Search results for ‘Subject term:"physical disabilities"’ Sort:
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Disability in Europe
- Author:
- GEORGE Mike
- Journal article citation:
- Community Care, 26.9.91, 1991, pp.26-27.
- Publisher:
- Reed Business Information
Looks at how Europe is addressing disability and the implications of 1992.
When work and satisfaction with life do not go hand in hand: health barriers and personal resources in the participation of people with chronic physical disabilities
- Authors:
- van CAMPEN Cretien, CARDOL Mieke
- Journal article citation:
- Social Science and Medicine, 69(1), July 2009, pp.56-60.
- Publisher:
- Elsevier
People with chronic physical disabilities participate less in both paid and voluntary work and are less satisfied with their lives than people without health problems. Governments and scientists have suggested that participation in employment is the main road to well-being. National survey data was on the participation in work and satisfaction with life was analysed, comparing people with a chronic illness and a physical disability (n = 603) to people with a chronic illness but without a physical disability (n = 1199) and the general population (n = 6128) in the Netherlands. The results show that the relationship between happiness and work is different for people with a chronic illness and a physical disability, as compared to the other two populations. Fewer people with a chronic illness and disability were categorized as ‘satisfied people with work’ (i.e. participating in work and satisfied with their life), while most people belonged to a group of ‘satisfied people without work’ and, surprisingly, not to the expected group of ‘dissatisfied people without work’. In order to explain this exceptional distribution the authors modelled satisfied participation in work as an outcome of a balance between personal resources and barriers. By means of discriminant regression analysis, the severity of motor disability was identified as the main barrier, and education level and age, as the main resource factors that distinguish between ‘satisfied people with work’ and others among the group of people with a chronic illness and a physical disability.
Affective responses to social comparison: a study among disabled individuals
- Authors:
- YBEMA Jan F., BUUNK Bram P.
- Journal article citation:
- British Journal of Social Psychology, 34(3), September 1995, pp.279-292.
- Publisher:
- British Psychological Society
Examines the effects of social comparison among 112 individuals receiving payments under the Disablement Insurance Act in the Netherlands.
Beware the English situation
- Author:
- HATCHETT Will
- Journal article citation:
- Community Care, 7.5.92, 1992, pp.15-17.
- Publisher:
- Reed Business Information
Argues that the Dutch disability benefits system is moving in a 'Thatcherite' direction, and looks at the highly-developed advocacy movement for physically handicapped people.
Rhythmic coordination of hand and foot in children with Developmental Coordination Disorder
- Authors:
- VOLMAN M. J. M., LAROY M. E., JONGMANS M. J.
- Journal article citation:
- Child: Care, Health and Development, 32(6), November 2006, pp.693-702.
- Publisher:
- Wiley
Children with Developmental Coordination Disorder (DCD) have difficulties producing stable rhythmic bimanual coordination patterns in comparison with age-related peers. Rhythmic coordination of non-homologous limbs (e.g. hand and foot) is even more difficult to perform because of mechanical differences between the limbs. The aim of the present study is to investigate the stability of hand–foot coordination patterns of children with DCD. Ten children with DCD (mean age 7.0 years, SD 1.1 years) and 16 control children (mean age 7.4 years, SD 1.3 years) participated in the study. They were asked to perform in-phase or anti-phase tapping movements in three different interlimb coordination combinations: (1) hand–hand (homologous), (2) hand–foot same body side (ipsilateral), and (3) hand–foot different body side (contralateral). Coordination stability was measured by the variability of the relative phase between the limbs under a 'steady state' (preferred) frequency condition, and by the critical frequency (i.e. the point at which loss of pattern stability was observed) in a condition in which the movement frequency was 'scaled' up (only anti-phase tapping). Coordination patterns of children in the DCD group were less stable in all three limb combinations compared with controls. Further, hand–foot coordination patterns were less stable than hand–hand coordination patterns. With regard to hand–foot coordination, ipsilateral patterns were equally stable compared with contralateral patterns in the in-phase task, but less stable in the anti-phase task. No differential effects were found between the DCD and control groups across the different limb combinations, except for steady-state anti-phase coordination in the ipsilateral limb condition. This effect was due to a relatively good performance of the control children in this condition in comparison with the other limb combination conditions. Children with DCD have difficulties producing stable rhythmic hand–foot coordination patterns compared with control children.
The empowerment of marginals: strategic paradoxes
- Authors:
- van HOUTEN Douwe, JACOBS Gaby
- Journal article citation:
- Disability and Society, 20(6), October 2005, pp.641-654.
- Publisher:
- Taylor and Francis
This article is about the disability movement in the Netherlands and its strategies for empowerment of disabled people. Only since the end of 2003 has the Netherlands enjoyed antidiscrimination legislation for disabled people. But, how important actually is legislation for the empowerment of disabled people? To answer this question, the authors take a closer look at social movements and their involvement in empowerment and active citizenship. We criticise the disregard of differences and care in notions of active citizenship and propose instead the idea of a ‘varied society’ based on the notions of diverse and ‘careful citizenship’. One of the main arguments is that empowerment strategies necessary to create this kind of society are above all bottom-up strategies. However, the highly organised disability movement in the Netherlands is confronted with strategic paradoxes that have ‘depowering’ consequences. Based on these paradoxes, five recommendations for the disability movement in the Netherlands are presented.
Assessment of family needs in children with physical disabilities: development of a family needs inventory
- Authors:
- ALSEM M.W., et al
- Journal article citation:
- Child: Care, Health and Development, 40(4), 2014, pp.498-506.
