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The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers
- Authors:
- DAVIS E., et al
- Journal article citation:
- Child: Care, Health and Development, 36(1), January 2010, pp.63-73.
- Publisher:
- Wiley
Although caring for a child with cerebral palsy (CP) can impact on the caregivers’ quality of life (QOL) this has yet to be adequately examined. The aims of this study were to explore the QOL of mothers and fathers of children with CP aged 3–18 years, and examine whether the impact of caring for a child with CP changes from childhood to adolescence. A qualitative study was conducted utilising a grounded theory framework. 24 mothers and 13 fathers of children and adolescents with CP and with varying levels of impairment participated in semi-structured interviews about their QOL. The transcripts were analysed to identify issues affecting parental QOL. Results revealed there were no differences in parental QOL among subgroups - mothers and fathers, age groups, GMFCS levels. Parental QOL ranged across a wide spectrum. Caring for a child with CP affects a parent's physical well-being, social well-being, freedom and independence, family well-being and financial stability. Parents indicated that they often feel unsupported by the services they access. The authors conclude that caring for a child with CP can both positively and negatively impact on a parent's life. If parental concerns and determinants of QOL are considered in overall programme planning and service delivery for children and their families, both parents and children benefit.
Personalisation briefing: implications for occupational therapists in social care
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2010
- Pagination:
- 5p.
- Place of publication:
- London
This briefing examines the implications of the personalisation agenda for occupational therapists. Personalisation for occupational therapists in social care means: understanding and embracing the social model of disability; providing choice, control and a person-centred approach to assessment/review and delivery of support and services. A number of brief case studies illustrate the ways in which occupational therapists can support personalisation.
Adult community statistics: 1st April 2009-31st March 2010
- Author:
- NORTHERN IRELAND. Department of Health, Social Services and Public Safety
- Publisher:
- Northern Ireland. Department of Health, Social Services and Public Safety
- Publication year:
- 2010
- Pagination:
- 77p., tables
- Place of publication:
- Belfast
This statistical report presents information on activity for all Programmes of Care for adults, gathered from HSC Trusts via the annual and quarterly statistical returns. Statistical tables are presented in 6 sections. All Programmes of Care, Elderly Care, Mental Health, Learning Disability, Physical and Sensory Disability, and Primary Health and Adult Community.
Coping with bullying in Australian schools: how children with disabilities experience support from friends, parents and teachers
- Authors:
- BOURKE Susannah, BURGMAN Imelda
- Journal article citation:
- Disability and Society, 25(3), 2010, pp.359-371.
- Publisher:
- Taylor and Francis
This phenomenological study explores how children with disabilities experienced support when they were bullied at school. Qualitative interviews with 10 children, aged 8–10 years, were analysed. The children had a range of disabilities, including physical, visual and hearing impairments. The four themes that emerged were: (1) bullying experiences; (2) coping with bullying; (3) importance of friends; (4) adult responses to bullying. The implications of the contributions to this study for bullying research specific to the lives of children with disabilities are discussed, such as providing educational and health professionals with a knowledge of the support that children with disabilities draw on when they experience bullying.
Mind the step: an estimation of housing need among wheelchair users in England
- Authors:
- JOSEPH Glen, et al
- Publisher:
- Habinteg Housing Association
- Publication year:
- 2010
- Pagination:
- 60p., bibliog.
- Place of publication:
- London
This research report focuses on the need to provide homes that are fully wheelchair accessible. Using secondary data analysis and a review of existing literature the research provides: estimates of unmet housing need for wheelchair users; figures on the availability of wheelchair standard homes; a method for estimating unmet housing need and an indicative requirement for new wheelchair user homes at local authority level; the context of national policy and arrangements for regional and local strategic planning; identifies particular groups of people requiring wheelchair standard homes; and considers how local authorities and housing providers can make effective
use of existing wheelchair standard homes and increase the supply of accessible properties. The authors conclude with 9 recommendations, including continuing HCA funding at rate of 7,850 new wheelchair standard homes per year and setting up Local Authority Accessible Housing Registers.
Jointly funded care package
- Author:
- EVERINGTON Shanta
- Journal article citation:
- Disability, Pregnancy and Parenthood International, 68, Spring 2010, pp.6-7.
