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Social exclusion of people with marked communication impairment following stroke
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2004
- Pagination:
- 4p.
- Place of publication:
- York
Aphasia is a communication impairment that commonly follows stroke. It affects people's ability to talk, understand, read and write. Some are so profoundly affected that any form of communication is minimal. Aphasia seems poorly understood and relatively unrecognised, perhaps because it is invisible; people with aphasia describe being overlooked. The experience of those with profound communication difficulties has never been documented before, partly because of methodological difficulties. People with severe aphasia had little access to employment, educational, training or leisure opportunities. Many were long-term recipients of a wide range of statutory and voluntary care services. Health, social and residential care workers did not have training or information about aphasia, and did not know how to support fragile communication. Health and social care services often failed to address important issues, such as employment, or financial concerns, and there was little connection and communication between the various agencies. People with severe aphasia were often excluded from the benefits of health, social care, residential and nursing services because information and instructions were inaccessible, activities inappropriate or unachievable, and there was continuous communication breakdown in interactions. For these people, services became 'hard to reach'. Service providers, family and friends may have unintentionally excluded people with severe aphasia by using idiosyncratic, unmonitored communication strategies. People with aphasia were talked about, patronised, teased and given orders. Particularly in residential and nursing care settings, people with severe aphasia were in danger of losing their identity as staff often knew very little about them and didn't know how to find out. Maintaining friendships and social contacts was difficult for people living with severe aphasia, resulting in isolation and boredom. Relatives described experiencing similar restrictions. People with severe aphasia mostly exercised little choice and control in their day-to-day lives. The researchers conclude that social exclusion is a common, though not inevitable, experience for people with aphasia.Training and support for communication are urgently needed for carers and service providers.
The politics of disability and access: the Sydney 2000 Games experience
- Author:
- DARCY Simon
- Journal article citation:
- Disability and Society, 18(6), October 2003, pp.737-757.
- Publisher:
- Taylor and Francis
The article examines disability and access issues surrounding the Sydney 2000 Olympic and Paralympic Games. Central to this is an examination of the involvement of the Australian community of people with disabilities [1] within the Games. The Sydney Paralympic Games, in particular, was seen as a possible watershed event for developing accessible infrastructure, and raising awareness of disability and access issues. This paper draws on the official documents of the Games, newspaper accounts and disability organisation reports. The article first examines the major bodies charged with organising the Games, and the planning processes used to incorporate disability and access issues. It then examines a range of critical issues and their relationships with the disability community. Finally, the article provides an analysis of any likely legacies that the 2000 Games may have for Sydney's community of people with disabilities.
Inclusive projects: a guide to best on preparing and delivering project briefs to secure access
- Author:
- DISABLED PERSONS TRANSPORT ADVISORY COMMITTEE
- Publisher:
- Disabled Persons Transport Advisory Committee
- Publication year:
- 2003
- Pagination:
- 88p.
- Place of publication:
- London
This guide offers best practice advice on how all participants in the development process can contribute to the delivery of a high quality inclusive environment that provides access to all members of society, including disabled people. the guide: explains the meaning of inclusive environments and conveys the social, legal and commercial benefits; describes the typical stages of the development process; highlights the significant role that ‘Project Briefs’ play in defining the access requirements of a project at every stage; underlines the importance of proactively (rather than through expectation) converting the project briefs into inclusive environments; explains the pivotal role that the ‘Access Champion’ plays in the project briefing and development processes; and explains the roles that the other key participants play in the project briefing and development processes. The guide also provides: best practice guidance on writing project briefs for inclusive environments; best practice guidance on converting the project briefs into inclusive environments; guidance on identifying and appointing a suitable Access Champion; real life examples of common problems and the reasons for them; and a glossary of key terms.
Disability, citizenship and community care: a case for welfare rights?
- Author:
- RUMMERY Kirstein
- Publisher:
- Ashgate
- Publication year:
- 2001
- Pagination:
- 201p.,bibliog.
- Place of publication:
- Aldershot
This book develops the theory of social citizenship in a way that is relevant to current analyses of the future of the welfare state. It examines the role community care policy and practice plays in shaping disabled people's citizenship in the UK, providing compelling evidence of the ways in which the welfare state can either support, or act as a barrier to disabled people's social participation. The author lays out a challenge to the current relationship between disabled people and the welfare state.
Whose voices? Representing the claims of older disabled people under New Labour
- Author:
- PRIESTLEY Mark
- Journal article citation:
- Policy and Politics, 30(3), July 2002, pp.361-372.
- Publisher:
- Policy Press
This article highlights some significant similarities and differences in the social claims made by groups representing older people and disabled people in policy debates under New Labour. Using recent policy examples, the analysis focuses on the claims being made by older and disabled people and the discourses, representations and strategies used to make them. The article suggests that there are considerable areas of common ground on which political alliances and common voice could be built, but there is also evidence of a tactical or discursive distancing between the two groups. These difficulties are interpreted with reference to the centrality of independence and paid employment within policy debates under New Labour.