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Avoiding institutional outcomes for older adults living with disability: the use of community-based aged care supports
- Authors:
- ELLISON Caroline, WHITE Amy, CHAPMAN Libby
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 36(3), September 2011, pp.175-183.
- Publisher:
- Taylor and Francis
Most people, regardless of ability or impairment, want to remain independent and living in their own home as they age. This study aimed to establish if accessing community-based aged care supports was perceived as assisting individuals ageing with a disability to remain living in their own homes and to avoid more institutional models of service. Sixty individuals aged 50 years and over with an intellectual, physical or neurological disability were interviewed to determine their perceptions in relation to ageing and the supports needed to remain living in the community. In addition, 26 staff and 6 family members were interviewed. The findings indicated that the participants receiving community-based aged care supports reported benefits including opportunities to develop relationships, maintain daily living skills, and participate in community activities. However, due to a lack of confidence in the availability of access to mainstream community-based aged care services, many participants felt vulnerable or unsure about their future and ability to remain living in their own home. Several participants commented that this meant that an undesired early relocation into residential aged care or congregate disability services appeared inevitable.
The body in social policy: mapping a territory
- Author:
- TWIGG Julia
- Journal article citation:
- Journal of Social Policy, 31(3), July 2002, pp.421-439.
- Publisher:
- Cambridge University Press
- Place of publication:
- Cambridge
Explores the relevance of recent theorising around the body in social policy. Argues that the body is strongly present within social policy, in both the subject matter and the debates. Discusses how the literature on the body is relevant to social policy and might bring insights that are of benefit to the subject. Focuses on the areas of: health care, community care, disability no-power consumption, and the cross-cutting themes of age, race, gender and sexuality.
Factors associated with frailty in chronically ill older adults
- Author:
- HACKSTAFF Lynn
- Journal article citation:
- Social Work in Health Care, 48(8), November 2009, pp.798-811.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
An ex post facto analysis of a secondary dataset examined relationships between physical frailty, depression and the self-perceived domains of health status and quality-of-life in older adults. The randomised sample included 992 community-dwelling, chronically ill and functionally impaired adults age 65 and older who received care from a Southern California Kaiser Permanente medical centre between 1998 and 2002. The purpose of the study was to identify possible intervention junctures related to self-efficacy of older adults in order to help optimise their functionality. Multivariate correlation analyses showed statistically significant positive correlations between frailty level and depression (r = .18; p = < .05), number of medical conditions (r = .09; p = < .05), and self-rated quality-of-life (r = .24; p = < .05). Frailty level showed a statistically significant negative correlation with self-perceived health status (r = -.25; p = < .05). Notably, no statistically significant correlation was found between age and frailty level (r = -.03; p = < .05). In linear regression, self-perceived health status had a partial variance with frailty level (part r = -.18). The significant correlations found support further research to identify interventions to help vulnerable, older adults challenge self-perceived capabilities so that they may achieve optimum functionality through increased physical activity earlier on, and increased self-efficacy to support successful adaptation to ageing-related losses.
Dependence, independence or inter-dependence? Revisiting the concepts of 'care' and 'dependency'
- Authors:
- FINE Michael, GLENDINNING Caroline
- Journal article citation:
- Ageing and Society, 25(4), July 2005, pp.601-621.
- Publisher:
- Cambridge University Press
Research and theory on ‘dependency’ and ‘care-giving’ have to date proceeded along largely separate lines, with little sense that they are exploring and explaining different aspects of the same phenomenon. Research on ‘care’, initially linked to feminism during the early 1980s, has revealed and exposed to public gaze what was hitherto assumed to be a ‘natural’ female activity. Conversely, disability activists and writers who have promoted a social model of disability have seen the language of and the policy focus upon ‘care’ as oppressive and objectifying. ‘Dependency’ is an equally contested concept: sociologists have scrutinised the social construction of dependency; politicians have ascribed negative connotations of passivity; while medical and social policy discourse employs the term in a positivist sense as a measure of physical need for professional intervention. Autonomy and independence, in contrast, are promoted as universal and largely unproblematic goals. These contrasting perspectives have led social theory, research and policies to separate and segregate the worlds of ‘carers’ from those for whom they ‘care’. Drawing on the work of Kittay and others, this paper explores the ways in which sociological perspectives can develop new understanding of the social contexts of ‘care’ and ‘dependence’.
