Four grassroots development projects were supported by the Joseph Rowntree Foundation to generate practical learning about how to make change happen for black and minority ethnic disabled people. EQUALITIES aimed to increase the local voice of black and minority ethnic disabled people and carers. International Somali Community Trust employed direct advocacy and set up a user forum for Somali-speaking disabled people. People in Action supported ROOOTS, six African Caribbean people with learning difficulties, to deliver training to local service providers. Tassibee trained Pakistani Muslim women with experience of mental health difficulties to run self-help groups.
Four grassroots development projects were supported by the Joseph Rowntree Foundation to generate practical learning about how to make change happen for black and minority ethnic disabled people. EQUALITIES aimed to increase the local voice of black and minority ethnic disabled people and carers. International Somali Community Trust employed direct advocacy and set up a user forum for Somali-speaking disabled people. People in Action supported ROOOTS, six African Caribbean people with learning difficulties, to deliver training to local service providers. Tassibee trained Pakistani Muslim women with experience of mental health difficulties to run self-help groups.
Subject terms:
learning disabilities, Muslims, physical disabilities, black and minority ethnic people;
This study investigated the experiences and needs of black young people caring for disabled or ill family members and their access to services. A joint research team from Manchester Metropolitan University and the Bibini Centre for Young People interviewed young people and adults from 20 families and also sought the views of professionals from relevant social care agencies.
This study investigated the experiences and needs of black young people caring for disabled or ill family members and their access to services. A joint research team from Manchester Metropolitan University and the Bibini Centre for Young People interviewed young people and adults from 20 families and also sought the views of professionals from relevant social care agencies.
Subject terms:
physical disabilities, young people, carers, black and minority ethnic people, children, families;
The Shaping Our Lives project, working in partnership with Black User Group (London), Service User Action Group (Wakefield), Ethnic Disabled Group Emerged (Manchester) and an alliance of user groups in Waltham Forest (London), looked at the application in practice of on-going work about what service users meant by 'user-defined outcomes'. Both the research and the development projects covered a range of experiences - including those of older people, mental health users, minority ethnic communities and disabled people and involving 66 users in all.
The Shaping Our Lives project, working in partnership with Black User Group (London), Service User Action Group (Wakefield), Ethnic Disabled Group Emerged (Manchester) and an alliance of user groups in Waltham Forest (London), looked at the application in practice of on-going work about what service users meant by 'user-defined outcomes'. Both the research and the development projects covered a range of experiences - including those of older people, mental health users, minority ethnic communities and disabled people and involving 66 users in all.
Subject terms:
mental health problems, older people, outcomes, physical disabilities, service users, user participation, user views, advocacy, black and minority ethnic people;
Peer support is important to all young people, but previous research has shown that young Asian, Caribbean and African disabled and Deaf people have limited knowledge of where to get this support. Yet some do go to local peer support groups to spend time with other young black and minority ethnic people who have similar experiences. Researchers from the REU spent time with young people in five peer support groups to learn more about their groups and what they valued from them.
Peer support is important to all young people, but previous research has shown that young Asian, Caribbean and African disabled and Deaf people have limited knowledge of where to get this support. Yet some do go to local peer support groups to spend time with other young black and minority ethnic people who have similar experiences. Researchers from the REU spent time with young people in five peer support groups to learn more about their groups and what they valued from them.
Subject terms:
physical disabilities, self-help, self-help groups, young people, access to services, black and minority ethnic people, deafness, peer support;
The involvement of users has been actively promoted within social care as a way of developing more appropriate and responsive services, bringing benefits to both service users and providers. There has, however, been a noticeable lack of involvement by black disabled people. Research undertaken by Rachel Evans and Martin Banton of the Council of Disabled People Warwickshire with support from Coventry University's Centre for Social Justice explored one organisation's experiences in developing the involvement of black disabled people. Presents the findings of the research.
The involvement of users has been actively promoted within social care as a way of developing more appropriate and responsive services, bringing benefits to both service users and providers. There has, however, been a noticeable lack of involvement by black disabled people. Research undertaken by Rachel Evans and Martin Banton of the Council of Disabled People Warwickshire with support from Coventry University's Centre for Social Justice explored one organisation's experiences in developing the involvement of black disabled people. Presents the findings of the research.
Subject terms:
needs, outreach services, physical disabilities, service users, social exclusion, user participation, user views, black and minority ethnic people, empowerment;
Independent is generally seen as a positive step for young people, leading to them becoming self-reliant and less dependent on others. Yet this may not be the same for young disabled people. This study is based on interviews with 44 young disabled people of Asian, African and Caribbean origin. It looks at their experience of independence and the influences on them leading active independent lives.
