Search results for ‘Subject term:"palliative care"’ Sort:
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The effect of witnessing death 1: nursing implications
- Author:
- SHELVINGTON Dawn Mari
- Journal article citation:
- Nursing Times, 28.08.07, 2007, pp.26-27.
- Publisher:
- Nursing Times
This is the first of a two part article examining how patients are affected by witnessing a death. The article covers the background and literature review, and discusses implications for practice.
Palliative care services: meeting the needs of patients
- Authors:
- ARMITAGE Mary, et al
- Publisher:
- Royal College of Physicians
- Publication year:
- 2007
- Pagination:
- 51p.
- Place of publication:
- London
This report says that all patients who are suffering and dying should have the opportunity for a good death, with management of symptoms and psychological social and spiritual support. It highlights that access to palliative care services is inadequate and inequitable, with unacceptable variations in care geographically, across different demographic groups and patients with different illnesses and needs. There is particular disparity between patients with cancer and those suffering from non-malignant conditions.
The effect of witnessing a death 2: communication and ethics
- Author:
- SHELVINGTON Dawn Mari
- Journal article citation:
- Nursing Times, 4.09.07, 2007, pp.26-27.
- Publisher:
- Nursing Times
This article discusses communication following the death of a patient and ethical issues that should be taken into consider.
Being mindful, easing suffering: reflections on palliative care
- Author:
- JOHNS Christopher
- Publisher:
- Jessica Kingsley
- Publication year:
- 2004
- Pagination:
- 272p., bibliog.
- Place of publication:
- London
The author describes how he has combined traditional medical, and more reflective models in his palliative practice, enabling him to work mindfully to alleviate physical and non-physical pain and suffering throughout the health-illness cycle. With reference to ideas from Buddhist philosophy around compassion and reflective knowing, this important book shows how the core task of those working in palliative care is to nurture the spiritual growth and development of their patients and, in turn, themselves.
Elderly patients' perceptions of the readability and content of written information in palliative care
- Authors:
- PAYNE Sheila, et al
- Journal article citation:
- Generations Review, 10(4), December 2000, pp.6-7.
- Publisher:
- British Society of Gerontology
Presents the findings from a small qualitative study which examines how patients assess and use written information in palliative care.
Mutual support between patients and family caregivers in palliative care: a systematic review and narrative synthesis
- Authors:
- McCAULEY Rachel, et al
- Journal article citation:
- Palliative Medicine, early cite April 2021,
- Publisher:
- Hodder Arnold
Background: Patients in palliative care are usually conceptualised as recipients of support from family caregivers. Family caregivers in palliative care are typically defined as providers of support to patients. Little is known about reciprocal dimensions of support provision between patients and family caregivers in palliative care. Aim: To identify processes of mutual support between patients and family caregivers in palliative care and factors that contribute to or obstruct mutual support between patients and family caregivers in palliative care. Design: Systematic review and narrative synthesis of original peer-reviewed research published between January 2000 and March 2020. Data sources: Medline, CINAHL, Embase, AMED, PsycINFO and PsycARTICLES. Results: After full-text screening, 10 studies were included. This study identified that patients and family caregivers in palliative care can support one another by mutually acknowledging the challenges they face, by remaining positive for one another and by jointly adapting to their changing roles. However, patients and family caregivers may not routinely communicate their distress to each other or reciprocate in distress disclosure. A lack of mutual disclosure pertaining to distress can result in conflict between patients and family caregivers. Conclusions: Few studies have focused in whole or in part, on reciprocal dimensions of support provision between patients with advancing non-curable conditions, and their family caregivers in palliative care. Further research is required to identify key domains of mutual support between patients and family caregivers in palliative care. (Edited publisher abstract)
Palliative and end of life care toolkit
- Authors:
- ROYAL COLLEGE OF GENERAL PRACTITIONERS. Clinical Innovation and Research Centre, MARIE CURIE
- Publisher:
- Royal College of General Practitioners
- Publication year:
- 2016
- Place of publication:
- London
This toolkit provides links to a range of resources to support GP practices and health professionals in ensuring patients nearing the end of life, and those close to them, receive the highest quality of care and support. It includes tools, guidance, current best practice policy, and legislation for healthcare professionals. It also provides links to training resources to help with continuing professional development and audit tools to evaluate practice. A section providing information for patients, informal carers, and those close to someone nearing the end of life is also included. Developed in partnership with Marie Curie and the Clinical Innovation and Research Centre, the toolkit will be updated on a regular basis. (Edited publisher abstract)
Relationships between psycho-social issues and physical symptoms of Hong Kong Chinese palliative care patients: insights into social workers' role in symptoms management
- Author:
- CHAN Wallace Chi Ho
- Journal article citation:
- British Journal of Social Work, 44(8), 2014, pp.2342-2359.
- Publisher:
- Oxford University Press
Social workers' uniqueness in providing psycho-social care in palliative care has been increasingly challenged in the twenty-first century. One area in which social workers may overlook their roles and contributions is in management of patients' physical symptoms. The literature mainly highlights the role of social workers in working with the psycho-social pain of palliative care patients but may address little the relationships between different psycho-social factors and the physical symptoms of patients. Therefore, this study aims to explore t the relationships between different psycho-social factors and number of physical symptoms experienced by Hong Kong Chinese patients on admission to palliative care. Nine hundred and thirty-five patients were included in three years' clinical data. The presence of various psycho-social factors, such as being unaware of the diagnosis and prognosis, not ready to work out a death plan, alienating others and personal beliefs/values was associated with a smaller number of physical symptoms. Patients with a higher anxiety level were associated with a greater number of physical symptoms. Findings are discussed in relation to the possible impact of psycho-social factors on patients' reporting their symptoms. Implications of how social workers may provide contributions in the area of physical symptom management are discussed. (Publisher abstract)
How do patients respond to end-of-life status?
- Authors:
- RICHARDS Naomi M., et al
- Journal article citation:
- Nursing Times, 110(11), 2014, pp.21-23.
- Publisher:
- Nursing Times
Although health professionals may tell patients when they are nearing the end of the lives, patients do not always absorb or want this information. This study explores if and how information about palliative care was communicated to patients and to what extent they felt involved in decision making. Semi-structured interviews were conducted with 15 patients and three family carers, 3-6 months after discharge from hospital. Despite indications that participants might be nearing the end of their lives, most were unaware of their prognosis and showed little insight into what they could expect. The study concludes that new and innovative ways of delivering palliative care are needed. It also acknowledges that not all patients will desire full open awareness of their condition. (Edited publisher abstract)
Faith healing and the palliative care team
- Author:
- HESS Denise
- Journal article citation:
- Journal of Social Work in End-of-Life and Palliative Care, 9(2-3), 2013, pp.180-190.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
As the spiritual care needs of patients and their loved ones have become an essential component of palliative care, clinicians are being challenged to develop new ways of addressing the spiritual issues that often arise in the palliative care setting. Recent research has given attention to the communication strategies that are effective with patients or their loved ones who report that they are seeking a miraculous physical healing. However, these strategies often assume a unilateral rather than collaborative view of divine intervention. Communication strategies that are effective with unilateral understandings of divine intervention may be contraindicated with those who hold to a collaborative view of divine intervention. Greater attention to language of human-divine interaction along with approaching faith healing as a third modality of treatment are explored as additional interventions. (Publisher abstract)