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The way we die now: personal stories of terminal illness in the UK
- Author:
- MARIE CURIE
- Publisher:
- Marie Curie
- Publication year:
- 2015
- Pagination:
- 18
- Place of publication:
- London
The stories of six people are presented to highlight the inconsistent care available for people with a terminal illness in the UK. The stories show that everyone’s experiences at the end of life is different, but are often accompanied by recurring themes such as the importance of clear communication and the need for emotional support. Each story is accompanied by key messages learnt from their experience which include: the need for available support for carers, early access to palliative care, and the ability to choose your own place of death. A list of questions for health and social care professionals to use to help them support people at the end of life is included. (Edited publisher abstract)
Hospice Information Service
- Publisher:
- Help the Hospices
Hospice information Service, part of the Help the Hospices website, is for anyone with a professional or personal interest in UK and international hospice and palliative care. It provides a range of services including: a personal enquiry service ; an international linking service; an online directory of courses and conferences ; informal networking and information sharing; and an online job advertising service. It also produces a variety of publications including the UK hospice and palliative care services directory. The directory includes details of hospices and palliative care teams in the UK, along with details of other organisations offering information and support to professionals working in palliative care and to the public.
Supporting the child and the family in paediatric palliative care
- Author:
- BROWN Erica
- Publisher:
- Jessica Kingsley
- Publication year:
- 2007
- Pagination:
- 304p., bibliog.
- Place of publication:
- London
The work of the Acorns Children’s Hospices, their care and research, forms the basis for this book which aims to provide an overview of good practice in caring for terminally ill children, young people and their families. It provides guidance on key issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for limited-life children. The writers also address the importance of individual needs, including emotional, social and cognitive support at different stages of the illness. They consider how parents and professionals can respond to children’s own questions about death, making choices during distressing periods and the impact of life limiting illness on the whole family, including grandparents and siblings. The book is aimed at nurses, paediatricians, hospice care staff and bereavement counsellors, in fact anyone caring for life-limited children.
A fitting end
- Author:
- TAYLOR Jennifer
- Journal article citation:
- Health Service Journal, 30.4.09, 2009, pp.22-24.
- Publisher:
- Emap Healthcare
Surveys suggest most people in the UK support legalising assisted suicide. This article looks at the assisted suicide debate, including the views of doctor and nurses. The article also emphasises the need to improve access to good quality palliative care services.
End of life care strategy: quality markers consultation
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2008
- Pagination:
- 29p.
- Place of publication:
- London
Information on: the End of Life Care Strategy - promoting high quality care for all adults at the end of life; how the Government's commitment on end of life care will be delivered; and other end of life care-related issues and programmes.
Social work practice in palliative and end-of-life care: a report from the summit
- Authors:
- ALTILIO Terry, GARDIA Gary, OTIS-GREEN Shirley
- Journal article citation:
- Journal of Social Work in End-of-Life and Palliative Care, 3(4), 2007, pp.68-86.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
A Social Work Summit on End-of-Life and Palliative Care held in 2005 by the National Association of Social Workers included a range of work groups focusing on research, practice, policy and education, and based on ‘state of the field’ presentations. This paper describes the process of document selection and review that identified aspects of social work practice and their fit with Clinical Practice Guidelines for Quality Palliative Care, a document produced by the National Consensus Project for Quality Palliative Care. A second review focused on a group of documents produced by nursing and medical colleagues, with the aim of identifying the nature and scope of social work presence and participation in end-of-life care in paediatric and intensive care settings. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580).
Palliative sedation: an essential place for clinical excellence
- Authors:
- HIGGINS Philip, ALTILIO Terry
- Journal article citation:
- Journal of Social Work in End-of-Life and Palliative Care, 3(4), 2007, pp.3-30.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
Palliative sedation at the end of life has several definitions but is used here to mean a decision taken in association with the patient, relative or agent to provide sufficient medication to reduce consciousness with the aim of relieving physical or psychological suffering that is otherwise intractable. Many moral and ethical issues surround it for patients, families and professional carers. The potential role of the social worker in addressing both the clinical and ethical issues are discussed in the context of a case study of a woman dying of lung cancer, and various interventions are outlined including Dignity Conserving Therapy, family counselling and education, legacy activities, supportive counselling and cognitive behavioural approaches. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580).
Talk about change
- Authors:
- THE KOSH, (Producer)
- Publisher:
- The Kosh
- Publication year:
- 2008
- Pagination:
- (35 mins.), DVD, booklet
- Place of publication:
- London
Film-makers the Kosh and UK children’s palliative care charity ACT have launched a new groundbreaking DVD resource called Talk About Change made by young people with life-limiting conditions. Talk About Change, funded by BBC Children in Need, aims to show the reality of making the transition from childhood to adulthood knowing that you have a life-limiting condition. This film is about giving young people with a life-limiting condition a voice. They have a right to be heard. They only ask for things that most people take for granted, independence, relationships and the opportunity to train and get a job. Young people also explore how the impact of their health condition or disability has changed as they get older, and highlight a lack of dedicated support services as they approach adulthood.
Overcoming fear of death
- Author:
- TAYLOR Ann
- Journal article citation:
- Nursing Times, 11.09.07, 2007, pp.18-19.
- Publisher:
- Nursing Times
When team of bereavement support nurses realised patients often used metaphor to talk about death and dying they decided to use it as a therapeutic tool. This article looks at work at the Priscilla Bacon Centre for Specialist Palliative Care Services in Norwich and their use of 'The Locked Box' approach.
Journal of Palliative Medicine
- Publisher:
- Mary Ann Liebert Inc. Publishers
This interdisciplinary Journal reports on the clinical, educational, legal and ethical aspects of care for seriously ill and dying patients. It includes coverage of the latest developments in drug and non-drug treatments for patients with life-threatening diseases including cancer, AIDS, cardiac disease, pulmonary, neurologic, respiratory conditions and other diseases. The Journal reports on the development of palliative care programmes around the U.S. and the world and innovation in palliative care education. It is the official journal of the American Academy of Hospice and Palliative Medicine. Coverage on Social Care Online from this journal is limited to relevant systematic reviews only.