The future of personalisation in health and social care in the light of the current social, economic and policy context is considered in this report. Funded by the Sue Ryder organisation, it drew on a review of existing research and policy development around personalisation in England, Scotland and Wales, a review of data on the use of personal budgets in health and social care in England, focus groups with care users and staff, and evidence of good practice in adult social services in selected areas (North East Lincolnshire Care Trust Plus, Herefordshire, Sutton, Essex, and the South Essex Coalition). The report explores the limitations of personal budgets as a tool for personalisation, the barriers to broader personalisation, and meeting the challenges of personalisation for those with complex needs. It concludes by presenting a series of recommendations for policy and practice, covering a more inclusive personal budgets agenda, a strategy for progression, recognition of the importance of housing, co-production and democracy in residential settings, social networks and a concept of 'just enough' support, staffing and providing services in a personalised way, personalisation at the end of life, and integration of health and care. It argues that to achieve the benefits of personalisation there must be a personalised approach, where everyone can choose the method of personalisation that suits them.
The future of personalisation in health and social care in the light of the current social, economic and policy context is considered in this report. Funded by the Sue Ryder organisation, it drew on a review of existing research and policy development around personalisation in England, Scotland and Wales, a review of data on the use of personal budgets in health and social care in England, focus groups with care users and staff, and evidence of good practice in adult social services in selected areas (North East Lincolnshire Care Trust Plus, Herefordshire, Sutton, Essex, and the South Essex Coalition). The report explores the limitations of personal budgets as a tool for personalisation, the barriers to broader personalisation, and meeting the challenges of personalisation for those with complex needs. It concludes by presenting a series of recommendations for policy and practice, covering a more inclusive personal budgets agenda, a strategy for progression, recognition of the importance of housing, co-production and democracy in residential settings, social networks and a concept of 'just enough' support, staffing and providing services in a personalised way, personalisation at the end of life, and integration of health and care. It argues that to achieve the benefits of personalisation there must be a personalised approach, where everyone can choose the method of personalisation that suits them.
Subject terms:
personal budgets, personalisation, social care provision, adult social care, health care;
This report investigates the elements of care that are important to individuals at the end of their life. It argues that for too long the focus has been where people want to die rather than how. It delves deeper into the components of care that people feel are important, and explores more fully what each of these means. There were three phases to this piece of research. The first involved in-depth interviews with five experts in the fields of palliative and end of life care, to get a sense of how, in their professional opinion, place and preference are currently shaping services for people approaching the end of life, the appropriateness of this, and the capacity of different care settings to deliver peoples’ preferences. The second phase involved commissioning a survey of 2,038 members of the public, in which people were asked to prioritise aspects associated with a good death (things like being free from pain, being surrounded by loved ones, and having dignity and respect) the things that would be important to them personally during their final days of life. To understand how these preferences map on to different locations, people were then asked how well they felt the same list of features were delivered across four different end of life care settings – home, hospital, hospice and nursing or residential care home. The resulting analysis was able to compare peoples’ answers to each of these questions in relation to their previous experience of spending time with a family member or friend during their final days of life, and where this occurred. Finally, a focus group was hosted, with nine bereaved relatives of people who had died in different locations (in hospital, in a hospice, or at home), to explore how their expectations of dying in different places – both positive and negative – were met, and where the reality differed from their expectations.
(Original abstract)
This report investigates the elements of care that are important to individuals at the end of their life. It argues that for too long the focus has been where people want to die rather than how. It delves deeper into the components of care that people feel are important, and explores more fully what each of these means. There were three phases to this piece of research. The first involved in-depth interviews with five experts in the fields of palliative and end of life care, to get a sense of how, in their professional opinion, place and preference are currently shaping services for people approaching the end of life, the appropriateness of this, and the capacity of different care settings to deliver peoples’ preferences. The second phase involved commissioning a survey of 2,038 members of the public, in which people were asked to prioritise aspects associated with a good death (things like being free from pain, being surrounded by loved ones, and having dignity and respect) the things that would be important to them personally during their final days of life. To understand how these preferences map on to different locations, people were then asked how well they felt the same list of features were delivered across four different end of life care settings – home, hospital, hospice and nursing or residential care home. The resulting analysis was able to compare peoples’ answers to each of these questions in relation to their previous experience of spending time with a family member or friend during their final days of life, and where this occurred. Finally, a focus group was hosted, with nine bereaved relatives of people who had died in different locations (in hospital, in a hospice, or at home), to explore how their expectations of dying in different places – both positive and negative – were met, and where the reality differed from their expectations.
(Original abstract)
Subject terms:
older people, end of life care, user views, surveys, focus groups, personalisation, choice;
... of the patient and their families. Early diagnosis, a high level of personalisation and ongoing seamless support are crucial to delivering a good service and reducing inequalities in end of life care.
Report developed for Sue Ryder by Demos exploring the quality of the patient experience of end of life care services, and what can be done to improve this journey through the different fields of health and social care from the patient's perspective. Many people receive care of varying quality, often characterised by delays, a lack of information and insufficient consideration given to the wishes of the patient and their families. Early diagnosis, a high level of personalisation and ongoing seamless support are crucial to delivering a good service and reducing inequalities in end of life care.
Subject terms:
end of life care, personalisation, death, dying, integrated services, care pathways, palliative care;
The use and potential of prepaid cards in local authorities as a means of distributing and administering direct payments to service users was explored in this project. The report describes the policy background, including coalition government welfare and public service reforms, personalisation and personal budgets, integration, benefits, and budgetary cuts. It draws on research involving
The use and potential of prepaid cards in local authorities as a means of distributing and administering direct payments to service users was explored in this project. The report describes the policy background, including coalition government welfare and public service reforms, personalisation and personal budgets, integration, benefits, and budgetary cuts. It draws on research involving interviews, desk research, freedom of information requests to local authorities in England and Wales, focus groups with service users, expert workshops with local authority and charity representatives, and case studies illustrating how prepaid cards are used in different contexts in the UK and the United States. It discusses how prepaid cards are currently being used. It considers possible changes to the way in which people purchase, consume and interact with services and benefits, and how prepaid cards might be used in the future as a tool for the distribution of universal credit, to bring together personal budgets and welfare benefits, and in wider applications.
Subject terms:
information technology, local authorities, payments, personal budgets, personalisation, service users, universal credit, benefits, direct payments, government policy;