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Avoiding institutional outcomes for older adults living with disability: the use of community-based aged care supports
- Authors:
- ELLISON Caroline, WHITE Amy, CHAPMAN Libby
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 36(3), September 2011, pp.175-183.
- Publisher:
- Taylor and Francis
Most people, regardless of ability or impairment, want to remain independent and living in their own home as they age. This study aimed to establish if accessing community-based aged care supports was perceived as assisting individuals ageing with a disability to remain living in their own homes and to avoid more institutional models of service. Sixty individuals aged 50 years and over with an intellectual, physical or neurological disability were interviewed to determine their perceptions in relation to ageing and the supports needed to remain living in the community. In addition, 26 staff and 6 family members were interviewed. The findings indicated that the participants receiving community-based aged care supports reported benefits including opportunities to develop relationships, maintain daily living skills, and participate in community activities. However, due to a lack of confidence in the availability of access to mainstream community-based aged care services, many participants felt vulnerable or unsure about their future and ability to remain living in their own home. Several participants commented that this meant that an undesired early relocation into residential aged care or congregate disability services appeared inevitable.
Dignity and older Europeans: final report of focus groups of Spanish professionals
- Author:
- BLASCO Sergio Arino
- Publisher:
- Dignity and Older Europeans Consortium
- Publication year:
- 2004
- Pagination:
- 76p.
- Place of publication:
- Cardiff
The right to, and the need for dignity is frequently cited in policy documents relating to the health and social care of older people. It is also expressed as an important value in professional codes and declarations of human rights. Yet concerns about the standards of care for a growing number of older people abound despite global ageing being a well-recognised Dignity and Older Europeans is an international research project which brings together a range of academics, clinicians, and user groups to explore the concept of dignity in the lives of Older Europeans. The project spanned 3 years until December 2004 and involved 8 partners from 6 European countries including Spain.
Educating for dignity: a multi-disciplinary workbook
- Author:
- DIGNITY AND OLDER EUROPEANS CONSORTIUM
- Publisher:
- Dignity and Older Europeans Consortium
- Publication year:
- 2005
- Pagination:
- 93p., bibliog.
- Place of publication:
- Cardiff
This study material was developed from an international research project 'Dignity and Older Europeans'. The material is derived from contributions from older people; health and social care professionals and other members of the public in the six countries which took part in the research UK (England and Wales), France, Ireland, Spain, Sweden and Slovakia. The learning activites are presented in four sections: Old Age - what does it mean?; Understanding Dignity; Dignity in care; and The impact of the system. Each section includes narratives based around the key themes that emerged from the study. The concluding section offers a brief discussion of the exercises and provides an overview of the main findings.
Dignity and the older European: policy recommendations
- Authors:
- EDGAR Andrew, NORDENFELT Lennart
- Journal article citation:
- Quality in Ageing, 6(2), July 2005, pp.17-20.
- Publisher:
- Pier Professional
- Place of publication:
- Brighton
The Dignity and Older Europeans Research Group had produced a series of recommendations on policy. The policy recommendations are inspired by the data gathered from focus groups, as well as by the theoretical reflections on the concept of 'dignity'. This article introduces four core policy recommendations. The first reflects the rights of the older person, the second calls for the removal of ageism and ageist practices, the third concerns the regulatory frameworks needs in service provision and the fourth reflects the welfare entitlements of older people.
Depressive symptoms in late life: associations with apathy, resilience and disability vary between young-old and old-old
- Authors:
- MEHTA Mona, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 23(3), March 2008, pp.238-243.
