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Taking on and taking over: choice and control for physically disabled young adults
- Authors:
- MITCHELL Wendy, et al
- Publisher:
- NIHR School for Social Care Research
- Publication year:
- 2015
- Pagination:
- 4
- Place of publication:
- London
Summarises the findings of a study on approaches to supporting physically disabled young adults to achieve their preferred levels of control over care and support arrangements. The study took place between July 2012 and January 2014 and involved semi-structured interviews with young adults, parents and social care professionals. It examined physically disabled young adults experiences of managing their care and support arrangements and explored how they can be better supported. Key findings and practice implications are included. While welcoming the opportunities afforded by personalised approaches within adult social care, almost all the young adults described feeling daunted by the associated responsibilities, with managing personal assistants/carers consistently identified as the most difficult aspect of having a Direct Payment. Young adults found information from statutory services was typically targeted at other audiences, for example, older people and only a minority believed transition planning/support services had played a significant role in preparing them for taking on a Personal Budget. Social workers with more experience of working with young adults identified specific issues that need to be accommodated including: young adults’ relative lack of life skills and experience; young adults’ preferences regarding parental involvement; and addressing parents’ support needs. (Edited publisher abstract)
CASP-19 special section: how does chronic disease status affect CASP quality of life at older ages? examining the WHO ICF disability domains as mediators of this relationship
- Authors:
- SEXTON E., et al
- Journal article citation:
- Aging and Mental Health, 19(7), 2015, pp.622-633.
- Publisher:
- Taylor and Francis
Objectives: The effect of chronic disease status on quality of life (QoL) has been well established. However, less is known about how chronic diseases affect QoL. This article examines impairment in three domains of the WHO International Classification of Functioning, Health and Disability (ICF) – body function, activity and participation, as well as affective well-being, – as potential mediators of the relationship between chronic disease and QoL. Method: A cross-sectional sample (n = 4961) of the general Irish community-dwelling population aged 50+ years was obtained from the Irish Longitudinal Study of Ageing (TILDA). The CASP measure of QoL was examined as two dimensions – control/autonomy and self-realisation/pleasure. Structural equation modelling was used to test the direct and indirect effects of chronic disease on QoL, via variables capturing body function, activity, participation and positive affect. Results: A factor analysis showed that indicators of body function and activity loaded onto a single overall physical impairment factor. This physical impairment factor fully mediated the effect of chronic disease on positive affect and QoL. The total effect of chronic disease on control/autonomy (−0.160) was primarily composed of an indirect effect via physical impairment (−0.86), and via physical impairment and positive affect (−0.45). The decomposition of effects on self-realisation/pleasure was similar, although the direct effect of physical impairment was weaker. The model fitted the data well (RMSEA = 0.02, TLI = 0.96, CFI = 0.96). Conclusion: Chronic disease affects QoL through increased deficits in physical body function and activity. This overall physical impairment affects QoL both directly and indirectly via reduced positive affect. (Publisher abstract)
Profiling the population of disabled children and young people in out-of-home care in Northern Ireland
- Authors:
- KELLY Berni, DOWLING Sandra, WINTER Karen
- Publishers:
- Queens University Belfast, Northern Ireland. Office of the First Minister and Deputy First Minister
- Publication year:
- 2015
- Pagination:
- 99
- Place of publication:
- Belfast
This report presents an analysis of the profile of the population of disabled looked after children (LAC) and young people in NI across two distinct groups: 323 disabled fully LAC (living away from home on a full time basis) and 164 disabled children and young people looked after due to short breaks. It is the second phase of a wider study on the characteristics and experiences of disabled children and young people looked after in Northern Ireland. The report examines the demographic characteristics of the population; family background; looked after experience, such as reason for entry to care and placement type; safeguarding; education; access to mental health services and transitional support. It finds that the total of 323 disabled fully LAC represents 11.2% of the total LAC population, showing that disabled children and young people continue to be overrepresented in the LAC population (7% of the general child population in NI being disabled). Those who are fully LAC will have come into care because they cannot remain in their birth family home, often due to child protection concerns. Short break LAC are engaged with short breaks for family support reasons as well as a social and developmental opportunities for the child (although there are safeguarding issues for some). (Edited publisher abstract)
Higher risk of violence exposure in men and women with physical or sensory disabilities results from a public health survey
- Authors:
- OLOFSSON Niclas, LINDQVIST Kent, DANIELSSON Ingela
- Journal article citation:
- Journal of Interpersonal Violence, 30(10), 2015, pp.1671-1686.
