This report provides a snapshot of the experiences of parents of disabled children in order to highlight examples of good practice and identify possible areas of concern. The findings do not cover a representative sample, so cannot reflect the progress of the short breaks programme as a whole, but they provide us with real life examples of the way that impact can be made on the ground. Key to that experienced in pathfinder areas. Both pathfinder and non-pathfinder areas are creatively looking at challenges that parents experience. Parents report a particularly high level of satisfaction around parent participation and information.
This report provides a snapshot of the experiences of parents of disabled children in order to highlight examples of good practice and identify possible areas of concern. The findings do not cover a representative sample, so cannot reflect the progress of the short breaks programme as a whole, but they provide us with real life examples of the way that impact can be made on the ground. Key findings reveals that a balance remains between feelings of optimism based on experiences of good practice, and feelings of pessimism based on the slow pace of change and the fact that individual families are still not receiving services. There has been progress in short break provision in non-pathfinder areas over the last year and the parental experience of short breaks is now very similar to that experienced in pathfinder areas. Both pathfinder and non-pathfinder areas are creatively looking at challenges that parents experience. Parents report a particularly high level of satisfaction around parent participation and information.
Subject terms:
holidays, parents, short break care, children, disabilities, good practice;
Every Disabled Child Matters (EDCM) is the campaign to get rights and justice for every disabled child. During summer 2007, EDCM asked disabled children, young people, and their parents: "If you could change one thing for disabled children, young people, and their families, what would it be?"
Every Disabled Child Matters (EDCM) is the campaign to get rights and justice for every disabled child. During summer 2007, EDCM asked disabled children, young people, and their parents: "If you could change one thing for disabled children, young people, and their families, what would it be?"
Subject terms:
parents, rights, young people, attitudes, children, disabilities;
Every Disabled Child Matters (EDCM) is the campaign to get rights and justice for every disabled child. During summer 2007, EDCM asked disabled children, young people, and their parents: "If you could change one thing for disabled children, young people, and their families, what would it be?" This book lists the particular questions asked of parents and their answers.
Every Disabled Child Matters (EDCM) is the campaign to get rights and justice for every disabled child. During summer 2007, EDCM asked disabled children, young people, and their parents: "If you could change one thing for disabled children, young people, and their families, what would it be?" This book lists the particular questions asked of parents and their answers.
Subject terms:
parents, rights, young people, attitudes, children, disabilities;
Every Disabled Child Matters (EDCM) is the campaign to get rights and justice for every disabled child. During summer 2007, EDCM asked disabled children, young people, and their parents: "If you could change one thing for disabled children, young people, and their families, what would it be?" This book lists the particular questions asked of young people and their answers.
Every Disabled Child Matters (EDCM) is the campaign to get rights and justice for every disabled child. During summer 2007, EDCM asked disabled children, young people, and their parents: "If you could change one thing for disabled children, young people, and their families, what would it be?" This book lists the particular questions asked of young people and their answers.
Subject terms:
parents, rights, young people, attitudes, children, disabilities;
Every Disabled Child Matters (EDCM) is the campaign to get rights and justice for every disabled child. During summer 2007, EDCM asked disabled children, young people, and their parents: "If you could change one thing for disabled children, young people, and their families, what would it be?" This book lists the particular questions asked of each.
Every Disabled Child Matters (EDCM) is the campaign to get rights and justice for every disabled child. During summer 2007, EDCM asked disabled children, young people, and their parents: "If you could change one thing for disabled children, young people, and their families, what would it be?" This book lists the particular questions asked of each.
Subject terms:
parents, rights, young people, attitudes, children, disabilities;
The report analyses 20 Children and Young People’s Plans to show that: Three-quarters of local authorities failed to involve and consult with disabled children and their parents when drawing up their plans; Only a quarter of the plans included any level of analysis of the size and characteristics of the population of disabled children in the local authority; only 1 in 20 plans include any actions on how they are to provide childcare services for disabled children. Regulations require local authorities to consult children, young people and parents, and the guidance to local authorities has a specific focus on consulting with disabled children and young people. The lack of priority for childcare services for disabled children in the plans fails to reflect important new duties on local authorities
The report analyses 20 Children and Young People’s Plans to show that: Three-quarters of local authorities failed to involve and consult with disabled children and their parents when drawing up their plans; Only a quarter of the plans included any level of analysis of the size and characteristics of the population of disabled children in the local authority; only 1 in 20 plans include any actions on how they are to provide childcare services for disabled children. Regulations require local authorities to consult children, young people and parents, and the guidance to local authorities has a specific focus on consulting with disabled children and young people. The lack of priority for childcare services for disabled children in the plans fails to reflect important new duties on local authorities created by the Childcare Act 2006.
Subject terms:
local authorities, parents, young people, child care, care planning, children, disabilities;
... carers experiences of short breaks provision. Results found that more than half of those local authorities responding (58%) have cut spending on short breaks for families with disabled children since 2011/12. The average level of spend has fallen by 2%, but there were wide variation in changes to levels of spending on short breaks, with some increasing their average spend. Survey responses from parents
(Edited publisher abstract)
This report examines the impact of the current financial climate on the provision of short breaks for families with disabled children. The findings are based on the results of freedom of information requests received by 126 local authorities across England to track changes in levels of spending on short breaks between 2011/12 and 2015/16. Focus groups and surveys were also used to find out parent carers experiences of short breaks provision. Results found that more than half of those local authorities responding (58%) have cut spending on short breaks for families with disabled children since 2011/12. The average level of spend has fallen by 2%, but there were wide variation in changes to levels of spending on short breaks, with some increasing their average spend. Survey responses from parents and carers found that 56% agreed or strongly agreed that it is becoming more difficult for families with disabled children to access short breaks. Many parent carers said they accessed fewer short breaks than in the past due to service closure (24%), cuts in available hours (14%), and changes to eligibility criteria (11%). The report makes recommendations that Government should secure continued funding for short breaks through the spending review, that local authorities should be required to publish data on levels of short break provision in their areas, and that Government should clarify to local authorities, practitioners and parent carers the right of disabled children to a social care assessment.
(Edited publisher abstract)
Subject terms:
short break care, children, disabilities, local authorities, social care provision, parents, user views, expenditure, access to services, financing;
An interim report on a research project evaluating the impact of the Aiming High for Disabled Children short breaks programme on the lives of disabled children and their families. It covers: aims of the project; state of short breaks services in 2008; short breaks tracking 2008-9; information and transparency; assessment; participation and feedback. Findings indicate that evidence of good practice is emerging but there is still a long way to go before a consistent, sustainable service is available for all disabled children.
An interim report on a research project evaluating the impact of the Aiming High for Disabled Children short breaks programme on the lives of disabled children and their families. It covers: aims of the project; state of short breaks services in 2008; short breaks tracking 2008-9; information and transparency; assessment; participation and feedback. Findings indicate that evidence of good practice is emerging but there is still a long way to go before a consistent, sustainable service is available for all disabled children.
Subject terms:
learning disabilities, local authorities, parents, physical disabilities, rights, short break care, young people, children, disabilities;