Search results for ‘Subject term:"physical disabilities"’ Sort:
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Personal assistance providers' mistreatment of disabled adults
- Authors:
- OKTAY Julianne S., TOMPKINS Catherine J.
- Journal article citation:
- Health and Social Work, 29(3), August 2004, pp.177-188.
- Publisher:
- Oxford University Press
Describes a survey of 84 disabled adults receiving personal assistance with daily living from family members, informal providers, or agency personnel. Results showed that 30% reported mistreatment from their primary provider and 61% reported mistreatment by other providers. Verbal and physical abuse and theft or extortion were the most common forms of mistreatment by primary providers. Adults with lower incomes were the most likely to experience mistreatment. Male providers were more likely to mistreat, as were providers who were inexperienced and who provided more than 50 hours of care per week.
A study of 10 states since passage of the National Family Caregiver Support Program: policies, perceptions, and program development
- Authors:
- FEINBERG Lynn Friss, NEWMAN Sandra L.
- Journal article citation:
- Gerontologist, 44(6), December 2004, pp.760-769.
- Publisher:
- Oxford University Press
Describes the preliminary experiences of 10 US states in providing support services to family or informal caregivers of elderly adults and adults with disabilities, focusing on the newly created National Family Caregiver Support Program, state general funds, Medicaid-waiver programs, and other state-funding streams. Case studies were conducted in March-July 2002 through in-person interviews with state officials and stakeholders in Alabama, California, Florida, Hawaii, Indiana, Iowa, Maine, Pennsylvania, Texas and Washington. States were in the start-up phase of implementing the Program and varied greatly in programme design and integration of caregiver support into their home- and community-based care system. Viewing family caregivers as a client population was a paradigm shift for many state officials. Heavy reliance is currently placed on family and informal caregivers in home- and community-based care, without adequate support services. Family support should be an explicit goal of long-term-care system reform.
Congruence between disabled elders and their primary caregivers
- Authors:
- HOROWITZ Amy, GOODMAN Caryn R., REINHARDT Joann P.
- Journal article citation:
- Gerontologist, 44(4), August 2004, pp.532-542.
- Publisher:
- Oxford University Press
This study examines the extent and independent correlates of congruence between disabled elders and their caregivers on several aspects of the caregiving experience. Participants were 117 visually impaired elders and their caregivers. Correlational analyses, kappa statistics, and paired t tests were used to examine the extent of congruence. Hierarchical multiple regression analyses identified significant correlates of congruence on four target issues: elder's functional disability, elder's adaptation to vision impairment, caregiver's overprotectiveness, and caregiver's understanding of the vision problem. Caregivers assessed elders as more disabled and rated themselves as more overprotective than did the elders. Although independent correlates varied by target issue, two domains most consistently influenced congruence across measures: the caregiver's assessment of the elder's status and quality of the relationship. Findings underscore the importance of addressing congruence by target issue, rather than as a global characteristic of the caregiving relationship.
'Instruments', 'employees', 'companions', 'social assets': understanding relationships between persons with disabilities and their assistants in Japan
- Authors:
- YAMAKI Chikako, YAMAZAKI Yoshihiko
- Journal article citation:
- Disability and Society, 19(1), January 2004, pp.31-46.
- Publisher:
- Taylor and Francis
In Japan, as in other advanced industrial societies, user-helper relationships shaped by the Independent Living Movement have gradually been taking root. In this study, we interviewed 31 Center for Independent Living (CIL) consumers in Japan in order to explore the nature of the relationship between persons with disabilities influenced by IL ideals and their assistants. Interviews revealed three significant dimensions to the relationship--one functional, one interpersonal and one collective. The functional dimension of the relationship was expressed in a characterization of assistants as 'instruments', the interpersonal dimension in their characterization as 'employees' (a task-orientated aspect) and 'companions' (a socio-emotional aspect), and the collective dimension in the characterization of assistants as 'social assets'--individuals without disabilities who understand the ideals and demands of independent living. Participant responses also form the basis of our discussion of theoretical and practical implications for the building of user-helper relationships based within a user-centred agency in the context of Japanese medical and social services.
Keeping the cash under control: what's the problem with direct payments in Scotland?
- Author:
- PEARSON Charlotte
- Journal article citation:
- Disability and Society, 19(1), January 2004, pp.3-14.
- Publisher:
- Taylor and Francis
Implementation of the 1996 Community Care (Direct Payments) Act from April 1997 has gradually gained momentum as more and more local authorities have begun to embrace the idea, and develop their own direct payment policies and support structures. However, whilst users have overwhelmingly welcomed this transition, there remains a stark divide between the implementation and promotion of policy in different parts of the UK. This has resulted in only marginal use of direct payments for a small number of disabled persons in Scotland. As legislation moves to widen access to direct payments in Scotland, this article draws on a series of interviews with policy makers in two local authorities and examines some of the key problems that, to date, have prevented many authorities from offering direct payments as a mainstream service option for disabled people.
Care co-ordination and key worker schemes for disabled children: results of a UK-wide survey
- Authors:
- GRECO V., SLOPER P.
