Journal of Applied Research in Intellectual Disabilities, 35(1), 2022, pp.179-187.
Publisher:
Wiley
Background: Down syndrome is the most common genetic disorder associated with intellectual and developmental disabilities. Research to improve health care outcomes in Down syndrome lags significantly behind other disease categories. Among these reasons are funding, recruitment and availability of research studies being conducted. Methods: The researchers surveyed 228 parents of individuals with Down syndrome to understand their perceptions of research, study design, how they seek out information and topics they would like to see researched. Results: Parents with children 18 years and younger responded to the survey. Parents indicated their willingness to participate in research (72%), yet few have (36%). Parents identified barriers to participation, research they feel would help their child, and interests in seeing new therapies and drug studies. Conclusion: These findings identify recommendations and insights from parents on future research agendas, studies and recruitment strategies that may help researchers improve outcomes for individuals with Down syndrome.
(Edited publisher abstract)
Background: Down syndrome is the most common genetic disorder associated with intellectual and developmental disabilities. Research to improve health care outcomes in Down syndrome lags significantly behind other disease categories. Among these reasons are funding, recruitment and availability of research studies being conducted. Methods: The researchers surveyed 228 parents of individuals with Down syndrome to understand their perceptions of research, study design, how they seek out information and topics they would like to see researched. Results: Parents with children 18 years and younger responded to the survey. Parents indicated their willingness to participate in research (72%), yet few have (36%). Parents identified barriers to participation, research they feel would help their child, and interests in seeing new therapies and drug studies. Conclusion: These findings identify recommendations and insights from parents on future research agendas, studies and recruitment strategies that may help researchers improve outcomes for individuals with Down syndrome.
(Edited publisher abstract)
Journal of Social Work Practice, 27(1), 2013, pp.79-94.
Publisher:
Taylor and Francis
Place of publication:
Philadelphia, USA
Based on a qualitative analysis of a group of parents' perceived outcomes and experiences in a parent education program in Hong Kong, this paper discusses how a transformative approach provides a new frame of reference from which to explore the new directions of parent education. The research findings suggest that parent transformation can be achieved in numerous ways comprising consciousness
(Publisher abstract)
Based on a qualitative analysis of a group of parents' perceived outcomes and experiences in a parent education program in Hong Kong, this paper discusses how a transformative approach provides a new frame of reference from which to explore the new directions of parent education. The research findings suggest that parent transformation can be achieved in numerous ways comprising consciousness raising, growth facilitation, life integration, relationship enhancement, support generation and community building. The findings provide a knowledge base for an investigation of its applicability. They also offer reference materials to guide other parent education practitioners in applying the transformative approach in actual practice.
(Publisher abstract)
Subject terms:
parental skills training, parents, outcomes, user views;
Journal of Children's Services, 7(4), 2012, pp.285-302.
Publisher:
Emerald
... to take part. Findings revealed that the screening procedure was more labour intensive but attracted greater numbers, including many parents who might not otherwise have sought help and included many families from disadvantaged backgrounds. The referrals included those with more serious problems and a higher proportion engaged with the service. Recruitment rates were lower in the London site due
The Helping Children Achieve study is a randomised controlled trial designed to test the effectiveness of parenting interventions for children at risk of anti-social behaviour. This paper examined the challenges in recruitment to the HCA trial. The study is being conducted at two sites – an inner city London borough and a city in the South West of England. In total, 215 participants consented to take part. Findings revealed that the screening procedure was more labour intensive but attracted greater numbers, including many parents who might not otherwise have sought help and included many families from disadvantaged backgrounds. The referrals included those with more serious problems and a higher proportion engaged with the service. Recruitment rates were lower in the London site due to ineligibility and greater difficulty in accessing schools. Retention in the two areas was similar. The authors concluded that the study provided data on recruitment challenges and lessons learned that could help formulate future policy regarding service delivery.
