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The end of life care strategy: new ambitions
- Author:
- NATIONAL COUNCIL FOR PALLIATIVE CARE
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2014
- Pagination:
- 23
- Place of publication:
- London
Reports on key issues raised at the National Council for Palliative Care (NCPC) conference 'Refreshing the strategy: the next five years for end of life care: what do we need to do?', which was held at the halfway point of the 10-year 2008 End of Life Care Strategy. Key challenges identified at the conference included: the need to commission personalised care on the basis of local needs; the complex nature of end of life care in relation to the number of services involved; improving data and intelligence in end of life care, ensuring end of life care is available to everyone who needs it, better communication about death. The report also includes additional recommendations and thoughts about what next in end of life care which will be developed by NCPC in the future. (Edited publisher abstract)
International perspectives on public health and palliative care
- Editors:
- SALLNOW Libby, KUMAR Suresh, KELLEHEAR Allan, (eds.)
- Publisher:
- Routledge
- Publication year:
- 2011
- Pagination:
- 224p.
- Place of publication:
- London
The editors bring together international experts in the growing field of public health approaches to palliative care. The chapters explore the major concepts, practice examples, and practice guidelines for this new approach. The goal of ‘comprehensive care’, seamless support for patients as they transition between home based care and inpatient services, relies on the principles of health promotion and community development both to ensure services are available and importantly appropriate for patients’ needs. In developing economies, where hospitals and hospices may be inaccessible, a public health approach provides not only continuity of care but greater access to good end of life care. This book provides both a historical and conceptual overview while, at the same time, offering practical case examples from affluent and developing contexts, in a range of clinical settings. The book concludes by drawing together research-based guidelines for future practice.
Delivering hospice care during the COVID-19 pandemic: meeting nursing home residents' needs
- Authors:
- MEDINA Ashleigh, HUEY-MING Tzeng
- Journal article citation:
- Journal of Hospice and Palliative Nursing, early cite 17 May 2021,
- Publisher:
- Wolters Kulwer
This discussion article highlights the challenges of providing hospice care in nursing homes since the start of the COVID-19 (coronavirus disease 2019) pandemic and illuminates practice changes needed in nursing homes. The article provides an overview of the expectations of hospice care, explains the differences in delivering hospice care during the COVID-19 pandemic, examines social isolation and emotional loneliness and the role of familial caregivers, and describes policy changes related to the COVID-19 affecting hospice care delivery in nursing homes. This article answers the following questions: (1) How did residents receiving hospice care have their needs met during the COVID-19 pandemic? (2) What areas of nursing home care need to be improved through governmental policy and restructuring? This article also summarized the lessons learned as a result of the COVID-19 pandemic and provided practical implications for nursing, specific to changes in hospice care deliveries for nursing home residents. (Edited publisher abstract)
Extending specialist palliative care to people with heart failure: semantic, historical and practical limitations to policy guidelines
- Authors:
- CHATTOO Sangeeta, ATKIN Karl M.
- Journal article citation:
- Social Science and Medicine, 69(2), July 2009, pp.147-153.
- Publisher:
- Elsevier
This paper explores the continuities and discontinuities in recent policy on the extension of palliative care to people with heart failure in the UK. It focuses on how professionals in cardiology and specialist palliative care negotiate their disciplinary boundaries within the context of these policy moves. It draws out the semantic, historical and practical tensions between the core values of cardiology, with its focus on ‘living with heart failure’, and specialist palliative medicine, with its focus on ‘dying with heart failure’. A focus on negotiation of interdisciplinary boundaries reveals different engagements with notions of dying and palliation rather than simply different disease trajectories. Further, uncertainty about prognosis and the probability of sudden death pose a challenge to two core principles of specialist palliative care: ‘open awareness’ and ‘good death’. The authors conclude by recommending a wider discussion on notions of ‘open awareness’ and how professionals within different medical disciplines engage with alternate ways of dealing with uncertainty and sudden death as part of human condition. The arguments presented here are based on data and analysis from a larger qualitative study conducted during 2004–2005 in north and central England.
Living with motor neurone disease: lives, experiences of services and suggestions for change
- Authors:
- HUGHES Rhidian A., et al
- Journal article citation:
- Health and Social Care in the Community, 13(1), January 2005, pp.64-74.