- Journal article citation:
- Child: Care, Health and Development, 30(1), January 2004, pp.13-20.
- Publisher:
- Wiley
Investigated the prevalence and nature of care co-ordination and key worker services for disabled children and their families with a postal survey of 225 children with disabilities teams. Of 159 questionnaires returned (70%), 35 (22%) reported having a care co-ordination scheme, with 30 (19%) providing key workers for families. Most had multiagency and parent involvement in setting up and overseeing schemes. However, multiagency funding was less common and funding for many schemes was short term. Different models of key working were apparent. Five schemes employed full-time key workers. In 21, professionals key worked with a few families as part of a large case load, and in 3 both types of key workers were employed. Most schemes provided initial or ongoing training for key workers, but a few provided neither. The proportion of areas having care co-ordination or key worker services is consistent with findings on research with parents of disabled children, which reports that less than one-third of families have a key worker. The extent of multiagency involvement in planning and overseeing the operation of the service was positive but joint funding was more problematic. There was considerable variation in service models and, as yet, little is known about whether or how such variations relate to outcomes. Further research will investigate these issues.
A content analysis of direct payment policies within England
- Authors:
- TOBIN Roseanne, VICK Nicola
- Publisher:
- Health and Social Care Advisory Service
- Publication year:
- 2004
- Pagination:
- 33p., bibliog.
- Place of publication:
- London
Under the provisions of the Community Care (Direct Payments) Act (1996) disabled people have the legal right to receive payment of community care monies and to purchase their own care based on an agreed needs-led assessment, their eligibility under the Act and their eligibility for a community care payment. Despite a growth over time in the numbers of people in receipt of direct payments, wide variations persist in the availability of direct payments support schemes and in the take up of payments across care groups. This study aims to evaluate the process of direct payment policy implementation and the impact of social care modernisation on the availability of support schemes and on ensuring equity of access for users of physical disability, learning disability, mental health, older persons’ services and their carers.
A content analysis of direct payments policies in England: an evaluation: executive summary
- Author:
- HEALTH AND SOCIAL CARE ADVISORY SERVICE
- Publisher:
- Health and Social Care Advisory Service
- Publication year:
- 2004
- Pagination:
- 3p.
- Place of publication:
- London
Under the provisions of the Community Care (Direct Payments) Act (1996) disabled people have the legal right to receive payment of community care monies and to purchase their own care based on an agreed needs-led assessment, their eligibility under the Act and their eligibility for a community care payment. Despite a growth over time in the numbers of people in receipt of direct payments, wide variations persist in the availability of direct payments support schemes and in the take up of payments across care groups. This study aims to evaluate the process of direct payment policy implementation and the impact of social care modernisation on the availability of support schemes and on ensuring equity of access for users of physical disability, learning disability, mental health, older persons’ services and their carers.
All kinds of short breaks: a guide to providing a range of quality services to disabled children and young people
- Authors:
- CARLIN Jeanne, et al
- Publisher:
- Shared Care Network
- Publication year:
- 2004
- Pagination:
- 170p.
- Place of publication:
- Bristol
This is a guide to providing a range of quality services to disabled children and young people. It is a practical guide for practitioners and managers working in family support services for disabled children. It provides factual accessible material and examples of good practice, which reflect the diverse services short break schemes now provide.
Social exclusion of people with marked communication impairment following stroke
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2004
- Pagination:
- 4p.
- Place of publication:
- York
Aphasia is a communication impairment that commonly follows stroke. It affects people's ability to talk, understand, read and write. Some are so profoundly affected that any form of communication is minimal. Aphasia seems poorly understood and relatively unrecognised, perhaps because it is invisible; people with aphasia describe being overlooked. The experience of those with profound communication difficulties has never been documented before, partly because of methodological difficulties. People with severe aphasia had little access to employment, educational, training or leisure opportunities. Many were long-term recipients of a wide range of statutory and voluntary care services. Health, social and residential care workers did not have training or information about aphasia, and did not know how to support fragile communication. Health and social care services often failed to address important issues, such as employment, or financial concerns, and there was little connection and communication between the various agencies. People with severe aphasia were often excluded from the benefits of health, social care, residential and nursing services because information and instructions were inaccessible, activities inappropriate or unachievable, and there was continuous communication breakdown in interactions. For these people, services became 'hard to reach'. Service providers, family and friends may have unintentionally excluded people with severe aphasia by using idiosyncratic, unmonitored communication strategies. People with aphasia were talked about, patronised, teased and given orders. Particularly in residential and nursing care settings, people with severe aphasia were in danger of losing their identity as staff often knew very little about them and didn't know how to find out. Maintaining friendships and social contacts was difficult for people living with severe aphasia, resulting in isolation and boredom. Relatives described experiencing similar restrictions. People with severe aphasia mostly exercised little choice and control in their day-to-day lives. The researchers conclude that social exclusion is a common, though not inevitable, experience for people with aphasia.Training and support for communication are urgently needed for carers and service providers.