Community supports for aging adults with lifelong disabilities
- Editors:
- JANICKI Matthew P., ANSELLO Edward F.
- Publisher:
- Paul H. Brookes
- Publication year:
- 2000
- Pagination:
- 585p.
- Place of publication:
- London
Drawing on field-tested experiences and situations that can be applied to almost any setting, this text gives practical approaches to real-life challenges facing people with disabilities as they grow older. The book offers practical advice on a variety of topics, including: planning for retirement; controlling finances; joining community activities; promoting health and wellness, including mental health care, nutrition, and dementia; finding and modifying home environments; and dealing with end-of life issues.
Home of Your Own programs: models of creative collaboration
- Author:
- QUINN Peggy
- Journal article citation:
- Journal of Community Practice, 12(1/2), 2004, pp.37-49.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philapelphia, USA
This description of Home of Your Own (HOYO) programs offers strategies for community collaboration that benefit people with disabilities. As more people with disabilities choose to live in the community rather than in institutions and as the population of the U.S. ages, community practitioners need to understand their needs as well as the resources available to assist them. HOYO programmes involve home buyers, financial institutions, realtors and organizations such as Centers for Independent Living, in locating properties, training clients and publicizing the programme. Practitioners and instructors can utilize HOYO programmes to illustrate the positive results of cooperation between federal, state and local agencies. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580)
Kaiser Permanente’s manifesto 2005 demonstration: the promises and limits of devolution
- Authors:
- LEUTZ Walter, et al
- Journal article citation:
- Journal of Aging and Social Policy, 14(3/4), 2002, pp.233-243.
- Publisher:
- Routledge
- Place of publication:
- Philadelphia, USA
In 1996, the eight-million member Kaiser Permanente HMO adopted a vision statement that said by 2005 it would expand its services to include home- and community-based services for its members with disabilities. It funded a 3-year, 32-site demonstration that showed that it was feasible to link HMO services with existing home- and community-based (HCB) services and that members appreciated the improved coordination and access. This private-sector project showed that devolution can produce innovative and feasible models of care, but it also showed that without federal financial and regulatory support, such models are unlikely to take hold if they are focused on “unprofitable” populations, for example, those who are chronically ill, poor, and/or disabled. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580).
The Human Rights Act: what are the implications for older people?; a Help the Aged seminar at Westminster on 13th September 2000
- Author:
- HELP THE AGED
- Publisher:
- Help the Aged
- Publication year:
- 2001
- Pagination:
- 14p.
- Place of publication:
- London
Describes a Help the Aged seminar held at Westminster on the thirteenth of September, 2000. Delegates agreed on the need for a greater awareness of the provisions of the Human Rights Act, and extensive training with specific guidelines for those working with older people. Topics addressed included; key concepts; implications of the Act; how the Act can help in practical situations; the role of Help the Aged.
Cognitive disability and direct care costs for elderly people
- Authors:
- KAVANAGH Shane, KNAPP Martin
- Journal article citation:
- British Journal of Psychiatry, 174(6), June 1999, pp.539-546.
- Publisher:
- Cambridge University Press
Population ageing and the high costs of care support for elderly people have concentrated attention on economic issues. Examines whether there is an association between costs and cognitive disability by comparing service utilisation and direct costs for elderly people with different degrees of cognitive disability, and between people living in households and in communal establishments. Discusses how population ageing is closely associated with higher utilisation of health and social care services, and how new treatment or service arrangements provoke debate about their cost implications. The study aims to provide 'benchmark' information to inform debates about the potential costs of various treatment and service charges.