford University Press
Adjusting for sociodemographic characteristics and disability levels, this study examines whether differences exist in the structure and function of community-dwelling Black and White frail elders' informal care networks. Data from in-person assessments of Michigan's Home and Community-Based Medicaid Waiver applicants were analyzed. The sample consisted of 936 Black and 3,182 White frail elderly persons. When sociodemographic characteristics were controlled for, racial differences were found in all informal care components except out-of-home chores. Differences in functional components (amount of care, scope of assistance, and personal care) were largely accounted for by disability, whereas racial differences in the structural components (source of care, living arrangement, and sole caregiver) and in-home chores were not. Findings suggest that Black elders are not better off than White elders in the receipt of informal care. Although Black elders receive more informal help, this difference is primarily because of level of disability. This study calls for heightened awareness of disability among low-income Black elders and the potential burden experienced by their caregivers
The strengths and needs of black families in which young people have caring responsibilities
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2002
- Pagination:
- 4p.
- Place of publication:
- York
This study investigated the experiences and needs of black young people caring for disabled or ill family members and their access to services. A joint research team from Manchester Metropolitan University and the Bibini Centre for Young People interviewed young people and adults from 20 families and also sought the views of professionals from relevant social care agencies.
Theorising disability as political subjectivity: work by the UIC Disability Collective on political subjectivities
- Authors:
- JARMAN Michelle, et al
- Journal article citation:
- Disability and Society, 17(5), August 2002, pp.555-569.
- Publisher:
- Taylor and Francis
Disability studies have shown how therapeutic professionals and people with disabilities occupy opposite sides of a deep cultural divide, one that artificially bisects normalcy from 'abnormalcy'. The philosophy of political subjectivity provides an opportunity to analyse the nexus that exists between institutions and those who navigate them as professionals and 'clients'. This article seeks to theorise the subject positions that emerge as a result of this often volatile intersection by offering up four critical vignettes: (1) an analysis of the systems and networks that characterise disabled transport within the Chicago Transit Authority; (2) speech therapy training and clinical practices designed for those whose articulation is diagnosed as inferior; (3) an African American clinician's analysis of disability taxonomies applied to minority wards of the state of Illinois; and (4) an analysis of scapegoating at the national level in a class-action law suit regarding the 'missed' diagnosis of disability prior to birth.
Ethnicity, disability and chronic illness
- Editor:
- AHMAD Waqar I. U.
- Publisher:
- Open University Press
- Publication year:
- 2000
- Pagination:
- 154p.,bibliog.
- Place of publication:
- Buckingham
Brings together work on ethnicity, disability, chronic illness and caring. Examines the conceptualisation of disability or chronic illness and the implications of particular definitions; looks at everyday living with a disability or chronic ill health; and examines the role of services in providing support to disabled people and carers. Highlights the continued problems experienced by minority ethnic disabled and chronically ill people and their families.
Who wants George?: recruiting alternative families for children with disabilities
- Author:
- ARGENT Hedi
- Journal article citation:
- Adoption and Fostering, 22(1), Spring 1998, pp.40-45.
- Publisher:
- Sage
Identifies some of the needs of disabled children who require permanent care and explores the type of qualities to look for, and those to avoid, in the search for prospective carers. Taking the case of George, the author emphasises the importance of devising recruitment publicity that is specially tailored to fit the situation of each individual child.
Making contact: a report on methods of consultations with carers from minority ethnic communities
- Authors:
- ANWAR Saeed, HILL Peter
- Publisher:
- Oldham Disability Alliance
- Publication year:
- 1994
- Pagination:
- 18p.
- Place of publication:
- Oldham
Special child: special needs; services for children with disabilities
- Author:
- ASSOCIATION OF METROPOLITAN AUTHORITIES
- Publisher:
- Association of Metropolitan Authorities
- Publication year:
- 1994
- Pagination:
- 101p.,illus.,bibliog.
- Place of publication:
- London
Looks at provision of services to children with learning difficulties and or disabilities and their carers. Puts forward some ideas for new provision, such as the child's facilitator, short term breaks, a survey of children living away from home, and shared budgets. Also looks at what goes wrong in care, and emphasises throughout the importance of listening to the voice of the child.
Respite care in the East End: a multi-cultural challenge
- Author:
- LENEHAN Christine
- Publisher:
- Barnardo's
- Publication year:
- 1989
- Pagination:
- 24p.
- Place of publication:
- Ilford
Summarises some key structural and service aspects of the project's development, including its publicity, staffing and first recruitment campaign for support families. Looks at the children referred to the project, and their needs. Describes the carers, their recruitment, and training. Outlines how families and carers are brought together and how they are supported. Provides 4 examples of respite care in action. Finally, details some of the realities of working with the Bangladeshi community.
Translating theory into practice? The implications for practitioners and users and carers
- Author:
- DOWLING Monica
- Journal article citation:
- Practice: Social Work in Action, 18(1), March 2006, pp.17-30.
- Publisher:
- Taylor and Francis
This paper examines two very different case scenarios to highlight the importance of applying relevant knowledge with and for children, young people and their families. Key issues that are considered are the 'fit' and use of theory in practice. For example: what theoretical perspectives are appropriate in working with children with a wide range of disabilities? How does the professional training and ideology of practitioners from different health and social care backgrounds affect their choice of theory in working with children and families? How do users and carers understand these theoretical perspectives and how are they involved in their own progress?
In an beyond New Labour: towards a new political ethics of care
- Author:
- WILLIAMS Fiona
- Journal article citation:
- Critical Social Policy, 21(4), November 2001, pp.467-493.
- Publisher:
- Sage
Argues for a political ethics of care to balance New Labour's current preoccupation with the ethics of paid work. However, care as a practice invokes different experiences, meanings, contexts and multiple relations of power. The article traces the development of the concept of care taking up, in particular, challenges and differences raised by disability, race and migration. These offer important insights for a new political ethics of care whose key dimensions are spelled out in the final part of the article.