Search results for ‘Subject term:"parents with learning disabilities"’ Sort:
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Psychological well-being and social support for parents with intellectual disabilities: risk factors and interventions
- Authors:
- DARBYSHIRE Laura Valerie, KROESE Biza Stenfert
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 9(1), March 2012, pp.40-52.
- Publisher:
- Wiley
The pressure of becoming a parent for a person with intellectual disabilities (ID) may magnify the risks of social isolation and poor psychological well-being. This review examined the psychological well-being and social support among parents with ID, addressing three aims that explore the importance of these two factors in their lives. A search of electronic databases uncovered eight studies which met the inclusion criteria. Findings revealed that parents with ID experience poorer psychological well-being than the general parenting population and a relationship was found between psychological well-being and social support. Two of the intervention studies found evidence that by improving social support, psychological well-being was improved. The relationship between social support and parenting ability was supported by findings of a positive relationship between satisfaction with social support and positive maternal reactions. A number of recommendations for further research are suggested to more fully explore the relationship between psychological well-being and social support.
What are the experiences of professionals working with parents with learning disabilities? A meta-ethnography
- Authors:
- PYTLOWANA Agnieszka, KROESE Biza Stenfert
- Journal article citation:
- Tizard Learning Disability Review, 26(1), 2021, pp.14-27.
- Publisher:
- Emerald
Purpose: It has been recommended that social, health and other relevant professionals work collaboratively to support parents with learning disabilities (LD) and their children. A number of qualitative studies have investigated the experiences of professionals who work with parents with LD. A synthesis of these experiences has not as yet been produced, and therefore, the purpose of this paper is to review how professionals experience working with parents with LD to inform practice guidelines on how parents with LD can be supported most effectively. Design/methodology/approach: A systematic search took place using five databases and 15 peer-reviewed papers were identified based on the relevant inclusion and exclusion criteria. The quality of each included paper was systematically evaluated. Meta-ethnography was used to synthesise the qualitative data from the identified studies. Findings: The synthesis offered six themes: concerns about knowledge and experience, the importance of and difficulties with available support, the importance of and challenges with liaison with and between professionals, differences in power, conflicting priorities – parents or children?, the personal impact on professionals. Originality/value: The results are discussed in the context of previous research. Recommendations for future research and practice innovation are made. (Edited publisher abstract)
How do women with an intellectual disability experience the support of a Doula during their pregnancy, childbirth and after the birth of their child?
- Authors:
- McGARRY Alison, KROESE Biza Stenfert, COX Rachel
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 29(1), 2016, pp.21-33.
- Publisher:
- Wiley
Background: The aim of this study was to gain insight into the experiences of parents with an intellectual disability who received support from Doulas during pregnancy, birth and following the birth of their child. In addition, the experiences of the Doulas who provided the support were investigated. Materials and Methods: Four women with an intellectual disability who received Doula support were interviewed before and after the birth of their child. Three Doulas were interviewed after the birth about their experiences of supporting women with an intellectual disability. Results: Interview transcripts were analysed using Interpretive Phenomenological Analysis (IPA). Themes were identified from each interview, before an overall analysis of themes from each support phase was undertaken. Conclusions: Pre-natally, the Doula was considered helpful and a reliable source of information about pregnancy. Each mother perceived Doula support as a means of keeping her child in her care. Post-natally, mothers described a trusting relationship with their Doula, who enabled them to make informed choices. Doulas described how they adapted their work to meet the needs of parents with intellectual disability. Being involved in Child Protection procedures was perceived as stressful and challenging. (Edited publisher abstract)
Solicitors’ experiences of representing parents with intellectual disabilities in care proceedings: attitudes, influence and legal processes
- Authors:
- COX Rachel, KROESE Biza Stenfert, EVANS Roger
- Journal article citation:
- Disability and Society, 30(2), 2015, pp.284-298.
- Publisher:
- Taylor and Francis
This paper reports on an exploratory study of the role of solicitors acting for parents with intellectual disabilities (ID) in public law proceedings. The paper draws on in-depth interviews with 11 solicitors and a subsequent focus group in which the interview findings were presented and reflected on by six of the eleven participants. Two of the five themes that emerged will be discussed here. They are entitled ‘Attitudes and Influence’ and ‘Legal Processes’ and concern the attitudes and influence of those involved in assessing, supporting and representing parents with ID and the care proceedings processes encountered by parents with ID. (Publisher abstract)