University of Birmingham. Health Services Management Centre
Publication year:
2010
Pagination:
59p., bibliog.
Place of publication:
Birmingham
... for change and transformation with regard to the personalisation of education, employment, health, transport and housing services for families with disabled children. It discusses the evolution towards self-directed support, personal and individual budgets and direct payments for childrens services. These have already been active within adult services, where service users are no longer passive recipients of pre-purchased services (“professional gift model”) but have moved towards being active citizens with the right to shape and control their own support. Four main sections entitled: an unfair start; what families need; personalisation; and personalised pathway, subjects such as the complexity of and eligibility for the current “unfair” system, safeguarding and child protection issues, resilience, self-esteem,
Part of a series from a two-day think tank at the UK’s University of Birmingham Health Service Management Centre in 2010, this paper proposes local and national policy developments, from the “bottom up”, in the field of personalised services for disabled children and their families. It details evidence, in the form of quotes from families with whom the author has previously worked, and ideas for change and transformation with regard to the personalisation of education, employment, health, transport and housing services for families with disabled children. It discusses the evolution towards self-directed support, personal and individual budgets and direct payments for childrens services. These have already been active within adult services, where service users are no longer passive recipients of pre-purchased services (“professional gift model”) but have moved towards being active citizens with the right to shape and control their own support. Four main sections entitled: an unfair start; what families need; personalisation; and personalised pathway, subjects such as the complexity of and eligibility for the current “unfair” system, safeguarding and child protection issues, resilience, self-esteem, sustainability, community participation and the social and economic impact of change to a more empathetic and relational approach are explored.
Subject terms:
personalisation, young people, children, disabilities, families;
... break. Without personalisation, this solution would not have been possible and the family would have been reliant on traditional services. Social workers from the team talk about their new ways of working and about the benefits it brings to both them and the people who use their services.
This film looks at the work of a personal budget team in Hull. It shows how the team works with people who use services to provide personalised care, focusing on one family where a mother is having difficulty coping with one of her adult sons who has learning disabilities. The opportunity to spend time at a garden centre transforms the life of her son, but also gives his mother a much-needed break. Without personalisation, this solution would not have been possible and the family would have been reliant on traditional services. Social workers from the team talk about their new ways of working and about the benefits it brings to both them and the people who use their services.
Subject terms:
learning disabilities, personal budgets, personalisation, social workers, adult social care, adults, families;
This briefing examines the implications of the personalisation agenda for people with autistic spectrum conditions. The areas of assessment, the person-centred planning process, transition planning for young people, employing personal assistants and safeguarding are discussed.
This briefing examines the implications of the personalisation agenda for people with autistic spectrum conditions. The areas of assessment, the person-centred planning process, transition planning for young people, employing personal assistants and safeguarding are discussed.
The film is introduced by the manager of a residential care home for older people with dementia who talks about the importance of understanding the individual, their interests, background and personal history. The benefits of this approach are illustrated by Marjorie’s story. Marjorie has been supported and encouraged to take up her interest in music again and it has brought pleasure to her life. There is an emphasis on relationship-based, individual person-centred care, rather than a functional approach to basic personal care. This is important to maintaining dignity and well-being. The latter half of the film looks at the family and carer support that the service also provides as part of person-centred care.
The film is introduced by the manager of a residential care home for older people with dementia who talks about the importance of understanding the individual, their interests, background and personal history. The benefits of this approach are illustrated by Marjorie’s story. Marjorie has been supported and encouraged to take up her interest in music again and it has brought pleasure to her life. There is an emphasis on relationship-based, individual person-centred care, rather than a functional approach to basic personal care. This is important to maintaining dignity and well-being. The latter half of the film looks at the family and carer support that the service also provides as part of person-centred care.
Subject terms:
older people, personalisation, person-centred care, carers, care homes, dementia, families;
This commentary aims to support Carol Walker and Cally Ward's paper by directing readers to work which could guide their practice with older people with learning disabilities and ageing family carers. It reviews selected initiatives to support older people with learning disabilities and their family carers over the past decade. Examples from the author's personal contacts are also used to illustrate the discussion.
(Edited publisher abstract)
This commentary aims to support Carol Walker and Cally Ward's paper by directing readers to work which could guide their practice with older people with learning disabilities and ageing family carers. It reviews selected initiatives to support older people with learning disabilities and their family carers over the past decade. Examples from the author's personal contacts are also used to illustrate the discussion.
(Edited publisher abstract)
Subject terms:
learning disabilities, older people, ageing, carers, families, community care, personalisation;
... and practice and the caring relationship is undermined in the short and long term. Evidence on the extension of personalisation indicates that it presents very considerable challenges for this group of families. More information is needed on this growing population. More preventative support is needed to sustain the caring relationship while the family is living together, to support families to plan
(Edited publisher abstract)
This article explores the new challenge posed by the first generations of people with learning disabilities who are now living into older age in significant numbers. Most are living with family carers, who are themselves ageing. This represents a major transition in people's lives and one to which services must respond if a normal life event is not to be turned into a crisis. The article draws on the work of the authors for over a decade in this field. It examines the implications for both the older people themselves and for the ageing family carers with whom the majority live and of current government policy in social care and welfare benefits for this very vulnerable group. Learning disabled people are likely to experience the age discrimination common in much older people provision and practice and the caring relationship is undermined in the short and long term. Evidence on the extension of personalisation indicates that it presents very considerable challenges for this group of families. More information is needed on this growing population. More preventative support is needed to sustain the caring relationship while the family is living together, to support families to plan for the future, and to provide support when the caring relationship breaks down.