- Publisher:
- Wiley
Palliative care involves the complete, holistic care of people with progressive illness and their families. People living with motor neurone disease (MND) require a range of multidisciplinary palliative care services. However, there are significant gaps in understanding of these people's lives, experiences of services and their suggestions for change. This study addressed the questions: What are the lived experiences of people living with MND?; What are people's experiences of services?; and Can improvements to care be identified? A qualitative research design was adopted using semi-structured interviews. The topic guide was developed from existing literature. The study was based in 3 London boroughs. People living with MND and professionals were drawn from a database at King's College Hospital and through 'snowball' sampling. Nine people with MND, 5 carers/family members and 15 professionals took part in interviews, taped, transcribed and checked for accuracy against the original recordings. Themes within the interviews were coded and grouped. Findings are presented within 3 substantive groups: the impact of MND on people's lives (physical impacts including increasing disability; social issues, including restrictions on social activities; and adjustments to people's lives, including coping methods); experiences of services (accessing service entitlements, information sources, professionals' attitudes and approaches, and professionals' knowledge and understanding of MND); and suggestions for service change (better information and communication, including information on service entitlements; improved knowledge among professionals about MND; and some suggestions for service restructuring). This study brings a fresh approach to understanding the impacts of MND and the ways in which services can be improved to meet people's needs. Concludes with methodological considerations, the implications of the findings for practitioners and policy makers, and suggestions for further research.
Ambitions for palliative and end of life care: a national framework for local action 2015-2020
- Author:
- NATIONAL PALLIATIVE AND END OF LIFE CARE PARTNERSHIP
- Publisher:
- National Palliative and End of Life Care Partnership
- Publication year:
- 2015
- Pagination:
- 49
- Place of publication:
- London
This national framework for action sets out six ambitions – principles for how care for those nearing death should be delivered at local level. These include: each person is seen as an individual; each person gets fair access to care; maximising comfort and wellbeing; care is coordinated; all staff are prepared to care; and each community is prepared to help. For each ambition the report summarises what is already known and identifies what is needed to realise it. These are the foundations and building blocks which local health and social care leaders can use to build the accessible, responsive, effective, and personal care needed at the end of life. (Edited publisher abstract)
Palliative care: guidelines for the appointment of general practitioners with special interests in the delivery of clinical services
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2003
- Pagination:
- 8p.
- Place of publication:
- London
This general practitioner with special interest (GPwSI) framework is one of a number commissioned by the Department of Health. This guidance considers the position of the GPwSI in palliative care; it describes the core functions and responsibilities of a GPwSI in palliative care, and the factors that need to be considered in making an appointment to this position. The aims of any palliative care service are to provide quality care for patients requiring palliative care and to bring the best in hospice care out into the community. Palliative care involves taking a generalist perspective in a specialist context. The separate sections of this guidance cover: the core activities of the GPwSI service in palliative care; the core competencies recommended for the GPwSI service; evidence of training and experience for competencies; evidence of successful acquisition of those competencies; evidence of maintenance of competencies; the accreditation process; the types of patients suitable for the service; local guidelines on the use of the service; the facilities ideally present to deliver a GPwSI service in palliative care; clinical governance, accountability, and monitoring arrangements; induction and support arrangements for the GPwSI; and monitoring and clinical audit arrangements.
End-of-life strategy to ensure quality of care for dying patients
- Author:
- TORJESEN Ingrid
- Journal article citation:
- Nursing Times, 29.7.08, 2008, pp.21-22.
- Publisher:
- Nursing Times
The author analyses the clinical implications of the government's End of Life Care Strategy. The article includes discussion of care planning and the coordination of care and training in end-of-life care.
A good death?
- Author:
- WILLIAMSON Toby
- Journal article citation:
- Working with Older People, 12(1), March 2008, pp.21-23.
- Publisher:
- Emerald
People want to die at home, not in a health or care setting. The author comments on this new focus on 'a good death' and explores what the strategy may hold and its implications.
Adult protection cases in a hospice: an audit
- Author:
- PAYNE Malcolm
- Journal article citation:
- Journal of Adult Protection, 7(2), August 2005, pp.4-12.
- Publisher:
- Emerald
This article reports on an audit of 12 adult protection cases arising in a south London hospice during 2004, it includes case studies illustrating issues arising and information about the introduction of a new policy and procedure following No Secrets guidance (Home Office/Department of Health, 2000). Introducing reporting to local authority social services and adult protection co-ordination raised various issues.