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Case report: behavioural intervention to increase oral food consumption in an adult with multiple disability and gastrostomy tube supplementation
- Authors:
- RANDALL John, MASALSKY Christopher J., LUISELLI James K.
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(1), March 2002, pp.5-13.
- Publisher:
- Taylor and Francis
The authors describe effective behavioural intervention with a 24-year-old man who had multiple disability, reduced food consumption, and gastrostomy tube supplementation. Intervention was implemented in a community-based habilitation setting and included the manipulation of social contingencies during meals and gradual fading of gastrostomy tube feedings. Before intervention, the man was fed by care providers, ate a limited food quantity, and was underweight. During intervention, he fed himself independently, had increased oral consumption, and gained weight. At conclusion of the study, gastrostomy tube feedings had been eliminated. All improvements were maintained at 3- and 6-month follow-up assessments.
Services for young people with chronic disorders in their transition from childhood to adult life
- Editors:
- KURTZ Zarrina, HOPKINS Anthony
- Publisher:
- Royal College of Physicians
- Publication year:
- 1996
- Pagination:
- 179p.,bibliogs.
- Place of publication:
- London
Looks at what happens to young people with chronic illness or disability as they make the transition from paediatric to adult services. Uses as examples conditions such as cystic fibrosis, epilepsy and diabetes. The need for multidisciplinary involvement is stressed as is the need to base actions on the wishes and the special needs of the young person. Includes guidelines for good practice in the transfer between services.
Relationships in chronic illness and disability
- Authors:
- LYONS Renee F., et al
- Publisher:
- Sage
- Publication year:
- 1995
- Pagination:
- 206p.,bibliog.
- Place of publication:
- London
Explores the interpersonal issues that arise when relationships evolve under the challenges of chronic illness. Provides a sensitive yet practical examination of three interactive relationship-illness processes: relationship change, supports and stressors, and relationship-focused coping. Interventions for nurturing close relationships under these difficult circumstances as well as issues of theory and method are discussed.
Inclusive integration: how whole person care can work for adults with disabilities
- Author:
- BROADBRIDGE Angela
- Publisher:
- Institute for Public Policy Research
- Publication year:
- 2014
- Pagination:
- 36
- Place of publication:
- Manchester
This report focusses on meeting the needs of working-age disabled adults as health and social care services are increasing integrated. It provides an empirical evidence base to demonstrate how whole person care (which is about making the connections between physical health, mental health and social care services) can be used to effectively meet these needs. The report also draws on the findings of a focus group with 12 disabled adults and carers on desired outcomes from the integration of health and social care services. Interviews with social care and voluntary sector professionals, commissioners and local authority policy to see if they are willing to include working-age disabled adults' needs in plans for future integration. The report looks at how working-age disabled adults have different needs and outcomes from older people and identifies the health inequalities they face in day-to-day life. Ten dimensions of health inequality are identified including housing, employment, financial security and quality of life. The report makes seven recommendations to inform the service response, including: taking a long term view of managing long-term conditions, viewing whole person care as a 10-year journey with matched by stable funding; debates on funding gap in social care should give consideration to the needs of working-age disabled adults; shifting resources from case management to community coordinated care to support prevention and providing a single point of contact for health and social care needs; service integration should take place across a much wider range of services to meet the needs of disabled people. (Edited publisher abstract)