- Publisher:
- Sage
The World Health Organization has declared that violence is a global public health problem. The prevalence of violence exposure among adults with intellectual and unspecific disabilities has been demonstrated in several studies, whereas only a few articles on people with sensory disabilities have been published. The aim of this study was to investigate the prevalence and risk for exposure to physical violence, psychological offence, or threats of violence in people with physical and/or sensory disabilities, compared with people with no such disabilities, controlling for socioeconomic data. Data from a public health survey were analysed. A nationally representative sample of women and men aged 16 to 84 years had answered a questionnaire. In the present study, the whole sample, comprised of 25,461 women and 21,545 men, was used. Women with auditory disabilities were generally more often violence exposed than non-disabled women, whereas men with physical disabilities were more often violence exposed than non-impaired men. Some age groups among both women and men with visual disabilities had higher prevalence rates than women and men without disabilities. The adjusted odds ratios (ORs) were significantly higher among the auditory impairment group for exposure to physical and psychological violence among women. Men with physical disabilities had raised odds ratios for physical violence and psychological violence compared with the non-disabled group. Both men and women with a physical or sensory disability showed higher odds of being exposed to violence than men and women without a disability. The results indicated that socioeconomic situation, smoking, and hazardous drinking strengthened the association between impairment and violence. (Edited publisher abstract)
An exploratory study of a computer-assisted abuse awareness and safety planning program for men with disabilities: the Men's Safer and Stronger Program
- Authors:
- OSCHWALD Mary, et al
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 14(2), 2015, pp.88-109.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Interpersonal violence (IPV) is a serious and often unrecognized problem for men with disabilities (MWD). However, abuse awareness programs and outcome measures have not been systematically evaluated in MWD. This article reports findings from an exploratory study (n = 31) of the Safer and Stronger Program for Men with Disabilities (Men's SSP), an audio computer-assisted self-interview (ACASI) abuse awareness programme. The study aimed to examine the sensitivity of the Men's SSP ACASI and its embedded self-reflective items for measuring IPV experience of MWD, and to collect preliminary data on the reliability of a battery of safety- and abuse-related measures when completed by MWD. Most men participating in the study reported multiple disabilities, the most frequent being intellectual or cognitive disabilities, mobility or physical disabilities, and mental health disabilities. Preliminary findings suggest the programme is sensitive toward detecting abuse and it allows MWD to privately and independently self-identify IPV experiences. Preliminary psychometric data on a battery of abuse and safety awareness outcome measures suggest that they are reliable in this population. (Publisher abstract)
Development and evaluation of The KIT: Keeping It Together™ for Youth (the 'Youth KIT') to assist youth with disabilities in managing information
- Authors:
- FREEMAN M., et al
- Journal article citation:
- Child: Care, Health and Development, 41(2), 2015, pp.222-229.
- Publisher:
- Wiley
Background: This article presents findings from the development and evaluation of The KIT: Keeping It Together™ for Youth (the ‘Youth KIT’). The Youth KIT is a resource intended to assist youth with disabilities during their teenage years and during the transition to adulthood to give information to others about themselves, get from others about themselves, and organize their own information to the best of their ability. Methods: Thirty-six youth between the ages of 12 and 25 with physical and developmental disabilities were active participants in the development of the Youth KIT and partnered with a multidisciplinary team to conduct the qualitative evaluation. Focus groups and individual interviews were used in three phases of evaluation. Results: The results of qualitative content analysis found the Youth KIT to be useful for a variety of youth in different contexts. The themes that emerged about the utility and impact of the Youth KIT were: (1) self-discovery for youth; and (2) the importance of the ‘fit’ between youth and mentors to support youth as they started to use the Youth KIT. Conclusion: Clinical implications for healthcare providers working with youth during the transition to adulthood include recognition that discussions about adult goals should be a continuous dialogue throughout adolescence rather than a ‘special’ conversation occurring at the time of discharge from paediatric services. (Publisher abstract)