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Shaping quality of life with nursing assistance. a grounded theory approach to nursing care for people with physical disabilities and interactions with carers in long-term care
- Authors:
- HELBIG Roman, METZING Sabine, LATTECK Anne-Dorte
- Journal article citation:
- Journal of Long-Term Care, January 2022, pp.1-14. Online only
- Publisher:
- King's College London
- Place of publication:
- London
Context: Although the number of people with physical disabilities who need nursing support is increasing, there is a lack of empirical knowledge about how they experience necessary care support. This knowledge is a prerequisite for enabling self-determination in the provision of care and for providing care based on needs and requirements. People with physical disabilities live in residential institutions and their own homes with the support of care services, and they are dependent on permanent nursing assistance. Objective: This qualitative grounded theory study describes the importance that people with physical disabilities ascribe to the provision of care and how they organise their cooperation with caregivers. Methods: Twenty-seven problem-centred interviews with people who had a permanent physical disability and a need for care were analysed using the grounded theory approach. Findings: People with physical disabilities and a need for care want to enhance their quality of life with assistance. Quality of life is influenced by their wishes regarding assistance, acceptance of the physical disability, (previous) experience with assistance and the possibility of actively influencing the implementation of necessary assistance. The development and maintenance of a friendly relationship with professional carers represent a strategy for achieving quality of life. Limitations: This study focuses on people with physical disabilities who receive care from a professional service. Questions about the influence on family carers remain unanswered. Implications: For successful social participation, people with physical disabilities should be supported by nursing professionals to identify and express their priorities and needs. (Edited publisher abstract)
Access to specialised victim support services for women with disabilities who have experienced violence. Comparative Research Report: Austria, Germany, Iceland and United Kingdom
- Authors:
- WOODIN Sarah, SHAH Sonali
- Publisher:
- University of Leeds. Centre for Disability Studies
- Publication year:
- 2014
- Pagination:
- 59
- Place of publication:
- Leeds
This comparative report presents the results of research into violence against women with disabilities for the project 'Access to specialised victim support services for women with disabilities who have experienced violence', which was funded by the EU Daphne III programme. It is based on research which took place in Austria, Germany, Iceland and United Kingdom between 2013 and 2014 and involved 187 women with disabilities (106 women in focus groups and 81 women in individual interviews). The research included women with mobility and sensory impairments, women with intellectual impairments, women with mental health conditions and women with multiple impairments. Specialised service providers assisting women who have experienced violence also took part in this study (602 responses to an online survey and 54 individual interviews with representatives from services). Research findings are discussed in the following areas: perceptions and understanding of violence; experiences of violence and support over the life course; women's knowledge about their rights; knowledge about use of services; experience of barriers; helpful aspects of support. Suggestions for improvement and good practice are also included. The report highlights the need for support services that recognise the type and extent of violence against disabled women need to be developed, and for both mainstream and specialised strategies to be pursued. (Edited publisher abstract)