- Publisher:
- Wiley
Prior research has found that disability and apathy are associated with late-life depression. However, the effect of age on these associations in late-life, an ambiguous term encompassing all individuals typically older than 60 years, has not been examined. We investigated the association of depression with disability, apathy and resilience across the age range of late-life. One hundred and five community-dwelling elderly with moderate levels of disability were assessed using the Geriatric Depression Scale (GDS), Hardy-Gill Resilience Scale, Starkstein Apathy Scale and IADL/ADL questionnaire. Multiple regression analysis was used to assess relationships between depression, disability, apathy and resilience, stratified by age (<80 vs. >80). In the <80 year old subject group, resilience, apathy and disability scores (partial type III R2 = 11.1%, 10.4% and 12.8%, respectively) equally contributed to the variability of GDS score. In contrast, in the >80 year old subject group, apathy (partial type III R2 = 18.7%) had the greatest contribution to GDS score. In elderly persons under age 80, resilience, apathy and disability all have relatively equal contributions to depression scores, whereas in those over age 80, depression is most highly correlated with apathy. These data suggest that depressive symptoms in elderly persons have different clinical features along the age spectrum from young-old to old-old.
Aging with disabilities: ageism and more
- Author:
- SHEETS Debra J.
- Journal article citation:
- Generations, 29(3), 2005, pp.37-41.
- Publisher:
- American Society on Aging
Older people who also have disabilities find themselves in "double jeopardy" of experiencing prejudice and discrimination, which often lead to difficulty gaining access to needed healthcare and social services. This article examines that situation and suggests what must be done if those who are aging with disabilities are to be better served by the aging and disability service systems in the United States.
Educating for dignity
- Authors:
- TADD Win, DIEPPE Paul
- Journal article citation:
- Quality in Ageing, 6(2), July 2005, pp.4-9.
- Publisher:
- Pier Professional
- Place of publication:
- Brighton
This paper describes the creation of the educational materials developed as part of the Dignity and Older Europeans Project. Following a discussion of the development process, the materials themselves are described. The materials include a poster of the dignity balance, which contains five core messages and illustrates the impact of both enhancing and violating individual dignity. The second product is a leaflet that also includes the dignity balance and lists of actions and approaches that will promote dignity or result in indignity. The final product to date is a multidisciplinary workbook, which is described in some detail. The workbook Educating for Dignity provides a brief outline of the theoretical model of dignity, and four different sections based on the empirical findings: understanding dignity, old age - what is it like to be an older person, dignity in care, and the impact of the system.
Empowerment theory and long-living women: a feminist and disability perspective
- Author:
- MORELL Carolyn
- Journal article citation:
- Journal of Human Behavior in the Social Environment, 7(3/4), 2003, pp.225-236.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Empowerment theory is central to social work and to feminist gerontology. Yet an emphasis on increasing power and control over the circumstances of one's life does not neatly “fit” the involuntary bodily realities that figure centrally in the experiences of late age. Argues that the paradox of late life empowerment is that it requires acceptance and affirmation of the weak, suffering, and uncontrollable body.
The body in social policy: mapping a territory
- Author:
- TWIGG Julia
- Journal article citation:
- Journal of Social Policy, 31(3), July 2002, pp.421-439.
- Publisher:
- Cambridge University Press
- Place of publication:
- Cambridge
Explores the relevance of recent theorising around the body in social policy. Argues that the body is strongly present within social policy, in both the subject matter and the debates. Discusses how the literature on the body is relevant to social policy and might bring insights that are of benefit to the subject. Focuses on the areas of: health care, community care, disability no-power consumption, and the cross-cutting themes of age, race, gender and sexuality.
When people with pre-existing disabilities age in place: implications for social work practice
- Authors:
- GILSON Stephen French, NETTING F. Ellen
- Journal article citation:
- Health and Social Work, 22(4), November 1997, pp.290-298.
- Publisher:
- Oxford University Press
Focuses on a population of people with disabilities who are "ageing in place," that is, individuals ageing with pre-existing physical disabilities. A brief overview of people ageing with disabilities and selected background information on the increasing linkages between the ageing and disability communities is provided. Four case examples illustrate the practice implications faced by social workers in partnering with people with pre-existing disabilities and in being sensitive to their desires concerning ageing in place.