The mental health problems of parents can negatively affect their whole family. The organisational and wider context may also influence the outcomes for all involved. The aims of this systematic review were: to develop a working definition of family-focused practice (FFP); identify the types of outcomes that are measured with a focus on service user experiences; and explore how well interventions
(Edited publisher abstract)
The mental health problems of parents can negatively affect their whole family. The organisational and wider context may also influence the outcomes for all involved. The aims of this systematic review were: to develop a working definition of family-focused practice (FFP); identify the types of outcomes that are measured with a focus on service user experiences; and explore how well interventions in the included studies fit with previously established components of FFP. A comprehensive literature search of 16 databases was conducted for peer-reviewed, primary research studies related to FFP published between 1998 and 2016. In total, 3731 articles were identified and screened by four reviewers. Of those, 40 articles met all of the inclusion criteria. The review focused on family outcomes and, consistent with previous reviews, there was a reasonable degree of consistency about the core components of FFP. An additional component, identified by this review, which was part of some interventions, was work to improve access to and engagement with community supports and services. The review concludes that there is a need for: an agreed definition of FFP; clearer links to relevant theories; a more consistent approach to measuring outcomes, including economic perspectives; and an increased strategic promotion of whole family approaches.
(Edited publisher abstract)
Subject terms:
mental health problems, parents, systematic reviews, family-centred approach, outcomes;
A systematic review and analysis of the empirical evidence through June 2010 on HIV disclosure to children 12 and under was conducted using methods validated by the Cochrane group. A total of 12 databases were searched for peer-reviewed articles and published abstracts on HIV disclosure to children 12 years old and under published between December 2008 and June 2010. Databases searched were PubMed, Embase, PsychINFO, Web of Science, CINAHL, Social Work Abstracts, African Index, LILACS, WHOLIS, WPRIM, IMSEAR, EBSCO. Fifteen articles focusing on caregiver disclosure (255 total) were analyzed using GradePro 3 software. Results suggest that there is evidence of health and future care planning benefit for HIV+ and healthy children (12 and under) of HIV+ caregivers if the caregiver discloses his/her HIV status to them. Children of the maturity of school age youth (e.g., beginning at 6 years and continuing through 12) can be told of their caregivers' HIV status, while younger children may be informed partially in an age-appropriate manner.
(Edited publisher abstract)
A systematic review and analysis of the empirical evidence through June 2010 on HIV disclosure to children 12 and under was conducted using methods validated by the Cochrane group. A total of 12 databases were searched for peer-reviewed articles and published abstracts on HIV disclosure to children 12 years old and under published between December 2008 and June 2010. Databases searched were PubMed, Embase, PsychINFO, Web of Science, CINAHL, Social Work Abstracts, African Index, LILACS, WHOLIS, WPRIM, IMSEAR, EBSCO. Fifteen articles focusing on caregiver disclosure (255 total) were analyzed using GradePro 3 software. Results suggest that there is evidence of health and future care planning benefit for HIV+ and healthy children (12 and under) of HIV+ caregivers if the caregiver discloses his/her HIV status to them. Children of the maturity of school age youth (e.g., beginning at 6 years and continuing through 12) can be told of their caregivers' HIV status, while younger children may be informed partially in an age-appropriate manner.
(Edited publisher abstract)
Subject terms:
HIV AIDS, disclosure, children, parents, outcomes;
British Journal of Social Work, 42(2), 2012, pp.227-244.
Publisher:
Oxford University Press
Most divorcing couples bring an array of disputed issues to divorce mediation. The aim of this study was to: examine the impact of their reaching agreement on at least one disputed issue on their subsequent co-parenting; and the contribution of select participant, relationship and mediation characteristics to the number of agreements they reached. The study participants were 96 divorcing parents
Most divorcing couples bring an array of disputed issues to divorce mediation. The aim of this study was to: examine the impact of their reaching agreement on at least one disputed issue on their subsequent co-parenting; and the contribution of select participant, relationship and mediation characteristics to the number of agreements they reached. The study participants were 96 divorcing parents referred to court mediation in Israel. The areas of dispute considered in the study were: whether to divorce; custody; visitation arrangements; child support; alimony; and division of assets. The participants were divided into 2 groups: 43 who reached agreement on at least 1 issue; and 53 who had not reached agreement on any. The findings showed that a measure of agreement reduced spousal hostility and tension, but did not affect their co-parenting behaviours. They also showed that the number of agreements was most strongly affected by the participants' perceptions of the mediation, followed by their tendency to negotiate and their having been referred to mediation on account of their dispute about whether or not to divorce. Young age and better financial status also contributed to the number of agreements. Implications for social work are discussed.
GORDON Michael, ANTSHEL Kevin M., LEWANDOWSKI Lawrence
Journal article citation:
Children and Youth Services Review, 34(1), January 2012, pp.213-217.