Independent is generally seen as a positive step for young people, leading to them becoming self-reliant and less dependent on others. Yet this may not be the same for young disabled people. This study is based on interviews with 44 young disabled people of Asian, African and Caribbean origin. It looks at their experience of independence and the influences on them leading active independent lives.
Subject terms:
independence, loneliness, physical disabilities, user views, young people, Asian people, black and minority ethnic people, education;
Survey evidence suggests that young people, older people, unemployed people, disabled people and people from black and other minority ethnic communities are underrepresented as volunteers in mainstream organisations. Researched carried out by the National Centre for Volunteering found that some organisations have addressed the barriers that face potential volunteers from these groups and secured their involvement through the adoption of practical measures and a real commitment to equality of opportunity.
Survey evidence suggests that young people, older people, unemployed people, disabled people and people from black and other minority ethnic communities are underrepresented as volunteers in mainstream organisations. Researched carried out by the National Centre for Volunteering found that some organisations have addressed the barriers that face potential volunteers from these groups and secured their involvement through the adoption of practical measures and a real commitment to equality of opportunity.
Subject terms:
older people, physical disabilities, unemployment, user participation, volunteers, young people, black and minority ethnic people, equal opportunities;
Black and minority ethnic service users felt mainstream services were often inappropriate for their needs and that services made assumptions based on stereotypes and prejudice about what the needs of these users may be or what they may want to access. The experience of racial discrimination and prejudice in mainstream service provision often meant that what minority ethnic users were asking for were specialist, culturally competent services. There were few black and minority ethnic staff in mainstream services and some of the services had made little attempt to change this.There was a general desire for more information about services and entitlements from service providers. For example, very few disabled people had any knowledge of direct payment schemes. Religious and cultural identity was very important to many people from minority ethnic communities but it was rarely responded to by mainstream service providers. Common myths about informal family networks looking after each other cannot be taken for granted. The research showed that although informal support is available in certain circumstances, this cannot be relied upon. People sometimes experienced discrimination and prejudice within their own community and faith groups. The differences between the experiences of men and women were often sharper than the differences between different ethnic groups.
Black and minority ethnic service users felt mainstream services were often inappropriate for their needs and that services made assumptions based on stereotypes and prejudice about what the needs of these users may be or what they may want to access. The experience of racial discrimination and prejudice in mainstream service provision often meant that what minority ethnic users were asking for were specialist, culturally competent services. There were few black and minority ethnic staff in mainstream services and some of the services had made little attempt to change this.There was a general desire for more information about services and entitlements from service providers. For example, very few disabled people had any knowledge of direct payment schemes. Religious and cultural identity was very important to many people from minority ethnic communities but it was rarely responded to by mainstream service providers. Common myths about informal family networks looking after each other cannot be taken for granted. The research showed that although informal support is available in certain circumstances, this cannot be relied upon. People sometimes experienced discrimination and prejudice within their own community and faith groups. The differences between the experiences of men and women were often sharper than the differences between different ethnic groups.
Subject terms:
physical disabilities, racial discrimination, religious discrimination, service users, social care provision, user participation, user views, access to services, black and minority ethnic people, cultural identity, direct payments;
Short breaks for disabled children are a popular service with families and one supported by central government, local authorities and the voluntary sector. However, black families do not have equal access to this service. This report reviewed literature on access to short breaks by black families, and carried out interviews with children and young people, parents, short break carers and scheme organisers. Two main aims were to examine the barriers to access and what works to overcome these.
Short breaks for disabled children are a popular service with families and one supported by central government, local authorities and the voluntary sector. However, black families do not have equal access to this service. This report reviewed literature on access to short breaks by black families, and carried out interviews with children and young people, parents, short break carers and scheme organisers. Two main aims were to examine the barriers to access and what works to overcome these.
Subject terms:
literature reviews, parental role, parent-child relations, parents, physical disabilities, short break care, access to services, black and minority ethnic people, children, contact, equal opportunities;
It is widely recognised that minority ethnic groups experience social and material disadvantage and face barriers in their access to statutory support services. Families with a disabled child have been identified as being particularly poorly served. Research carried out at the Universities of Bradford and York is the first to provide detailed information at a national level of the needs and circumstances of families from minority ethnic groups caring for a severely disabled child, comparing the findings with those from an earlier survey of white families from the same database. Outlines the findings.
It is widely recognised that minority ethnic groups experience social and material disadvantage and face barriers in their access to statutory support services. Families with a disabled child have been identified as being particularly poorly served. Research carried out at the Universities of Bradford and York is the first to provide detailed information at a national level of the needs and circumstances of families from minority ethnic groups caring for a severely disabled child, comparing the findings with those from an earlier survey of white families from the same database. Outlines the findings.
Subject terms:
needs, parents, physical disabilities, severe disabilities, social care provision, unmet need, access to services, carers, black and minority ethnic people, children, families;