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Commentary on “Enabling access to information by people with learning disabilities”
- Author:
- WALMSLEY Jan
- Journal article citation:
- Tizard Learning Disability Review, 18(1), 2013, pp.16-19.
- Publisher:
- Emerald
The author offers a commentary on Oldreive and Waight's article (Ibid p.5) on enabling access to information by people with learning disabilities. The article reflects on the issues raised by this paper, drawing on 25 years' experience and research and concludes that accessible information needs to be tailored to the individual and part of a wider approach to improving access. As the original paper states, formats for information provision need to be tailored to individual abilities and practitioners should not rely on “easy read”. The author notes that it is unlikely that any technology will replace support from skilled people and provides a reminder that translating information does not equate to inclusion.
How to write meaningful standards of care
- Author:
- MASON Elizabeth J,
- Publisher:
- Delmar
- Publication year:
- 1994
- Pagination:
- 311p.
- Place of publication:
- Florence, KY
- Edition:
- 3rd ed.
Health care professionals with administrative and managerial responsibilities will appreciate this book's proven, step-by-step methods for writing effective standards. This book reflects rapid changes in the delivery of health care and has been expanded to include standards for all clinical groups. Focuses on health care units that can be computerized and used to individualize care
Patient carers and service users vision
- Author:
- NATIONAL INFORMATION BOARD
- Publisher:
- National Information Board
- Publication year:
- 2017
- Pagination:
- 7
- Place of publication:
- Leeds
This document sets out what the Government’s and national health and care organisations’ current portfolio of programmes will enable health and social care services to deliver for people in England through improved use of information technology. It describes what will be different as the national health and care organisations support local services to introduce the changes planned by the National Information Board. Patients, carers and service users should experience improvements to how health services use digital technology. These will include: being able to find online information and advice to help maintain fitness and wellbeing and prevent problems developing in the future; online support through NHS 111; being able to book and change GP appointments online and to access remote consultations through phone or video calls; allowing doctors and other health professionals to share patient information and coordinate care; quick access to diagnostic test results; using data from gene testing to develop treatments and services that will work for each individual. These changes and improvements are intended to provide a more personalised and better care and support people to take more control of, and responsibility for, their own health and wellbeing. (Edited publisher abstract)
Personalised health and care 2020: work stream 3 roadmap: make the quality of care transparent
- Author:
- NATIONAL INFORMATION BOARD
- Publisher:
- National Information Board
- Publication year:
- 2015
- Pagination:
- 6
- Place of publication:
- Leeds
Sets out a roadmap for the implementation of the Personalised Health and Care 2020 strategy, focusing on making comparative data publicly available in an easy to understand format to allow citizens to make informed choices about their health and care and professionals and organisations to compare the quality of their services against those offered by their peers. The paper examines in particular the development and potential of MyNHS website, including plans for new scorecards and development of existing ones. (Edited publisher abstract)
Personalised health and care 2020: work stream 1.1 roadmap: enable me to make the right health and care choices
- Author:
- NATIONAL INFORMATION BOARD
- Publication year:
- 2015
- Pagination:
- 14
- Place of publication:
- Leeds
Sets out a roadmap for the implementation of the Personalised Health and Care 2020 strategy, focusing on providing patients and the public with digital access to health and care information and transactions. The document highlights research findings on digital initiatives that may provide the highest level of cash-releasing savings and provides a brief synopsis of benefits from key digital programmes for health, prioritised by a blend of economic return, impact on citizens and wide, underpinning enabling. The report suggests that for social care, there is less evidence at a national level about the potential cost savings of different interventions given the different delivery model, although it is known from local examples that there are potentially very high efficiencies savings from moving towards online personal care assessment, planning and commission; and from utilising greater technology within the home to support personal care. Further work will be undertaken to consider where investment can best be targeted, based on a blended approach to prioritisation of the different digital programmes across health and social care. (Edited publisher abstract)
Personalised health and care 2020: work stream 5 roadmap: bring forward life-saving treatments and support innovation and growth
- Author:
- NATIONAL INFORMATION BOARD
- Publisher:
- National Information Board
- Publication year:
- 2015
- Pagination:
- 12
- Place of publication:
- Leeds
Sets out a roadmap for the implementation of the Personalised Health and Care 2020 strategy, focusing on bringing forward life-saving treatments and supporting innovation and growth. It lays out in detail who will perform, what action by when in order to deliver digital innovation in this area. Actions and programmes include: develop an industry strategy for digital health; agreed approach for international commercial opportunities; evolve the national tariff system to take account of digital health and data; nice guidance development programmes to take account of digital health and data; technology funds; test beds; and new towns introducing health-promoting design features into new housing developments. (Edited publisher abstract)
Personalised health and care 2020: work stream 2.2 roadmap: give care professional and carer access to all the data they need
- Author:
- NATIONAL INFORMATION BOARD
- Publisher:
- National Information Board
- Publication year:
- 2015
- Pagination:
- 15
- Place of publication:
- Leeds
Sets out a roadmap for the implementation of the Personalised Health and Care 2020 strategy, focusing on access to comprehensive data on outcomes and value of services. The document sets out a vision for the data needed by the NHS and social care, as developed through an initial round of engagement with a selection of arms-length bodies. It identifies potential data areas covering the whole of health and social care including, for instance, adult social care, child and adolescent mental health services, children, and mental health. For each area the document identifies the potential impact of having high quality data, current data available and key gaps. (Edited publisher abstract)
Personalised health and care 2020: work stream 8 roadmap: enabling information standards
- Author:
- NATIONAL INFORMATION BOARD
- Publisher:
- National Information Board
- Publication year:
- 2015
- Pagination:
- 20
- Place of publication:
- Leeds
Sets out a roadmap for the implementation of the Personalised Health and Care 2020 strategy, focusing on standards to enable both interoperability of information, and consistency of data for comparability and outlining the architecture for technical platforms to support services and deliver the commitments set out in the strategy. The document describes the overall ambition of this work stream, examines follow-on programmes, projects and tasks and provides estimated overall timescales. (Edited publisher abstract)
Social care practice with carers: what social care support is provided to family carers? What support to family carers want?
- Authors:
- MORIARTY Jo, MANTHORPE Jill
- Publisher:
- NIHR School for Social Care Research
- Publication year:
- 2014
- Pagination:
- 4
- Place of publication:
- London
... Set for Social Care (NMDS-SC) data on carers’ workers informed the research. Findings covered the areas of: commissioning of services; identifying and supporting carers; accessing information and advice; carers assessments; and personalisation. The results found that most social care support for carers is delivered through the voluntary sector, and carers’ centres and other carers’ organisations play a vital role in helping carers recognise their rights and rights to assessment. When carer assessments do take place, they are often incorporated into assessments of the person cared for. Family carers also experience difficulties in accessing information about available support. Carers had mixed views on the impact of personalisation, particularly direct payments. Although they could provide (Edited publisher abstract)
Joint declaration on post-diagnostic dementia care and support
- Authors:
- GREAT BRITAIN. Department of Health, et al
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2016
- Place of publication:
- London
A shared approach to improving the care and support for people with dementia, their families and carers receive following a diagnosis. The declaration sets out: a shared commitment to joint action across government, health, social care, the third sector and all other relevant partners; the ambition to deliver better quality post-diagnostic care; and the need to deliver integrated and effective services that meet the needs of people with dementia and their families and carers. (Edited publisher abstract)