Publisher:
Elsevier
An understanding of the predictors of treatment outcomes can drive the development of more targeted clinic policies and procedures. This article presents data on what factors predict treatment outcomes in a large number of patients from a child and adolescent psychiatric clinic. Data was amassed for 3,200 consecutive referrals over a 6-year period to the clinic. Using Reliable Change Index (RCI) methodology, the children were divided into those who, between intake and discharge, improved, stayed the same, or got worse according to clinician-rated impairment. The analysis of variables that discriminated amongst the 3 groups included both child variables and parental factors. The findings showed that most predictors of improvement were related to parent variables, such as marital status, maternal anxiety, and ethnicity, while those associated with deterioration were tied to child status, such as extent of psychiatric comorbidity, history of placement in a self-contained classroom, and a prior trial of psychotropic medications. The implications of these findings for data-driven programme development, clinic management, treatment planning, and systems of care are discussed.
An understanding of the predictors of treatment outcomes can drive the development of more targeted clinic policies and procedures. This article presents data on what factors predict treatment outcomes in a large number of patients from a child and adolescent psychiatric clinic. Data was amassed for 3,200 consecutive referrals over a 6-year period to the clinic. Using Reliable Change Index (RCI) methodology, the children were divided into those who, between intake and discharge, improved, stayed the same, or got worse according to clinician-rated impairment. The analysis of variables that discriminated amongst the 3 groups included both child variables and parental factors. The findings showed that most predictors of improvement were related to parent variables, such as marital status, maternal anxiety, and ethnicity, while those associated with deterioration were tied to child status, such as extent of psychiatric comorbidity, history of placement in a self-contained classroom, and a prior trial of psychotropic medications. The implications of these findings for data-driven programme development, clinic management, treatment planning, and systems of care are discussed.
Subject terms:
outcomes, parents, young people, child and adolescent mental health services, children;
The Drug Strategy Delivery Commission (DSDC) is an independent commission, established by the Scottish Government in 2009 to monitor and assess whether Scotland's national drug strategy ‘The Road to Recovery’ is being successfully implemented and achieving its aims. This is the first report from the DSDC, reflecting its first year of operations. In 2010/11 DSDC met on 6 occasions as a full group. The report presents initial findings regarding the priority areas set for the first year and recommendations to improve impact in these areas. These areas are: children affected by parental substance misuse (CAPSM); care, treatment and recovery; and governance and accountability of the delivery system. The report includes information on the background and development of DSDC, and concludes by outlining DSDC plans for the second year of operation.
The Drug Strategy Delivery Commission (DSDC) is an independent commission, established by the Scottish Government in 2009 to monitor and assess whether Scotland's national drug strategy ‘The Road to Recovery’ is being successfully implemented and achieving its aims. This is the first report from the DSDC, reflecting its first year of operations. In 2010/11 DSDC met on 6 occasions as a full group. The report presents initial findings regarding the priority areas set for the first year and recommendations to improve impact in these areas. These areas are: children affected by parental substance misuse (CAPSM); care, treatment and recovery; and governance and accountability of the delivery system. The report includes information on the background and development of DSDC, and concludes by outlining DSDC plans for the second year of operation.
Subject terms:
intervention, outcomes, parents, substance misuse, government policy;
Journal of Child Sexual Abuse, 18(4), July 2010, pp.455-474.
Publisher:
Taylor and Francis
Place of publication:
Philadelphia, USA
... discusses the results, including factors leading to a pattern of individual work with children, limitations of individual work with children, factors leading to the inclusion of parents in therapeutic play, and limitations of including parents in therapeutic play, using case examples. The author concludes that more research is needed into the effects on outcomes of involving parents in children's therapy
This qualitative research investigated the work of a team of therapists who sometimes included non-offending parents in therapy sessions with sexually abused children. The study aimed to understand what factors influenced the degree and pattern of parental involvement and the effects that the various patterns of parental involvement had on the process and the outcomes of therapy. The article discusses the results, including factors leading to a pattern of individual work with children, limitations of individual work with children, factors leading to the inclusion of parents in therapeutic play, and limitations of including parents in therapeutic play, using case examples. The author concludes that more research is needed into the effects on outcomes of involving parents in children's therapy following sexual abuse.
Subject terms:
outcomes, parents, play therapy, child sexual abuse, children;