Search results for ‘Subject term:"physical disabilities"’ Sort:
Results 1 - 3 of 3
Food for thought: effective support for families caring for a child who is tube fed
- Authors:
- TOWNSLEY Ruth, ROBINSON Carol
- Publisher:
- Norah Fry Research Centre
- Publication year:
- 2000
- Pagination:
- 163p.
- Place of publication:
- Bristol
Describes the practical, social and emotional impact of home enteral tube feeding on disabled children, their families and carers. Discusses the daily experiences of families and children coping with tube feeding; the involvement of non-parent carers and their training, guidance and insurance needs; and the support offered to families by health, education and social care professionals.
More than just a health issue: a review of current issues in the care of enterally-fed children living in the community
- Authors:
- TOWNSLEY Ruth, ROBINSON Carol
- Journal article citation:
- Health and Social Care in the Community, 7(3), April 1999, pp.216-224.
- Publisher:
- Wiley
This article reviews the literature on support for children who are tube fed and makes a case for more co-ordinated and effective support services for families who are tube feeding a child at home. It is argued that national guidance should be developed which clarifies the position of all non-parent carers and staff who are willing to administer enteral tube feeds. Such guidance should also ensure that enterally-fed children have the same rights to educational and social services as other children and that families are given the opportunity to make informed decisions about the implications of enteral feeding prior to it being established.
What rights for disabled children? Home enteral tube feeding in the community
- Authors:
- TOWNSLEY Ruth, ROBINSON Carol
- Journal article citation:
- Children and Society, 13(1), February 1999, pp.48-60.
- Publisher:
- Wiley
The growing number of disabled children who are tube fed at home has important implications both for families and professionals who support them. This article reports on the preliminary findings of a project which aims to assess the practical, social and emotional impact of home enteral tube feeding (HETF) on the lives of disabled children and their families. The evidence presented suggests that guidance and training on HETF for non-parent carers is both inadequate and inconsistent. Consequently access to education and social services may be restricted or even denied for disabled children on HETF as a direct result of their perceived need for nursing or medical care.