Search results for ‘Subject term:"physical disabilities"’ Sort:
Results 1 - 5 of 5
Designing accessible managed care service for people with physical disabilities: consumer suggestions within an emergent design process
- Authors:
- WOLF-BRANIGIN Michael, LEROY Barbara
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 3(3), 2004, pp.3-16.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Persons with physical disabilities have difficulty accessing health care. This has become more pronounced with the emergence of managed care and other efforts to limit growing healthcare costs. In responding to a state's Medicaid office interest in designing accessible health services, a consumer-based evaluation including a series of nine focus groups (96 participants) was conducted using an emergent design method. This inductive analysis approach identified difficulties and provided the basis for recommending strategies to improve access. Two sets of consumer recommended strategies consistently were expressed during this process: (1) initiating one-to-one advocacy to improve local service coordination and (2) performing person-centered planning at enrollment in a managed care plan to facilitate appropriate and prompt access. These access strategies formed the basis for a later intervention design. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580)
Empowerment and advocacy: reflections on action research with Bangladeshi and Pakistani families who have children with severe disabilities
- Authors:
- FAZIL Qulsom, et al
- Journal article citation:
- Health and Social Care in the Community, 12(5), September 2004, pp.389-397.
- Publisher:
- Wiley
The concepts of empowerment and advocacy, and how they impinge on power relationships for service providers working with black and Asian communities, are explored through the findings of a 20-month project carried out between 2000 and 2001 with 19 Pakistani and Bangladeshi families who have children with severe disabilities in Birmingham. This action research project evaluated an advocacy project designed to improve the quality of life for Pakistani and Bangladeshi families with at least one child with severe disabilities. The objectives included improving access to resources, services, information and support in ways which were non-stigmatising, and which were sensitive to the particular needs of the children and their carers. The present paper discusses four main themes: (1) advocacy and empowerment in practice; (2) issues of the efficacy of advocacy and of consultation within advocacy; (3) individual empowerment versus the families' needs; and (4) cultural and gender issues which emerged from the analysis of the study. The authors identify features of empowerment which must be addressed in advocacy services which are sensitive to ethnic differences. These issues must be addressed if services are to reap their potential to make a positive impact on the lives of the most vulnerable and powerless members of the community.
Coordination and Advocacy for Rural Elders (CARE): a model of rural case management with veterans
- Authors:
- RITCHIE Christine, et al
- Journal article citation:
- Gerontologist, 42(3), June 2002, pp.399-405.
- Publisher:
- Oxford University Press
Describes a pilot initiative sponsored by the Veterans Health Administration (VHA) to improve the health and community tenure of frail older veterans living in rural counties 50-100 miles from two host VHA medical centers. Problems identified for each patient, included risk, social needs, pain, and needs related to disability. As a result of initial assessment, two thirds of CARE (Coordination and Advocacy for Rural Elders) participants received referral/linkage to formal services, more than half to medical providers.
Having a say: disabled children and effective partnership in decision making; section 1; the report
- Author:
- RUSSELL Philippa
- Publisher:
- Council for Disabled Children
- Publication year:
- 1998
- Pagination:
- 93p.,bibliog.
- Place of publication:
- London
Builds on issues raised at a seminar held in 1996 looking at giving disabled children a voice in the services they receive. Considers a range of practice examples and policy initiatives, relevant literature and personal experiences of the wider membership of the Council for Disabled Children. Includes chapters on: obtaining a user's perspective on assessment; consulting the children; styles of communication (including play and multimedia); working with disabled children from minority ethnic groups; advocacy, self advocacy and representation; mutual support between disabled children; using quality circles; an educational perspective on listening to disabled children; the children's perspective on partnership with pupils; creating a positive learning environment; issues for health services; the legal framework for determining consent; sharing information; access to information and confidentiality; disabled children living away from home; involving users in research and consultation; and practical approaches to consulting disabled children on service development and review.
Accounting for disability: customer feedback or citizen complaints?
- Authors:
- PILGRIM David, TODHUNTER Colin, PEARSON Maggie
- Journal article citation:
- Disability and Society, 12(1), February 1997, pp.3-15.
- Publisher:
- Taylor and Francis
Summarise the findings of a study of the views and experiences of adults with acquired physical impairments, when involved taking open-ended accounts from respondents in order to elicit their concerns and experiences. The article focuses on two aspects of data from the study: views about health and social services; and those about citizenship. The paper also situates the role and status of personal accounts of disability within the health and social policy context of recent years, which has been characterised by both consumerism and an intensification in the activities of the disability movement.