Search results for ‘Subject term:"physical disabilities"’ Sort:
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Personal assistance for adults (19-64) with physical impairments
- Authors:
- MAYO-WILSON Evan, MONTGOMERY Paul, DENNIS Jane
- Publisher:
- Campbell Collaboration
- Publication year:
- 2008
- Pagination:
- 36p., bibliog.
- Place of publication:
- Oslo
This systematic review aimed to assesses the effectiveness of personal assistance for adults with physical impairments, and the impacts of personal assistance on others, compared to other interventions. Adults with physical impairments living in the community who require assistance to perform tasks of daily living and participate in normal activities due to permanent impairments were included. Electronic databases were searched from 1980 to June 2005; reference lists were checked; 345 experts, organisations, government bodies and charities were contacted in an attempt to locate relevant research. One randomised controlled trial involving 817 participants compared personal assistance versus usual care met the selection criteria. Findings showed that whilst personal assistance was generally preferred over other services, some people prefer other models of care. Whilst paid assistance probably substitutes for informal care and may cost government more than alternatives, the total costs to recipients and society are currently unknown. Further studies are required to determine which models of personal assistance are most effective and efficient for particular people.
The views of adults with neurodegenerative diseases on end-of-life care: a metasynthesis
- Authors:
- REGAN Laurence, et al
- Journal article citation:
- Aging and Mental Health, 23(2), 2019, pp.149-157.
- Publisher:
- Taylor and Francis
Objective: Improving end-of-life care for people with neurodegenerative diseases is seen as a clinical priority. In order to do this, it is important to take into account the views expressed by people with these conditions on their experiences of this care. The purpose of this review was to provide a thematic synthesis of the views of adults with neurodegenerative diseases on end-of-life care. Methods: After a systematic search, 13 articles were included and thematic synthesis was used to collate and interpret findings. Results: Four analytical themes were identified; (1) Importance of autonomy and control; (2) Informed decision-making and the role of healthcare professionals; (3) Contextual factors in decision-making; (4) The pitfalls of care. Conclusion: Participants’ views were framed by the context of their lives and experience of their illness and these shaped their engagement with end-of-life care. Given the varying disease trajectories, care needs to be individualised and needs-based, implementing palliative care in a timely way to prevent crises and loss of autonomy. (Edited publisher abstract)