- Publisher:
- National Centre for Disabled Parents
Charlotte Foulkes, a single parent with arthritis living in London, talks about her experience of social services needs assessments from both adult, and children and families teams. As a disabled parent with a one-year old daughter she has been assessed by both these teams but with mixed results. She describes the consultation process, the delays, the stress, manner and accuracy of some assessments and the way in which she was bounced between services. After being turned down for support by adult services, she contacted Disabled Parents Network and complained. Eventually, the adult team got the children and families team involved which provided a much better experience of assessment with the outcome of a jointly funded direct payment package. Charlotte’s advice to other disabled parents seeking support from social services is not to be afraid of making a complaint; in her case she believes it was the only way that things moved forward.
Spouses of persons with spinal cord injury: impact and coping
- Authors:
- BEAUREGARD Line, NOREAU Luc
- Journal article citation:
- British Journal of Social Work, 40(6), September 2010, pp.1945-1959.
- Publisher:
- Oxford University Press
The objective of this study is to gain a better understanding of the impact of spinal cord injury (SCI) on spouses. Twenty-four spouses (18 women and 6 men) of persons with SCI were interviewed individually using broad, open-ended questions prompting the respondents to describe the impact of the partner’s disability on their life. Analysing the interviews revealed that the impact of SCI is focused primarily on three main areas: leisure, domestic tasks and family responsibilities, and sexuality. Spouses apply several strategies to overcome the difficulties they encounter, such as setting aside time for hobbies without the spouse, hiring staff to reduce the increased task load, reshuffling roles to coincide with the capabilities of the person with the spinal cord injury, and maintaining open, honest communication with one's spouse on the topic of sexuality. The article concludes that these techniques, implemented and proven by these spouses, can be used as courses of action for clinical practitioners who work with spouses of people with disabilities in order to help them achieve a healthy balance in their life.
Explaining the potential contribution of telecare to the support, protection and quality of life of people with differing needs
- Author:
- KERR Brian
- Journal article citation:
- Journal of Assistive Technologies, 4(3), September 2010, pp.35-39.
- Publisher:
- Emerald
The national Telecare Development Programme for Scotland was launched in 2006. Training and raising awareness are key issues for this programme. This article describes four practice and training guides published in 2010 by the Telecare Development Programme designed to promote the effective and ethical use of telecare for people with differing needs. The four guides are: Telecare and Learning Disability; Telecare and Dementia; Telecare and Physical Disability; and Telecare and Sensory Impairment. This article summarises the background to this initiative and the content of the guides. Several issues, such as the focus on specialist areas of need, the generic content and the apparent demand for this kind of publication, are discussed. The article concludes with some ideas for further publications, and reflection on the potential for converting these texts into an e-learning resource.
Treating depression in disabled, low-income elderly: a conceptual model and recommendations for care
- Authors:
- AREAN Patricia A., et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 25(8), August 2010, pp.765-769.
- Publisher:
- Wiley
Ten percent of older people in the United States live at or below the poverty line, and the treatment of depression within this group is complicated by several factors, where poor access to resources, disability, and mild cognitive impairment are the main factors that moderate treatment effects. Interventions that not only address the depressive syndrome but also manage social adversity are needed to help this patient population recover from depression. This paper presents a literature review of correlates of depression in late life. In the review the authors propose a treatment model that combines case management to address social adversity with problem solving treatment to address the depressive syndrome. The case of a male patient is outlined – living in poverty, depressed, and physically disabled. The authors’ illustrate how the combination of case management and problem solving treatment can work together to ameliorate depression. In conclusion, the paper suggests that the combination of age, disability, and social adversity complicates the management and treatment of depression. Case management and problem solving treatment are interventions that work synergistically to overcome depression and manage social problems.
Adapting for a lifetime: the key role of home improvement agencies in adaptations delivery
- Author:
- RAMSAY Malcolm
- Publisher:
- Foundations
- Publication year:
- 2010
- Pagination:
- 44p., bibliog.
- Place of publication:
- Glossop
In Autumn 2007, Foundations, the national body for home improvement agencies, was commissioned to carry out research examining the options for the future delivery of home improvement agency services. This document is one of the resulting reports, and it concerns the role of home improvement agencies in delivering major adaptations. This report examines the effect of recent changes to the Disabled Facilities Grant programme, drawing on research carried out within the home improvement agency sector. It looks at the challenges presented by the complexity of the process, the funding shortages and the lack of partnership working. It describes how home improvement agencies can help local authorities get the most out of DFG budgets and sets out examples of innovation and good practice in delivering major adaptations. It also spells out how adaptations can move from a provider-led to a client-led process. The report concludes by making recommendations for the future development of home improvement agencies in relation to delivering major adaptations.