(Edited publisher abstract)
Subject terms:
older people, ageing, personalisation, community care, families, carers, learning disabilities;
The Better Lives programme was set up in response to concern about how families of people with learning disabilities were, or more commonly were not, becoming involved in and benefiting from the personalisation process. Specifically, the aim was to understand how to engage, inform and support families to achieve real personal outcomes beyond just a personal budget. The programme involved working with groups of families in 3 locations (Suffolk, Calderdale and Wolverhampton) over a period of 18 months. Despite each of the local authorities having people or departments responsible for engaging with and informing families, very few families who took part in the programme had previously been aware of the personalisation agenda and those few knew very little. The programme involved a variety of methods
The Better Lives programme was set up in response to concern about how families of people with learning disabilities were, or more commonly were not, becoming involved in and benefiting from the personalisation process. Specifically, the aim was to understand how to engage, inform and support families to achieve real personal outcomes beyond just a personal budget. The programme involved working with groups of families in 3 locations (Suffolk, Calderdale and Wolverhampton) over a period of 18 months. Despite each of the local authorities having people or departments responsible for engaging with and informing families, very few families who took part in the programme had previously been aware of the personalisation agenda and those few knew very little. The programme involved a variety of methods which included information sharing, planning, engaging with statutory services, and delivering real outcomes for the participating families. This document summarises the suggested learning outcomes from the programme for: working with families; local authorities; and support providers.
Subject terms:
learning disabilities, local authorities, outcomes, personal budgets, personalisation, families, good practice;
This Citizens Advice Bureau briefing gives an introduction into how universal credit is structured. It shows how extra support for disabled people is going to be incorporated into universal credit, and presents a series of tables outlining who should gain, and who should loose from universal credit compared to support in the current means tested system. Groups covered by universal credit include: adults in the support group; adults in the work related activity group working less than 16 hours; adults with significant impairment but found fit for work under work capability assessment; families with children receiving higher rate care or severely visually impaired children; and families of children in receipt of disability living allowance except those receiving higher rate of care component and severely visually impaired children.
This Citizens Advice Bureau briefing gives an introduction into how universal credit is structured. It shows how extra support for disabled people is going to be incorporated into universal credit, and presents a series of tables outlining who should gain, and who should loose from universal credit compared to support in the current means tested system. Groups covered by universal credit include: adults in the support group; adults in the work related activity group working less than 16 hours; adults with significant impairment but found fit for work under work capability assessment; families with children receiving higher rate care or severely visually impaired children; and families of children in receipt of disability living allowance except those receiving higher rate of care component and severely visually impaired children.
Increasingly public services are waking up to the need to let families with disabled children lead; not abandoning them or burdening them, but building the right kind of supportive relationships that let families control their own destiny with respectful support. This paper explores family leadership, highlighting some key steps to encourage its growth and outlining some practical ways in which progress towards family leadership is being made. Family leadership is based on the premise that all family members are of equal value and that family dynamics change as children move from one age and stage to another. This has relevance for both the disabled child and their non-disabled siblings. The importance of family leadership during transition stages and the model of Personalised Transition that is being developed across the Yorkshire and Humber area are discussed. Family leadership is dependent on getting support in 5 areas: positivity and a can-do approach; peer support and positive role models; information; simplified administration systems; influencing strategy and commissioning. The financial implications of family support are discussed.
Increasingly public services are waking up to the need to let families with disabled children lead; not abandoning them or burdening them, but building the right kind of supportive relationships that let families control their own destiny with respectful support. This paper explores family leadership, highlighting some key steps to encourage its growth and outlining some practical ways in which progress towards family leadership is being made. Family leadership is based on the premise that all family members are of equal value and that family dynamics change as children move from one age and stage to another. This has relevance for both the disabled child and their non-disabled siblings. The importance of family leadership during transition stages and the model of Personalised Transition that is being developed across the Yorkshire and Humber area are discussed. Family leadership is dependent on getting support in 5 areas: positivity and a can-do approach; peer support and positive role models; information; simplified administration systems; influencing strategy and commissioning. The financial implications of family support are discussed.
Subject terms:
personalisation, service transitions, disabilities, families, empowerment, family members, family support;
This video introduces a young woman, Hannah, 22, who has Angelman Syndrome and lives with her family in a rural setting. Hannah’s mum, dad and sister provide care and support for her in the home because she doesn’t like being with people who she doesn’t know. Personal budgets have made a big difference as the family have negotiated with Essex County Council to pay Hannah’s sister to provide support. Hannah’s sister, Chrissi, explains in detail how the personal budget integrated fund has worked for them. She also talks about how the family have ensured that, despite Hannah’s extremely limited communication, her self-directed support really is a reflection of her own needs. Hannah’s mother emphasises how personal budgets have allowed the whole family to function better and have prevented Hannah from going into residential care. The film ends with Hannah and her sister going on holiday.
This video introduces a young woman, Hannah, 22, who has Angelman Syndrome and lives with her family in a rural setting. Hannah’s mum, dad and sister provide care and support for her in the home because she doesn’t like being with people who she doesn’t know. Personal budgets have made a big difference as the family have negotiated with Essex County Council to pay Hannah’s sister to provide support. Hannah’s sister, Chrissi, explains in detail how the personal budget integrated fund has worked for them. She also talks about how the family have ensured that, despite Hannah’s extremely limited communication, her self-directed support really is a reflection of her own needs. Hannah’s mother emphasises how personal budgets have allowed the whole family to function better and have prevented Hannah from going into residential care. The film ends with Hannah and her sister going on holiday.
Subject terms:
personal budgets, personalisation, self-directed support, severe learning disabilities, carers, choice, families, empowerment;