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You're on the waiting list: families waiting for respite care services: fourth interim report
- Authors:
- ROBINSON Carol, STALKER Kirsten
- Publisher:
- Norah Fry Research Centre
- Publication year:
- 1991
- Pagination:
- 37p.
- Place of publication:
- Bristol
Many families experience serious problems finding suitable services which can cater for both their child's complex health needs and their own need for significant levels of support. This paper highlights which services families were using and the difficulties of obtaining a coherent and consistent package of support. Regulatory concerns relating to the piece-meal provision of services and use of children's hospices are raised along with recommendations for improving policy and practice.
New directions: suggestions for improving take-up in short term breaks
- Authors:
- ROBINSON Carol, STALKER Kirsten
- Publisher:
- HMSO
- Publication year:
- 1992
- Pagination:
- 27p.,bibliog.
- Place of publication:
- London
Looks at the reasons why some families with disabled children do not use services offering breaks (respite care) and makes suggestions for developing attractive and accessible alternative services.
Observing for quality : quality in day care services for under fives
- Authors:
- WESTON Clive, MINKES John, ROBINSON Carol
- Publisher:
- Stationery Office
- Publication year:
- 1996
- Pagination:
- 29p.
- Place of publication:
- London
This monograph is designed to assess quality in day services to disabled children aged under five.
Quality counts: a review of quality assurance in family based short term care
- Authors:
- NEWITT Bernie, JONES Vicky, ROBINSON Carol
- Publisher:
- Shared Care Network,|Norah Fry Research Centre
- Publication year:
- 1997
- Pagination:
- 41p.
- Place of publication:
- Bristol
Short breaks (respite care) provide invaluable support for disabled children and their families. They offer opportunities for children to become more independent, widen their horizons and have new experiences. It gives them the chance to form real friendships outside their family. At the same time their families get a break from caring and a chance to recharge their batteries.
A survey of family based respite care services
- Authors:
- ORLIK Christopher, ROBINSON Carol, RUSSELL Oliver
- Publishers:
- National Association for Family Based Respite Care, University of Bristol. Norah Fry Research Centre
- Publication year:
- 1991
- Pagination:
- 41p.,tables,bibliog.
- Place of publication:
- Bristol
Report bringing together information on 265 schemes which offer short term respite care to people with learning difficulties or physical disabilities.
Assessing quality in services to disabled children under the Children Act 1989: final report to the Department of Health
- Authors:
- ROBINSON Carol, WESTON Clive, MINKES John
- Publisher:
- Norah Fry Research Centre
- Publication year:
- 1994
- Pagination:
- 200p.
- Place of publication:
- Bristol
Report from an action research project, monitoring the implementation of the Children Act 1989 in services to disabled children, with the aim of assisting practitioners to develop services which comply with the regulations accompanying the Act.
Befriending: more than just finding friends?
- Authors:
- HESLOP Pauline, ROBINSON Carol
- Publisher:
- Shared Care Network
- Publication year:
- 2004
- Pagination:
- 108p..bibliog.
- Place of publication:
- Bristol
There is a growing trend for the development of befriending services and increased government recognition that the provision of short break services (of which befriending is one of the range of services) is essential in supporting families of disabled people. Despite this there is a paucity of research evidence about the effectiveness of such services. It is these three factors which have prompted this research, which focuses on the views and experiences of 15 workers at seven befriending schemes for children and/or adults with learning difficulties in England; 34 people with learning difficulties using the schemes; 42 befrienders attached to them; and 46 parent carers of children/young people linked to any of the seven schemes.
Stronger links: a guide to good practice for children's family-based short-term care services
- Editors:
- JONES Vicky, LENEHAN Christine, ROBINSON Carol
- Publisher:
- Policy Press
- Publication year:
- 2000
- Pagination:
- 198p.,list of orgs.,bibliog.
- Place of publication:
- Bristol
- Edition:
- 2nd ed.
The second edition of this guide on good practice for family-based short-term care services for children has been updated and offers a legislative framework for each area in practice in addition to practical guidelines for implementing the legislation. Case studies and material used by existing schemes are included. This guide includes guidelines on all aspects of running a service, including publicity, recruitment, assessment, reviews, quality assurance and management issues.
Children's hospices: a lifeline for families?
- Authors:
- ROBINSON Carol, JACKSON Pat
- Publisher:
- National Children's Bureau
- Publication year:
- 1999
- Pagination:
- 94p.,tables,bibliog.
- Place of publication:
- London
Examines the role of children's hospices in the provision of care for disabled children who are medically frail and who require some element of nursing care. The majority of admissions in the study are short term to provide parents with a break. Looks at: the children who use hospices and what kind of care they receive; why families use the services, their views and experiences; and the impact of hospice care on professionals supporting them. Also examines how hospices are regulated. Illustrated throughout with case studies. Concludes with recommendations for future policy and good practice.
Stronger links: a guide to good practice for children's family based short-term care services
- Editors:
- JONES Vicky, LENEHAN Christine, ROBINSON Carol
- Publisher:
- Shared Care UK
- Publication year:
- 1997
- Pagination:
- 141p.,list of orgs.,bibliog.
- Place of publication:
- Bristol
Guide to good practice for short term care services for disabled children and their families. The guidance is based on the Children Act 1989 and includes sections on: recruiting carers; access to services; assessing the carers; assessing children and families; preparation; consulting children, parents and carers; matching and linking carers to children and families; reviewing and monitoring placements; reviewing the approval of carers; training and support for carers; quality assurance; and managing good practice. The 2nd edition, dated 2000, is also available.