- Publisher:
- Wiley
Background: Valid tools to assess family needs for children with physical disabilities are needed to help tune paediatric rehabilitation care processes to individual needs of these families. To create such a family needs inventory, needs of families of children with a physical disability (age 0–18 years) were identified. We examined differences in the number and type of needs listed by families when asked for by means of an interview compared with using an inventory. Methods:Forty-nine families of children with a wide variety of physical disabilities (mean age 7.7 years; SD 4.6) participated in semi-structured interviews, focusing on family needs. They also checked an inventory of 99 items (based on a previously conducted literature review), regarding their family needs. In addition, individual interviews with healthcare professionals, and panel meetings with healthcare professionals and parents were held to further identify relevant family needs for the inventory. Results:The individual parent and healthcare professional interviews raised 41 needs that were not included in the original inventory of 99 items. Moreover, the panel meetings raised a further 49 needs. After restructuring and reformulating several items, a 187-item Family Needs Inventory – Paediatric Rehabilitation (FNI-PR) was created. The parent interviews revealed significantly less family needs (mean number of needs = 10.8; SD = 6.0) compared with using the inventory (mean number of needs = 31.7; SD = 19.7) (P < 0.0001). Most expressed family needs were related to both general and specific information concerning the child's development and treatment, aids and information about legislation and to rules relating to compensation of costs. Conclusion:Based on responses of parents and healthcare professionals the FNI-PR has been developed, a comprehensive inventory for family needs that can be used in paediatric rehabilitation. An inventory checked by parents resulted in more family needs than a single open-ended question. The inventory may facilitate the implementation of family-centred care. (Publisher abstract)
Measuring sustained interaction in adults with deafblindness and multiple disabilities: development of an observational coding system
- Authors:
- Janssen Marleen J., et al
- Journal article citation:
- British Journal of Visual Impairment, 32(2), 2014, pp.68-76.
- Publisher:
- Sage
Sustained interaction with other people is of crucial importance for persons with deafblindness and multiple disabilities. This article introduces a relatively time-efficient observational coding system to measure sustained interaction directly from video recordings using only two observation categories: turns and interaction breakdowns. Sustained interaction is defined as a sequence of at least three turns between two interaction partners. An interaction breakdown means that a sequence is not being continued, but is broken off by one of the partners. This article also presents the results of a first study applying the coding system to videos of five adults with deafblindness and multiple disabilities and their caregivers. The system seems well applicable and provides supporting evidence regarding inter-observer reliability. The system can stimulate further research and intervention to increase sustained interaction. (Publisher abstract)
Continuation of caregiving among partners who give total care to spouses with multiple sclerosis
- Authors:
- BOEIJE Hennie R., DUIJNSTEE Mia S.H., GRYPDONCK Maria H.F.
- Journal article citation:
- Health and Social Care in the Community, 11(3), May 2003, pp.242-252.
- Publisher:
- Wiley
Addresses the total care phase in which spouses give direct and ongoing personal care to their partners with multiple sclerosis (MS). The dyadic nature of caregiving is stressed by examining the roles which both spouses play in establishing a commitment that results in the continuation of caregiving. For this purpose, 17 couples facing MS were selected in the Netherlands and Belgium. Ten females and 7 males were disabled, all living with partners who provided a full range of care. Both partners were interviewed separately about their motivation to give care, dependency on help, the continuation of caregiving and their relationship. The analysis consisted of fragmenting and connecting the data and involved close reading and constant comparison. The findings support previous studies: continuation of caregiving is the result of an interchange between the partners. The commitment established can be expressed in terms of inevitability, shared misfortune, reciprocity and the desire to prevent admission to a nursing home. Three aspects appear to contribute to the creation of commitment and the ensuing continuation of caregiving: marital loyalty, the arbitrariness of the disease, and its serious nature. For community care it is important to consider the negotiations between partners and the impact of caregiving on their relationship.
Who said dialogue conversations are easy? The communication between communication vulnerable people and health‐care professionals: a qualitative study
- Authors:
- STANS Steffy E.A., et al
- Journal article citation:
- Health Expectations, 21(5), 2018, pp.848-857. Online only
- Publisher:
- Wiley
Objective: To gain insight into how communication vulnerable people and health‐care professionals experience the communication in dialogue conversations, and how they adjust their conversation using augmentative and alternative communication (AAC) or other communication strategies. Methods: Communication vulnerable clients and health‐care professionals in a long‐term care institution were observed during a dialogue conversation (n = 11) and subsequently interviewed (n = 22) about their experiences with the conversation. The clients had various communication difficulties due to different underlying aetiologies, such as acquired brain injury or learning disorder. Results from the observations and interviews were analysed using conventional content analysis.Results: Seven key themes emerged regarding the experiences of clients and professionals: clients blame themselves for miscommunications; the relevance of both parties preparing the conversation; a quiet and familiar environment benefitting communication; giving clients enough time; the importance and complexity of nonverbal communication; the need to tailor communication to the client; prejudices and inexperience regarding AAC. The observations showed that some professionals had difficulties using appropriate communication strategies and all professionals relied mostly on verbal or nonverbal communication strategies. Conclusion: Professionals were aware of the importance of preparation, sufficient time, a suitable environment and considering nonverbal communication in dialogue conversations. However, they struggled with adequate use of communication strategies, such as verbal communication and AAC. There is a lack of knowledge about AAC, and professionals and clients need to be informed about the potential of AAC and how this can help them achieve equal participation in dialogue conversations in addition to other communication strategies. (Publisher abstract)